May 24, 2018

Journal of dementia care vol 26 no 3 May/June 2018

*These DVDs, articles and books are available to members of dementia Australia library NSW - if you would like to reserve them please email the Library on

 News in brief (pages 6-8)

Hunt on social care - we need to better
7 principles include
  1. Quality and safety of services
  2. Integrated health and social care “operating as one”
  3. Highest possible control given to people receiving support
  4. Valued workforce
  5. Better practical support for families and carers
  6. Sustainable funding model
  7. Greater security for all in need of a service…
  8. Correlation found between neglect and staff burnout…

Hygiene controversy over robotic seal in hospitals
PARO the robotic furry seal may not be safe for use with people with dementia in hospital wards  -while it can be thereuputic it needs to stay with in the limits of infection control.

New drug offers hope to alleviate psychosis
Called pimavanserin …

Lack of support after diagnosis
A third of people with a dementia diagnosis get inadequate post-diagnosis support…and do not have a care plan …and this is leading to an urgent and growing need…
According to Alzheimer’s society – nearly two thirds of people with dementia who live on their own feel lonely – What is the solution to loneliness?
many people face the condition alone without adequate support. With two-thirds of people with dementia living in their local community, and many of them living alone, it is vital that the right support is available to enable them to live well with the condition. Dementia can be an extremely isolating experience. One survey we did found that nearly two-thirds of people with dementia who lived on their own reported feeling lonely and a third said they had lost friends. But initiatives like Dementia Friends are both helping to create a world in which everyone affected is empowered to live a life they want and no one has to face dementia alone.  …p 10 – 11

Support for rights and voices heard
Innovations in dementia had done a great deal in it’s short life…achievements of social enterprise whose purpose is to make sure people with dementia are heard…includes rights, accessibility, belonging and dementia voices – concluding that although the organisation is only 10 years old and still small they have been able to punch above their weight and have influence on the contemporary landscape …in the years to come they want to see more of people with dementia claiming their rights ….p 12 – 13

Dementia-friendly Brent a model community
Seldom heard ethnic minority groups play a vital role in making one London borough dementia friendly. Community action on Dementia Brent is a dynamic social movement making Brent dementia friendly, accessible and inclusive of black and minority communities. Early in the journey Dianne Campbell a local resident with younger onset dementia read about the group in the local paper and became a key part of the strategic group. Dianne was highly articulate and had experienced peer support in another area….the program includes dementia peer support project; and dementia friendly Mapesbury – an area of Brent with active residents’ association which wanted to do something for people living with dementia. Firstly there was a need for  training people (dementia champions) for the task and then how to raise awareness among groups whose voices are seldom heard…but still remaining mindful of differences in faith and cultures …
  • Another initiative is the De-Caf – here people with dementia and their carers shape the activities on offer  such as creative arts, oral history , dancing and music…
  • Whole street of support – stretches beyond Mapesbury …shows how a community can contribute to and environment where people with dementia feel safe, confident and connected…
  • The shed – a place where men predominately can go to reduce the risk of social isolation…
  • Partnerships in innovative education - - training based on a social model for receptionists, admin staff, practice nurses and health assistants …p 14-15

Telecare: addressing the problems and challenges 
If telecare where better used outcomes could improve…main findings from the survey indicate that by organising and providing telecare differently outcomes could be improved – to keep people safe and prevent accidents, and keeping people independent and as a way of supporting family carers, and also promoting social contact and spending time meaningfully – needs to include training for telecare assessments …p 18- 19

Comfort care, peace and dignity at the end of life
Good end of life care is essential in dementia but not always delivered
Five priorities - When it is thought that a person may die within the next few days or hours
1 this possibility is recognised and communicated clearly  and appropriately to the resident and family
2 sensitive communication takes place between staff and the dying person and those important to them
3 the above are included in decisions about treatment and care
4 needs of the families and others are actively explored, respected  and met as far as possible
5 individual plan of care which includes food  and drink, symptom control  and psychological and social and spiritual support is agreed, co-ordinated and delivered with passion…
Useful tools include the abbey pain scale and the disability distress assessment tool…p 21 -23

