End of life care & letting go ..
* I just watched it – it’s pretty amazing J
- about indicators that the disease has progressed into its final stages and how to provide the most effective comfort care
- how to communicate when there are no words through visual, auditory, and physical signals of connection especially regarding pain!
- about physical changes and the importance of primitive reflexes eg. Swallowing/ feeding and changes in vision and agitation
- techniques for a consistent positive physical approach
- about different care approaches, from health promotion to compensatory care
- about giving the person with dementia permission to pass without giving up on them (Letting Go vs. Giving Up)
Advanced Care Skills in Late Stage Dementia
Whether you work in a skilled or hospice care setting, this program is a must-see for anyone who seeks to provide the most comfort, dignity and quality of life to the person living with dementia.
This program offers step-by-step instructions and hands-on skills for a variety of late stage care needs, all based on Positive ApproachTM techniques to help care partners handle even the trickiest of care tasks and reduce their risk of injury.
• How to calmly get a person out of bed while protecting your back
• How to safely transfer a person from bed to wheelchair
• How to best transfer a person from bed to wheelchair using a SARA lift
• How to bathe and dress a person in bed while protecting their dignity
• How to assist with eating and drinking using the most compassionate care techniques
The end-of-life namaste care program for people with dementia
The innovative Namaste Care program helps facilities provide gentle end-of-life care, especially for residents with advanced dementia.
Because of their profound losses, these individuals are often isolated with limited human contact during the final stages of their lives.
This new program reveals simple and practical ways for direct care staff to provide holistic, person-centered care and maintain a human connection.
Blending nursing care and meaningful activities, the program promotes peaceful and relaxing end-of-life experiences for older adults. Sensory-based practices, like placement in comfortable armchairs, soothing music, and gentle massage, emphasize comfort and pleasure. Personal information is used to individualize the experiences, making them as enjoyable as possible for participants.
Step-by-step advice for staffing, budgeting, and marketing a program is included. Detailed information for creating a Namaste Care room is provided, as well as alternative options for facilities with limited space. Plus, real-life vignettes illustrate the program in practice.
Promoting high touch when nursing older people : a palliative care approach [DVD]
University of Western Sydney, School of Nursing and Midwifery
Promoting high touch in nursing older people: A palliative care approach, is an outcome of the project Avoiding “high tech” through “high touch” in end-stage dementia: Protocol for care at the end of life. The DVD is based on material developed by Geriatric Consultant, and Developer of the Namaste Care Program, Adjunct Associate Professor Joyce Simard.
This DVD features a series of short instructional films that outline an effective protocol for palliative care. The approach offers hope and a renewed sense of spirit for people in the last stages of life.
The death talker : what we need to know to help us talk about death
Since the dawn of time, human beings have been curious about death. Most of us have little time in our busy lives to think about the things that are important to us. Often, it’s not until we have a personal experience that we give any serious thought to our own life and our mortality.
is a resource to help people working in facilities to openly communicate with people with dementia
and their families and friends about death and dying. Talking about dying is often difficult and this tool
provides guidance for those who would like to improve their skills.
In the following guide you will find:
Part 1: Why it is important to talk with families and friends about dying
Part 2: When to talk with families and friends about dying
Part 3: What to do when talking with families and friends about dying and How to talk about dying
Part 4: AFIRM provides suggestions for more spontaneous conversations about dying
Part 5: Some additional tools that might be useful prompts in your facility
Dementia information for carers, families and friends of people with severe and end stage dementia (3rd ed.)
Blue Mountains Division of General Practice, University of Western Sydney and the Sydney West Area Health Service (N.S.W.)
The involvement of relatives and friends in the care of people living with dementia is invaluable, and helps to maintain the best possible quality of life of the person with dementia.
By reading this booklet and discussing the issues raised you will be better able to understand what is happening to a person with severe or end state dementia, and you will feel more informed if you need to make decisions about future care.
Live well, die well : information for carers, families and friends of people with end stage dementia
The aim of this handbook is to enhance the quality of life for people with dementia and their carers, through their lives living with dementia, to the end of life stage using a Palliative Care Approach. The ultimate goal of palliative care is to relieve any emotional, physical, psychological, spiritual, cultural and social suffering promoting quality of life until death.
Letting go without giving up : continuing to care for the person with dementia
The idea for Letting go without giving up grew from concerns expressed by carers who felt they were no longer allowed to have a role in caring for the person they had looked after at home after the person entered long-stay care. This booklet is aimed at carers who want to continue their involvement in the lives of the people they have cared for, even if they are no longer responsible for their day-to-day physical care needs.