June 29, 2017

Listening to Jarem read his book about living with his chronic illness is a moving and powerful experience

* borrow or reserve any items email nsw.library@alzheimers.org.au 


or download the audio book or ebook

*the audio book is read by Jarem and is a moving and powerful experience

Dancing with elephants : mindfulness training for those living with dementia, chronic illness or an aging brain

Diagnosed with a disease that can't be reversed? 

Learn how to keep living life to the fullest. 

Have you received a terminal or chronic diagnosis? Is your mind succumbing to age or illness? Can you ever find joy, peace, or fulfillment in these challenging conditions? The answer is a resounding YES. 

Author Jarem Sawatsky saw the countless guides out there for those caring for the ill and healing the curable, but when he was diagnosed with Huntington's Disease he found there was nothing for those living with incurable illness. 

He quit his job as a professor and devoted his life to exploring the possibilities of living with chronic conditions. Now he's bringing his findings and insights to you. 

In Dancing With Elephants, you'll discover: Simple practices to bring healing to your heart and life to your new outlook humorous (and occasionally heart-wrenching) stories of Sawatsky's own journey.

Multiple ways to build confidence in yourself, even when you've been shaken to the core

 A new perspective to cut some of the pain and renew your spirit 

Practical tools to face your seemingly inescapable fears, and much, much more! Based on the popular blog of the same name, Dancing With Elephants includes insightful interviews with chronic disease experts Toni Bernhard, Lucy Kalanithi, and Patch Adams.

 Sawatsky's landmark book provides support that only a fellow traveler down this road can offer. If you like touching stories, mindful wisdom, and a touch of irreverent humor, then you'll love Sawatsky's life-changing book. Buy Dancing With Elephants today to discover a new way to live!

He interviews Jon Kabat-Zinn and Patch Adams and others
and discuses
How to be sick : a Buddhist-inspired guide for the chronically ill and their caregivers

Living the Life You’ve Got with Jon Kabat-Zinn
“From our perspective, no matter what diagnosis you come with or what’s wrong with you, there is more right with you than wrong with you—no matter what is ‘wrong with you.’”

"It was like someone just smacked me on the head and I fell awake. More right with me than wrong with me? The man speaking knows I have Huntington’s disease. In fact, he has spent his whole career working with people who have chronic and terminal diagnoses. At his own Stress Reduction Clinic, he has helped thousands of people who are facing profound suffering."

Diving into an Ocean of Gratitude for Living and Caring with Patch Adams
The real Patch Adams estimates he has been at 10,000 deathbeds.  I asked him what he learned from being present at these deathbeds – dressed as clown with toys in his pocket. “They are not deathbeds.” He said.  “They are living beds.  There are two states: living and dead. From the second you are conceived […]
“How many do want?”  Then he sat back and said “For example, we die.  Relax.  The question is not ‘how’.  The question is ‘are you living?’  Are you living?  Are you being the human being you want to be? Are your relationships healthy?  Are you grateful?  What is your sense of wonder? What’s your sense of curiosity?  What thrills you?

How to be sick : a Buddhist-inspired guide for the chronically ill and their caregivers
by Toni Bernhard
The author—who became ill while a university law professor in the prime of her career—tells the reader how she got sick and, to her and her partner’s bewilderment, stayed that way.
Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms.

She had to learn ways to make “being sick” the heart of her spiritual practice—and through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy.

Be with me today : a challenge to the Alzheimer's outsider DVD 
Richard Taylor was diagnosed with dementia, probably of the Alzheimer's type, when he was 58 years old. Now 66, Richard speaks to the public about living with the disease and sends out a challenge to the Alzheimer's outsider. 
Join Richard as he speaks from his heart, urging all of us to recognize that "THERE IS A PERSON IN THERE." It is a remarkable documentation of his presentation to aging services professionals, urging them to embrace the culture change philosophy of person-centered care. For anyone who knows, interacts with, works with, or provides services to people with dementia.

Living well with dementia

While there is an existing body of research looking into the quality of life and wellbeing of people caring for someone with dementia, there are few resources voicing the thoughts, views, and opinions of people with dementia and their carers in terms of living well with a diagnosis of dementia. The research identified issues with the predominant model of assessing quality of life. By adopting the seven domains of wellbeing of Allen Power1, the research sought to understand perspectives on wellbeing as described by people with dementia. Power’s seven domains of wellbeing are:
  1. Identity
  2. Meaning
  3. Connectedness
  4. Growth
  5. Security
  6. Autonomy
  7. Joy
also to help live well with dementia

No comments: