March 24, 2018

new journal - Australian Journal of Dementia Care vol 1 Feb/March 2018

*These resources and eRsources and articles are available for loan to members of dementia Australia library NSW - if you would like to reserve them please email the Library on


Bedtime to breakfast and beyond: sleep program boosts daytime engagement
What started as a program to improve the sleep of people with dementia at one Life Care site has led to a fundamental shift in how the South Australian aged care provider implements and embeds person-centred care for all residents with dementia, not just at night but 24 hours a day. Deborah Muldoon explains… key changes to night time practices includes
Call bells that vibrate
Ring tones on phones turned down
Lights dimmed
Rooms changed to enhance seeing of commode/toilet and overnight drinking
Clinical reviews now when resident wakes up – not at 6am
TV and small group activities offered for residents in a separate room
Soft music plays….p 21-24

Night time care : a practice guide
This accompanying practice guide supports staff through implementing changes that will improve the lives of people with dementia and those who care for them at night.


Providing good care at night for older people : practical approaches for use in nursing and care homes 
"Night staff have to provide the same level of person centred, individualised care as day staff. Their primary task is seen as the promotion of sleep. This can often mean that they feel compelled to get people back to bed as quickly as possible. Often, however, residents need, time, food, activity, and TLC as well as an opportunity to talk and discuss, particularly their fears and worries."
Night time activities include --  calm gentle nights by the radio  --  a walk in the evening air --  having a snack/ nightcap --  reading aloud

The experiences and needs of residents and patients in nursing and care homes are very different at night, and this is particularly true for those with dementia.

The authors look at all of the issues that are particularly pertinent in caring for older people at night, including nutrition and hydration, continence, challenging behaviour, medication, night time checking, pain management and end of life care. They also look at the impact that working at night has on care staff, and offer practical suggestions to help them to safeguard their own health. The final chapter provides a set of night time care guidelines for inspectors that can also be used by managers to evaluate night time practices in their homes.

This book is essential reading for night staff and their managers and employers, as well as inspectors of services, policy makers, and anyone else with an interest in the provision of care for older people.
*  also available as an eBook

Investigating the phenomenon of time-shifting

Anecdotal evidence suggests that time-shifting is a fairly common phenomenon in people with dementia, but no previous studies have analysed it in terms of occurrence and frequency. Laura Gibbons, Gayl Keddie and Ian A James introduce the concept, in which memories from the past are perceived as relevant in the present, and discuss what care home staff say about its nature and frequency

Introduction to validation : communicating with very old people with Alzheimer's and other dementias
Learn the essential principles and techniques of the Validation method through demonstrations by Validation originator Naomi Feil and master Teacher Vicki de Klerk-Rubin in this short training DVD. The powerful communication techniques can be used by medical, nursing and paraprofessional staff as well as social workers, care managers, and occupational and recreation therapists to connect with disoriented older adults, relieve their distress, and improve care

Books on Validation therapy include:
The validation breakthrough : simple techniques for communicating with people with Alzheimer's and other dementias
Validation is a practical way of communicating with and managing problem behavior in older adults with Alzheimer's-type dementia. It helps reduce stress, enhance dignity, and increase happiness. Since its inception in 1989, Validation has helped thousands of professional and family caregivers improve their relationships with residents and loved ones with dementia. Caregivers who use these techniques validate older adults' expressed feelings, rather than focusing on disorientation and confusion. In this book you'll learn how to re-create relationships between confused older adults and their caregivers, be caring and non-judgmental understand and handle challenging behaviors interpret non-verbal cues in a way that promotes communication implement -
  • Residents express less anger and anxiety, decreasing the need for chemical and physical restraints.
  • Residents communicate more and exhibit an increased sense of humor
  • Residents often move better and experience an improved sense of self-worth.
  • Staff members express a greater sense of fulfillment at work and feel better prepared for handling difficult situations.
  • Staff members demonstrate a higher level of camaraderie
  • Families visit more often.

PALZ: supporting professionals with Alzheimer’s

Offering a corporate-style social forum for people in the early stages of Alzheimer’s disease, PALZ is preparing to expand across Australia and internationally. Cathy Roth reports

Join the ACcORD collaboration

Rob Sanson-Fisher and colleagues from the ACcORD program are inviting Australian health care providers and consumers to join the collaboration to improve well-being and health outcomes for people with dementia and their carers

Dementia and sight loss: a challenging combination

Sight loss affects tens of thousands of people with dementia, but with the right understanding, education and awareness, they can be supported to live well. Paul Ursell and Gemma Jolly show how one influential committee is making a difference
List of what to do includes making the most of existing sight
Finding out more about the eye condition
Regular eye examinations
Improved communication- eg use introductions
Tell the person if you are moving away!
Adapting activities
Consider technology that might help… p. 11-12

The View From Here

Fred Graham, Sandra Jeavons, Liz Miles and Elizabeth Beattie introduce The View From Here, an evidence-based online training package suitable for all Australian hospitals to use in preparing their staff to provide quality care for patients with dementia…topics include:
  • Neuropathy
  • Delirium and delirium superimposed dementia
  • Communication strategies
  • Information gathering and bedside tests
  • Approaches to pain assessment
  • Activities for the acute care setting
  • The environment – sensory, physical and social
  • Care planning and interventions p. 13-18

 books include :

