March 28, 2018

Journal of dementia care Vol 26 No 2 March/April 2018

*These resources and eRsources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@dementia.org.au


  Loudly but silently finding and sharing joy
Mask theatre company Vamos  is running and Arts Council- funded project which puts people with dementia  and their carers at the centre of its work p 12-13

Five-star hospitality and comfort with care 
A central London care home for people with dementia  provides a luxurious setting for it’s residents
It’s more like a hotel for people with dementia than a care home, it also runs a day club and there is a high demand for this p 14-15

Living in Carerville 
Linda Vipond thought she had a sound  knowledge of caring as and experienced care manager for older people. But  it was only when she became her mum’s carer that she really began to understand….she discovered the need for patience to the umpteenth degree – and realised how utterly exhausting it was to manage night-times. She believes that after her experiences she will be far more understanding of the physical and mental tiredness  endured by all.p 16
New tech keeps an eye on patients
Camera based technology is being used to monitor the health of dementia patients in a Midlands hospital – the project’s aim is to enhance and not hinder or replace nursing care.  P 20

Involving young players in football reminiscence 
Sporting reminiscence can have a significant impact on wellbeing, but see what happens when the experience becomes intergenerational…Activity programme
Lunch in café with young footballers
Young footballers  discuss who people played for which famous players did they play with…
Young footballers give 20 minute display of skills  to all day hospital participants
Powerpoint picture show of persons career presented to all participants
Quiz questions on football, sports, music  and memories …
Tea and cake  p. 22-24

Challenging expectations of life with dementia 
Most home care homes in Scotland  are doing well with implementing  the standards of care for dementia. However there are key areas where improvement is still needed …dementia standards
I have the right to a diagnosis
I have the right to be regarded as a unique individual  and to be treated with dignity and respect
I have the right to access a range of treatment, care and supports
I have a right to be as independent as possible and be included in my community
I have the right to carers who are well supported and educated about dementia
I have the right to end of life care that represents my end of life care that respects my wishes

What they found58% provided good or better care and 42% no better than adequate
65% of people are able to access the garden independently 45% of care homes, staff reported that staffing levels frequently prevented people from accessing the  community at least once a week and it was seen that a wave of improvement is often generated when a specific area of care is examined in detail by a focused inspection! ….p25-27

Understanding the barriers facing BAME communities 
What are the barriers confronting ethnic minority communities attending memory services?
Service awareness
practical barriers
such as language / interpreters
travel – may not use public transport or travel outside of familiar environment
Money – they think they need to pay for interpreters
Gatekeeper barriers
Registration – not registered with  GP
Referrals  - not referred on from a GP
Disclosure – family won’t disclose all of difficulties due to stigma
Implications for practice
Engagement
Pathway to memory services
Dissemination

2 themes
Causes of dementia – sub theme
a normal part of ageing – seen as a character flaw
Fear and respect – being disrespected and undervalued –feel safer in own culture
Generational differences – don’t want to be a burden
Stigma – mad, crazy  stupid ….p28- 31

Peer support, expert help and social interaction

How memory matters - education and advice courses was experienced by participants – key findings
Memory matters course provides education and advice for people soon after diagnosis
The course provide an important combination of reassurance through peer support, social interaction and professional advice
The course is having a positive impact on how participants live and that their wellbeing is substantially enhanced
This is often the first time that people have had easy access to this sort and it is vital to relieving  the many fears they experience
The course provides support to start difficult and sensitive discussions about planning ahead, which some go on to do
Some interviewees said they would have liked a separate carer sessin to allow for more openness in discussions
Other interviewees said they would like the course run more regularly so that more people could attend… p 32-34
Book review


Facilitating Spiritual Reminiscence for People with Dementia: A Learning Guide

Spiritual reminiscence is a way of communicating that acknowledges the person as a spiritual being and seeks to engage the person in a more meaningful and personal way. This practical guide teaches carers how to facilitate engaging and stimulating spiritual reminiscence sessions with older people, and particularly with people with dementia. After reading the guide, carers will understand the many and varied benefits of spiritual reminiscence, and will have developed the skills, confidence and communication techniques needed to support people with dementia in this activity. The authors present in accessible terms the evidence-base to support the benefits of the approach and provide clear, step-by-step instructions for facilitating spiritual reminiscence sessions, including useful suggestions for ideas and questions to stimulate discussion. Intended to be used either as a self-learning tool or as the basis for staff training sessions, this will be a valuable resource for staff in care homes and day centres, activity coordinators, pastoral and spiritual care professionals, clergy and spiritual leaders.







No comments: