if you are interested in the keynote speakers from be the recent conference be the change and would like to read up on what they talked about here is a list of some of their work available in the library.
Advocating for dementia for 20 years, Christine Bryden has been instrumental in ensuring that people with dementia are included in discussions about the condition and how to manage and think about it. This collection of her hard-hitting and inspiring insider presentations demands 'nothing about us, without us!' and promotes self-advocacy and self-reflection. Provocative and insightful, the pieces included in the book address issues that demand attention, and will change the way dementia is perceived, and the lives of people with dementia and their families.
This collection of talks and presentations demonstrate the incredible progress that has been made as a result of her determination to make the world a more inclusive place for people living with dementia.' - Marc Wortmann, Executive Director, Alzheimer's Disease International
'Christine Bryden chronicles her two-decade journey living with a diagnosis of dementia, exploding myths and stereotypes along the way. Even in the face of cognitive struggles, Christine embodies personal growth, sharing her insights about the lived experience of dementia.' - G. Allen Power, MD, author of Dementia Beyond Drugs and Dementia Beyond Disease
'This should be compulsory reading for all professionals, people living with dementia and families affected by dementia. There is no us and them. There is only us.' - Professor Dawn Brooker, Director of the Association for Dementia Studies, University of Worcester, UK and author of Person-Centred Dementia Care
Dancing with dementia : my story of living positively with dementia
This book is a vivid account of the author's experiences living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. She describes how, with the support of her husband, Paul, she continues to lead an active life nevertheless, and explains how professionals and caregivers can help.
* Dawn Brooker
Person-centred dementia care : making services better with the VIPS framework
What is person-centred dementia care, and how can it be used to improve care for people from diagnosis to end of life? How can we improve services in people's own homes, in care homes, in supported housing and in hospitals? This substantially updated second edition considers recent developments in person-centred care, presenting refreshed guidelines for practice.
…describes how it has been applied in diverse service settings, and show how to put the model into practice. A new chapter dedicated to culture of care will help service managers to get to grips with this slippery concept, and includes important information on how to guard against neglectful practice. Case studies from the CHOICE programme, a research project on culture of care, demonstrate the key factors that are important for people living with advanced dementia and complex needs to live well.
The term person centred care has been widely used, misused and ill defined. It is used frequently in the aims and objectives for dementia care services and provision, although in practice what lies behind the rhetoric can be questionable. This book gives fresh definition to the important ideas behind and the implementation of person centred care for people with dementia. Dawn Brooker explains the four key elements of person centred care that comprise the VIPS model: Valuing people with dementia and those who care for them ; treating people as Individuals ; looking at the world from the Perspective of the person with dementia ; and a positive Social environment in which the person living with dementia can experience relative well being. With an emphasis on practical application, Person Centred Dementia Care provides care organisations with clear, accessible guidelines on how to put the VIPS model into operation for effective care that is 'fit for VIPs'. Part 2 of the book comprises the VIPS organisational reflection tool, which care providers can use to assess how well they think they are doing at providing person-centred care.
By Cameron J. Camp
There is not us, there is no them, only we- It is my sincere wish that these stories will lead the reader to new ideas, new ways of thinking, and most importantly, a new attitude towards persons with dementia.
Cameron Camp uses stories that represent "cases" to be "solved" which are lessons for those dealing with the challenges posed by caring for persons with dementia.
Many cases are followed by a "lesson learned" for the reader to take away and use, for example a woman whose mother kept asking her the same question over and over discovered that spaced retrieval can be effective for working with repetitive questioning.
by Adena Joltin, Cameron J. Camp, Beverly H. Noble, Vincent M. Antennucci
A Clinician's Field Guide to Good Practice: Managing Behavioural and Psychological Symptoms of Dementia (BPSD)
Dementia Collaborative Research Centre - Assessment and Better Care (DCRC-ABC) at UNSW Australia
The aim of this field guide is to provide initial points for consideration for clinicians in their role of assisting residential aged care facility staff, community care staff and family members caring for persons living with dementia, who present with behavioural and psychological symptoms of dementia (BPSD).
A guide for Family Carers dealing with Behaviours in people with dementia
Each module of this family carer Guide relates to a specific behaviour or psychological symptom and includes:
* A description of the behaviour or psychological symptom and what it looks like in dementia
* Potential causes and when it is most likely to occur
* How it affects the person with dementia and others
* What can be done to help manage it
* An example of a family's experience with BPSD
Prof Henry Brodaty discussed dementia care mapping…
Dementia care mapping : experience and insights into practice
If you need to learn more about Dementia care mapping or brush up on it- this is a great book to start with.
Dementia Care Mapping (DCM) is a system of careful observation to assess the impact of care from the perspective of the person with dementia. Over the years DCM has made a major contribution to improving quality of care for people with dementia. This book brings together important insights and experience.
Transcending dementia through the TTAP method : a new psychology of art brain, and cognition
The brain-stimulating approach known as Therapeutic Thematic Arts Programming (TTAP) has a proven record of improving the lives of people with dementia by increasing their engagement and functioning. Activities using the TTAP method can provide significant stimulation and integration of multiple brain regions; enjoyment, engagement, creativity, relaxation, and a sense of purpose for people with even advanced dementia. It has anan easy-to-follow framework that allows infinite variations on themes and personal interests; complete documentation for tracking and evaluation; opportunities for one-on-one or group programming...
Written especially for family members and friends caring for people with dementia, this practical guidebook offers a solution to commonly faced communication and relationship difficulties. Developed by social worker Naomi Feil and widely practiced around the world, the Validation approach provides caring and empathetic techniques to support meaningful communication and interaction with people with memory impairments. This hands-on resource gives family caregivers all the information and guidance they need to successfully implement proven Validation techniques and enjoy resulting benefits such as -- reduced challenging behavior -- improved communication -- lower levels of stress and anxiety in both caregivers and older adults -- more satisfying relationships.
In addition to background information about dementia and the principles behind Validation, the book includes detailed, illustrated explanations of specific verbal and nonverbal communication techniques. Realistic case studies demonstrate the approach in action in many different relationships, including husband/wife, parent/child, and grandparent/grandchild.
Caregivers who adopt Validation will learn how to break through the silence and pain of withdrawal and interact with their loved one with greater respect and compassion. Start re-establishing connections and improving relationships today with Validation Techniques for Dementia Care.