- Medical conditions
- Places frequented
- Mobile phone number
- Past interests/ hobbies
- Previous address
- Up to date photo… pg 14-15
- End of life care planning discussions are hard to have and practical resources are needed
- Existing resources focus on one aspect of care planning rather drawing all aspects together
- A care plan guide (CPG)prototype was developed – bringing a wide variety of resources together
- Improvements include workshops both print and all versions improvements in navigation, colour and contrast and type size
- Include different stake holder groups
- User engagement at all stages …p 28-31
also by the same author
Intellectual disability and dementia : research into practice
Internationally renowned experts from the UK, Ireland, the USA, Canada, Australia and the Netherlands discuss good practice and the way forward in relation to assessment, diagnosis, interventions, staff knowledge and training, care pathways, service design, measuring outcomes and the experiences of individuals, families and carers. The wealth of information offered will inform support and services throughout the whole course of dementia, from diagnosis to end of life. Particular emphasis is placed on how intellectual disability and dementia services can work collaboratively to offer more effective, joined up support.
plus a must see DVD
Supporting Derek : a practice development guide to support staff working with people who have a learning difficulty and dementia [kit]
The Joseph Rowntree Foundation,in partnership with the University of Edinburgh,has launched this new training pack aimed at those supporting people with learning difficulties who have or may develop dementia. It will assist people in providing high quality,individual care for people with a learning difficulty and dementia. 'Supporting Derek' is a practice resource pack based on extensive research by experts in the field. Including a DVD and training pack, it covers many of the key issues related to diagnosing and responding to dementia in people with learning difficulties.
The short drama included on the DVD (acted out by people with a learning difficulty) gives a powerful insight into the reality of dementia and how it might feel to the individual affected.