End of life care & letting go ..
- about indicators that the disease has progressed into its final stages and how to provide the most effective comfort care
- how to communicate when there are no words through visual, auditory, and physical signals of connection especially regarding pain!
- about physical changes and the importance of primitive reflexes eg. Swallowing/ feeding and changes in vision and agitation
- techniques for a consistent positive physical approach
- about different care approaches, from health promotion to compensatory care
- about giving the person with dementia permission to pass without giving up on them (Letting Go vs. Giving Up)
Advanced Care Skills in Late Stage Dementia
Whether you work in a skilled or hospice care setting, this program is a must-see for anyone who seeks to provide the most comfort, dignity and quality of life to the person living with dementia.
This program offers step-by-step instructions and hands-on skills for a variety of late stage care needs, all based on Positive ApproachTM techniques to help care partners handle even the trickiest of care tasks and reduce their risk of injury.
• How to calmly get a person out of bed while protecting your back
• How to safely transfer a person from bed to wheelchair
• How to best transfer a person from bed to wheelchair using a SARA lift
• How to bathe and dress a person in bed while protecting their dignity
• How to assist with eating and drinking using the most compassionate care techniques
This new program reveals simple and practical ways for direct care staff to provide holistic, person-centered care and maintain a human connection.
Blending nursing care and meaningful activities, the program promotes peaceful and relaxing end-of-life experiences for older adults. Sensory-based practices, like placement in comfortable armchairs, soothing music, and gentle massage, emphasize comfort and pleasure. Personal information is used to individualize the experiences, making them as enjoyable as possible for participants.
Step-by-step advice for staffing, budgeting, and marketing a program is included. Detailed information for creating a Namaste Care room is provided, as well as alternative options for facilities with limited space. Plus, real-life vignettes illustrate the program in practice.
- People with dementia need increasingly specialised support as they approach the end of life, and so too do their families and the professionals who work with them. This book describes not only what can be done to ensure quality of life for those with the illness, but also how best to support those who care for them throughout this difficult period.
related books :
Lost Words has more than 290 pictures and their corresponding words. The book is spiral-bound for ease of constant use. There are also a few plastic pockets for keeping photographs in, plus a few pages for personal notes.
There are also many, like some dementia and stroke patients, who have completely lost the ability to speak. For everyone involved, this book can be of great help to both patients and caregivers.
The banana lady – review by one of our carers/library members
My husband has Semantic dementia, which is disease of the brain in the FTD (Frontotemporal dementia) group and “the banana lady” and other stories of curious behaviour and speech is one of the best collection of case studies I have read on this subject. Semantic dementia is quite rare, and I felt very supported by reading this book as the descriptions presented are so similar to what I am experiencing as a Carer.
There has been quite a lot mentioned about language/comprehension problems, but this book also highlights the behaviour issues which can be very challenging indeed.
It is easy to read and there is an excellent chapter on Tips for Caregivers..
- Where the Light Gets in : Losing My Mother Only to Find Her Again
Kim’s mother, Linda, was diagnosed with a rare form of dementia that slowly took away her ability to talk, write and eventually recognize people in her own family. "Where the Light Gets In" tells the full story of Linda's illness called primary progressive aphasia from her early-onset diagnosis at the age of 62 through the present day. Kim draws a candid picture of the ways her family reacted for better and worse, and how she, her father and two siblings educated themselves, tried to let go of shame and secrecy, made mistakes, and found unexpected humour and grace. Ultimately the bonds of family were strengthened, and Kim learned ways to love and accept the woman her mother became. With a moving foreword by actor and advocate Michael J. Fox, "Where the Light Gets In" is a heart warming tribute to the often fragile yet unbreakable relationships we have with our mothers."