February 23, 2017

for the healthcare professional - aged care facilities

Forgetfulness, feelings and farnarkling

A simple and instructional book to help make learning fun
- the group activity where everyone sits around discussing the need to ‘do something’ but nothing actually happens – Urban Dictionary)

... an idea born from a discussion between two friends, artist Jenny Masters and dementia consultant Anne Kelly. ... they were also aware of examples of care deficits at individual or organisational level and the question arose “What can we do to change this?”

Each illustration, its accompanying story and explanation gives life to the voices of people living with dementia.

This provocative and inspirational book.

Barbara, the whole story and more...

Barbara's Story : her whole journey

Training guide for staff - DVD and Resources CD + training briefing cards
Barbara’s Story  is a DVD about the experience of a person with dementia in hospital. Produced by older people’s specialist at Guy’s and St Thomas’ hospital in London, it forms part of a package of awareness raising and training that is aimed at the trust’s 12,500 staff. By following the journey of an older person with dementia through hospital, it paints a meaningful picture for all staff, even, according to Mala, moving some people to tears as they watch.
Barbara faces many challenges during her stay, including staff failing to recognise when she needs help. However, the interventions of a compassionate nurse ensure that what could be a portrayal of a catalogue of wrongs – of which nurses have heard plenty lately – is in fact a positive illustration of the power of nurses to get care right.
Secretary of state for health Jeremy Hunt has highlighted the film as gold standard practice in raising awareness of dementia among staff and it is hoped that it may be used nationally to support knowledge of dementia.
By following the journey of an older person with dementia through hospital, the film paints a

An evaluation of Barbara€™s story : final report

The initial Barbara’s Story film shows the experience of an older woman (Barbara) through her eyes, as she attends a hospital appointment and is admitted for investigations. The film was shown regularly from September 2012 to April 2013 and attendance was mandatory for all Trust staff: a total of 11,054 clinical and non-clinical staff attended. Barbara’s Story was also embedded into the corporate induction programme for new Trust staff. At each session, Barbara’s Story was shown, along with some group discussion and distribution of Alzheimer’s Society resources, Trust safeguarding and dementia and delirium information, and the Trust values and behaviours framework.
Safeguarding team members facilitated a discussion after the film and highlighted key learning points the, DVDs, additional resources and facilitator guides is freely available for both Trust staff and externally and has been distributed widely: nationally and internationally.

The end-of-life namaste care program for people with dementia 
by Joyce Simard
The innovative Namaste Care program helps facilities provide gentle end-of-life care, especially for residents with advanced dementia. Because of their profound losses, these individuals are often isolated with limited human contact during the final stages of their lives. This new program reveals simple and practical ways for direct care staff to provide holistic, person-centered care and maintain a human connection. Blending nursing care and meaningful activities, the program promotes peaceful and relaxing end-of-life experiences for older adults. Sensory-based practices, like placement in comfortable armchairs, soothing music, and gentle massage, emphasize comfort and pleasure. Personal information is used to individualize the experiences, making them as enjoyable as possible for participants. Developed by a geriatric social worker and dementia specialist, the program stresses dignity and respect at this vulnerable stage of life. Using this practical manual, nursing facilities can easily implement a Namaste Care program with minimal resources and training. Step-by-step advice for staffing, budgeting, and marketing a program is included. Detailed information for creating a Namaste Care room is provided, as well as alternative options for facilities with limited space. Plus, real-life vignettes illustrate the program in practice. Recognizing the spirit within each person, this unique approach is valuable for all settings providing end-of-life care, especially skilled nursing facilities, assisted living settings, and hospices. Namaste is a Hindi greeting honoring the spirit within a person. 

Promoting high touch when nursing older people : a palliative care approach [DVD]
University of Western Sydney, School of Nursing and Midwifery 
Promoting high touch in nursing older people: A palliative care approach, is an outcome of the project Avoiding “high tech” through “high touch” in end-stage dementia: Protocol for care at the end of life. The DVD is based on material developed by Geriatric Consultant, and Developer of the Namaste Care Program, Adjunct Associate Professor Joyce Simard. 
This DVD features a series of short instructional films that outline an effective protocol for palliative care.  The approach offers hope and a renewed sense of spirit for people in the last stages of life.  

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