January 22, 2018

UK Journal of Dementia Care vol 26 NO 1 Jan/Feb 2018

Full text articles, DVDs,  books, Books on CD and eResoures are available to members of dementia Australia NSW by emailing NSW.Library@dementia.org.au

JDC  Many care homes still rely on antipsychotic medication for some people with dementia  - But do they have an alternative??
 In considering how the inappropriate use of antipsychotic medication for people with dementia living in care homes could be addressed, it is important to look beyond the medical model of care that often prevails. This model seeks only to manage the so called “challenging behaviour” of people with dementia, rather than looking at what unmet need may be causing this behaviour. It is essential to remember that people living with dementia are often experiencing significant changes to their physical and psychological functioning. They are often trying to make sense of a new environment and coming to terms with the loss of things that are familiar, which provide reassurance, comfort and wellbeing. P 8

The Herbert Protocol for people at risk
Describes an early intervention scheme designed to help locate vulnerable people deemed to be at risk of going missing…
Search information includes;
  • Medical conditions
  • Places frequented
  • Mobile phone number
  • Past interests/ hobbies
  • Previous address
  • Up to date photo… pg 14-15

Train the trainer : how it worked in care homes
How do you train care staff when staff turnover is high and everyone is busy all the time? – report on the findings from evaluation of a potential solution in which staff themselves were recruited to train their colleagues includes information on cost effectiveness and the observations …see Barbara’s story (Dvd and training manual in the library )p16-18

Kinecting through group digital games
Digital technologies offer lots of opportunities for people with dementia to enjoy games and engaging activities … people with dementia learn to play Xbox Kinect bowling and enjoying doing so – but trainers must know how to introduce teach and support them…p 19

Dementia human rights and BAME communities
Attempts to embed human rights in health care have failed to dislodge the medical model of service evaluation in the NHS – it is argued that renewed effort is required to protect and promote health care rights particularly migrant and black and ethnic minority communities are concerned …p 22-23

An activity- based model for residential care
Activities should be a vital component of good care but are  often neglected – we see two exemplary day time activity centres – in Canada and the Netherlands – focus on immersive activities and providing stimulating  environments – simple open spaces with clear sightlines  - emphasis on ‘doing ’ not on passive watching – activity spaces are too often segregated and depend on navigating disorientating institutional corridors  - self-contained clusters with bedrooms opening  directly on to activity areas , allowing for private space are an answer…p 24-27

End of life care : resources to strengthen support
As more people die with dementia end of life discussions are growing in importance – report on study and explanation of how co-designing new resources could help to strengthen support at the end of life – key points include:
  • End of life care planning discussions are hard to have and practical resources are needed
  • Existing resources focus on one aspect of care planning rather drawing all aspects together
  • A care plan guide (CPG)prototype was developed – bringing a wide variety of resources together
  • Improvements include workshops both print and all versions improvements in navigation, colour and contrast and type size
  • Include different stake holder groups
  • User engagement at all stages …p 28-31

Melodies and memories : music and cultural expression  
Project to bring music to “culturally disadvantaged” people with dementia  - participation in the intervention increased feeling of wellbeing,  the music often provided distraction from pain and emotional distress and relief from boredom… p 32 – 34

Book reviews

Intellectual Disabilities and Dementia - a guide for families 
Karen Watchman
Drawing on the author's first-hand experiences with families, this book provides crucial, accessible information and answers the difficult questions that often arise when a family member with an intellectual disability is diagnosed with dementia. Linking directly to policy and practice in both dementia and intellectual disability care, this book takes an outcome-focussed approach to support short, medium and long-term planning. With a particular emphasis on communication, the author seeks to ensure that families and organisations are able to converse effectively about a relative's health and care. The book looks at how to recognise when changes in the health of a relative with an intellectual disability could indicate the onset of dementia, as well as addressing common concerns surrounding living situations, medication and care plans. Each chapter is structured to identify strategies for support whilst working towards outcomes identified by families as dementia progresses.

also by the same author
Intellectual disability and dementia : research into practice
Internationally renowned experts from the UK, Ireland, the USA, Canada, Australia and the Netherlands discuss good practice and the way forward in relation to assessment, diagnosis, interventions, staff knowledge and training, care pathways, service design, measuring outcomes and the experiences of individuals, families and carers. The wealth of information offered will inform support and services throughout the whole course of dementia, from diagnosis to end of life. Particular emphasis is placed on how intellectual disability and dementia services can work collaboratively to offer more effective, joined up support.

plus a must see DVD

Supporting Derek : a practice development guide to support staff working with people who have a learning difficulty and dementia [kit]
The Joseph Rowntree Foundation,in partnership with the University of Edinburgh,has launched this new training pack aimed at those supporting people with learning difficulties who have or may develop dementia. It will assist people in providing high quality,individual care for people with a learning difficulty and dementia. 'Supporting Derek' is a practice resource pack based on extensive research by experts in the field. Including a DVD and training pack, it covers many of the key issues related to diagnosing and responding to dementia in people with learning difficulties.
The short drama included on the DVD (acted out by people with a learning difficulty) gives a powerful insight into the reality of dementia and how it might feel to the individual affected.

Grandma's box of memories : helping grandma to remember
When Grandma starts to become forgetful, Alice and her family create a box of memories to remind her of all the good times they have shared together. Alice puts some pretty packets of seeds in the box, to remind Grandma of their happy times planting seeds and watching them grow into beautiful flowers. Her brother Harry puts some toy animals in the box, to remind Grandma of their fun trips to the zoo when the chimpanzees made them laugh. Grandpa puts a photo from their wedding day in the box, when Grandma looked so beautiful and happy. What a lot of wonderful memories in Grandma's box! What would you put in? This beautifully-illustrated story helps to explain dementia to children aged 4 to 7 years in a gentle and engaging way, and prompts discussions about what children can do to help a grandparent living with dementia. It is an ideal starting point for family discussions and a book that dementia care professionals will want to recommend to the families they work with.

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