Enriched care planning for people with dementia : a good practice guide for delivering person-centred care
by May Hazel, Paul Edwards and Dawn Brooker
The correlation between `disengagement' and illness in people with dementia living in long-term care settings is becoming more widely recognised, and developing and adapting front-line staff responses to the changing needs of individuals is a crucial factor in addressing this problem. This book presents a complete practical framework for whole person assessment, care planning and review of persons with dementia or signs of dementia (including those with learning disabilities) who are in need of, or already receiving, health and/or social support. The book provides photocopiable assessment forms, guidelines for carrying out the assessment, and suggestions for tailored interventions based on the profile that emerges from the assessment process. The authors also include a clear explanation of the five theoretical components of dementia that are considered in the assessment: health, biography, personality, neurological impairment and social psychology. This good practice guide will provide a step up to the challenge of providing person centred care as a minimum standard rather than just an ideal. Care workers in residential settings and social workers assessing clients for their support requirements will find this an essential resource.

A tale from a dementia champion

Tim England shares his experiences of creating a grassroots education campaign to transform community attitudes towards dementia… 18-19

‘It ain’t what you do, it’s the way that you do it’

Pre-assessment counselling is helping to minimise anxiety surrounding the diagnostic process. Anna Buckell and colleagues discuss findings from their early intervention service…includes pre- assessment counselling – getting to know the person to help build a trusting relationshipand be responsive to the person’s needs – needs highly skilled team …p 30

Human rights, disability and dementia

Dementia Alliance International Chair Kate Swaffer explains the significant effort that will be required to implement the WHO’s Global Dementia Action Plan and why human rights and the recognition of dementia as a disability must be reflected in all regional and national dementia strategies and plans… includes recognising dementia as a disability
a new pathway to  diagnostic support
educate helath care staff
p 25-28

‘What the hell happened to my brain? Living beyond dementia’ by Kate Swaffer 

“Kate Swaffer is phenomenal. Diagnosed with frontotemporal dementia before the age of 50, she has been a leading advocate for dementia ever since, with a much-followed blog site, addresses at numerous conferences and the best-selling book whose title heads this blog post. 

She is a member of the World Dementia Council and co-founder and chair of Dementia Alliance International, the first global organisation exclusively for people with dementia. It is entirely fitting that she is the South Australian nominee for Australian of the Year 2017 and of course we hope she wins. Last year’s victor was Chief of the Army and in 2015 the winner was a campaigner against domestic violence.

The book makes interesting reading, with some biographical material, some very illuminating descriptions of the difficulties Kate has with memory, words and so on, and then a lot of material aimed to support people with dementia in their lives but also a call to action for people with dementia to be more involved. 

Overnight respite: home-grown and developed together

David Panter introduces ECH’s new purpose-built overnight respite centre in Adelaide, developed in consultation with carers and people with dementia … insights
Choosing to care
Control and conflict
A shrinking world
Vulnerable partnerships
One size does NOT fit all
Physical well-being and safety
Need for overnight respite…lounge room, suitable  furnishings, guest rooms, ensuites, …p29-31

Getting the most out of respite care: a guide for carers of people with dementia

If you are supporting someone with dementia, you are important. You are helping that person to continue living in the community with dignity and love. However, to keep doing this, you need to look after yourself and sometimes that means taking a break. Making the decision to use respite care is a hard one, but it is one that is shared by many carers like you. While there are many resources available to give you information about the care system, this resource is designed to help you in your decision-making about respite by providing you with information from the carer’s perspective. In here you will find stories about carers and their experiences of respite care, as well as advice and tips to help you make the most of your respite experience.

At the back we have included contact details for organisations and services that can help you with information about accessing respite care when you are ready to make the decision to use it.

The idea for this guide began after reviewing the results of a national survey of over 300 carers of people with dementia. In that survey, they were asked about their experiences and opinions of respite care. The responses to this survey provided information of great potential use to other carers – and so this guide was begun.

Support for carers a practical guide to services for families and friends of people with dementia

This guide has been developed as a helping hand for carers and the loved ones they care for. As a carer I found it quite difficult to find what services were available at the different stages of the dementia journey, so the guide is put together in a roadmap format. This will help carers to access the services when they are needed and to help with future planning. It has been made possible through the generous support of a carer and with the assistance of the Alzheimer’s Australia National
Consumer Advisory Committee. They join me in hoping that the information within these pages help smooth the journey for you and your loved ones

Research focus – investigating the phenomenon of time-shifting
-          Is a fairly common phenomenon in people with dementia – therefore may need reorienting strategies, meeting the needs, distraction and therapeutic lies p 32-34
         Support for surrogate decision makers p 35
          Implementing Montessori programs p. 35
      Improving end-of-life care p 36

A good life to the end : taking control of our inevitable journey through ageing and death

Ken Hillman is a practising intensive care specialist who is a Professor of Intensive Care at the University of New South Wales. He trained at St Vincent's Hospital in Sydney and worked in London for 6 years before returning to Australia as Director of Intensive Care at Liverpool Hospital in Sydney. Professor Hillman is internationally recognised as a pioneer in the introduction of the Medical Emergency Team which recognises and responds to seriously ill hospital patients early in their deterioration, which has been adopted in the majority of hospitals in the United Kingdom, United States of America and several European countries. He is working closely with the Clinical Excellence Commission on rolling out the Medical Emergency Team to every hospital in New South Wales. He is also passionate advocate of improving the management of the dying patient in acute hospitals.

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