Remembering yesterday, caring today : 20 years on
The director of the European Reminiscence Network
Key points include as late as the 1990s reminiscence work went largely unacknowledged in dementia care
It has an important part to play in the development of person centred care and support
Families have appreciated the structured, creative, inclusive approach …p 24- 27
other resources related to 

the book 

Book review : Remembering yesterday, caring today : reminiscence in dementia care a guide to good practice 
We all assume that reminiscing activities for people with early stage- mid stage dementia have positive outcomes. However for real evidence and guidance on how this can occur this book is really useful and filled with tried and true methods. The title of the book is the name of a wonderful project that involves the dementia clients, their carers, workers and volunteers. The people involved in the project meet many times and report their findings both positive and negative. This book records how using a series of reminiscing sessions based on retracing the life course these teams have very positive and enjoyable outcomes for carers and the client. The book is illustrated with photographs showing how the teams worked and one can see how using these methods how they all had a memorable time. The concept of working with both the client and the carer show the true benefit of a dual-purpose activity.
Chapters 1-3 cover the current theories on reminiscence therapy, which give credence to doing this type of work with clients. The topic headings and contents for the sessions that retrace the life course provide lots of ideas that could easily be adapted to the Australian culture eg “Starting work and working lives”, “going out and having fun”. There is also a great session on “reminiscence alone” groups.
This practical book is a very useful tool for dementia care workers and practitioners 

other resources 
Personal life history booklet
by Kate Gregory
A person’s life represents the accumulation of a wealth of experiences which form their social and life history. Every person’s memories are unique to that individual. This booklet has been designed to collect the unique social and life history of an individual with dementia. This life history will help individualise the care of the person with dementia and maintain their identity. It will also help people caring for the individual to know them and develop strong relationships with them.

The Reminiscence Trainer's Pack: For Use in Health, Housing, Social Care and Arts Organisations, Colleges, Libraries and Museums, Volunteers' and Carers' Agencies

Reminiscence can enrich relationships and enhance caring. The pack aims to equip trainers in a variety of settings, sectors and service agencies primarily concerned with older people. The training is designed to introduce reminiscence workers to the theory and practice.

Contents: Introduction -- Aims and objectives -- Using the teaching pack -- Programmes -- 1. What is reminiscence? -- 2. Why reminisce? -- 3. Reminiscence work in small groups (1) -- 4. Reminiscence work in small groups (2) -- 5. Reminiscence work with individuals -- 6. Reminiscence work with people with dementia (1) -- 7. Reminiscence work with people with dementia (2) -- 8. Reminiscing with people with hearing, sight and speech disabilities -- 9. Reminiscing with people with learning disabilities -- 10. Reminiscing with people with depression and with people who have a terminal illness -- 11. Reminiscing with people from ethnic minorities -- 12. Consolidating skills and sustaining good practice -- Evaluation forms -- References -- Certificate of attendance

Remembering home : rediscovering the self in dementia

Remembering Home provides a compelling argument that home is one of the most enduring and important concepts in the minds and hearts of people with dementia. It is a timely and practical guide to working with memories of home and should be required reading for anyone who works with people who have dementia."

Aniseed balls, billy carts and clothes lines : an abc of growing up in the thirties [book and CD set]
by Roly Chapman
Roly Chapman was born to English parents in Auchenflower, Brisbane in 1926. His reminiscences of growing up in the 1930s will bring a smile to many readers both young and old.
With chapters covering diverse and intriguing subjects such as The Flicks, Cracker Night, The Ekka, Hawking and Spitting, Made in Japan, The Rat Gang, Jargon, and Dunnies and Dunny men, there are lots of laughs and many memories awaiting rediscovery.
The entertaining topics are also of historical interest, documenting aspects of every day life in the 1930s that today have been all but forgotten and are quite foreign to children of the 21st century. 

and also available on our eLibrary 

Paramedics and dementia
Paramedic students are learning more about dementia care – it is evident from the research that emotional support and guidance should urgently be incorporated in undergraduate programmes ..p 28 -29
we have the David Sheard DVD 
Dementia care matters in the Ambulance Service DVD 

Dementia care in A&E : how to avoid admissions
Practice points :
  • Emergency department (ED) assessing people with dementia is this environment is challenging but it must be done effectively   if unnecessary admissions are to be avoided
  • Dementia care – understanding the person’s needs  and responding to them flexibly and creatively
  • Mental health liaison  - triage tool can help
  • Preventing hospital admissions – in  a sample of 11 patients 10 were able to return to the community directly thanks to the intervention by the nurse consultant …p 30 - 31

No comments: