November 24, 2016

Spirituality and palliative care...


These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au
Coming to Christ in Dementia

In this short practical and pastoral book, Mark Wormell brings theology together with the experience of carers to suggest a new way of thinking about ministry to people with a dementia diagnosis. Carers, pastoral ministers, friends and family members of those with a dementia diagnosis will find this an encouraging and thought-provoking introduction to the questions of what it means to be a person, what it means to come to “know” Christ, and how we can help those whose memories are fading to meet the God who will not forget them.



MemoryBanc® : your workbook for organizing life

Secure your financial and online assets with MemoryBanc Your Workbook For Organizing Life.
MemoryBanc makes it easy to document accounts, usernames, and medical history so they can be easily found or shared should they ever be needed by a spouse or loved one. It also helps couples that divide and conquer stay on the same page and gives individuals a way to easily hand over important information should it ever be needed. With the help of MemoryBanc, readers no longer have to store their information in their heads, on their phones, in a file, or under a keyboard―they now have one place that captures it all. Find out how easily it is to secure your assets with MemoryBanc Your Workbook For Organizing Life.

The gift of preparationDeath happens, and you can be better prepared. It’s difficult enough dealing with a loss, but how much more stressful is it if you then have to handle all the legalities and details afterwards if you don’t have all the information, or know where to find it. So, how informed are you, really? This is one situation where ignorance is not bliss.
In the event of your death, what thought have you given to what will happen to your spouse, partner, family members and close friends, before your funeral, the day after and after that?
In the event of your partner’s death, how clear are you on what you will need to deal with?
In the event of your death, how savvy are they about the same issues?
Do you and/or your family have ready access to essential information?
Do all who need to, have all the information they need to make this emotionally difficult transition as easy as possible?


Reviews:
Everyone should have a copy of this thoughtful, immensely practical and useful book. It tackles end-of-life issues that people need to confront, in a sensitive and loving way. Author Carole Sandberg has done the community a great service in showing how best we can cope when someone close to us dies. — Ita Buttrose AO OBE

Guide to the inevitable… a must-have. From wills and legal documents to household finances and superannuation, Carole addresses each topic that must be dealt with on the death of a loved one.
This book should be on everyone’s shelf. It should be read now, before it is really needed, and again when the times comes. — The Senior, June 2014 Edition


The Palliative Care Handbook : Guidelines for Clinical Management and Symptom Control
...
is an internationally best-selling and highly accessible resource for supporting palliative care where ever it occurs. Not only widely used by doctors and nurses, it is has a strong record of assisting patients and families as they seek simple, brief and accurate information about the symptoms and treatments they encounter.

 'Recently when my mother was facing her last days, I had trouble understanding the medications that were being recommended and symptoms that were of concern. I came across a copy of The Palliative Care Handbook and within minutes found a brief and easy to understand description of the things my mum was going through - and not just physical, but emotional and spiritual too. I then looked up the drugs that had been prescribed and this helped me feel much better informed.' Andrew, NSW.
The three authors are international experts in their fields and author Professor Rod MacLeod recently was appointed Member of the New Zealand Order of Merit for services to palliative care. It is significant the eighth edition includes section in dementia as palliative care for people with dementia is an increasing issues.
This is the first edition of the book to be made available through bookstores. "Now updated to include sections on dementia, nutrition and deprescribing, as well as the latest drug information, the eight edition of The Palliative Care Handbook continues to be an essential guide in end-of-life care for use by clinicians as well as patients and families.

The end-of-life namaste care program for people with dementia
by Joyce Simard
The innovative Namaste Care program helps facilities provide gentle end-of-life care, especially for residents with advanced dementia. Because of their profound losses, these individuals are often isolated with limited human contact during the final stages of their lives. This new program reveals simple and practical ways for direct care staff to provide holistic, person-centered care and maintain a human connection. Blending nursing care and meaningful activities, the program promotes peaceful and relaxing end-of-life experiences for older adults. Sensory-based practices, like placement in comfortable armchairs, soothing music, and gentle massage, emphasize comfort and pleasure. Personal information is used to individualize the experiences, making them as enjoyable as possible for participants. Developed by a geriatric social worker and dementia specialist, the program stresses dignity and respect at this vulnerable stage of life. Using this practical manual, nursing facilities can easily implement a Namaste Care program with minimal resources and training. Step-by-step advice for staffing, budgeting, and marketing a program is included. Detailed information for creating a Namaste Care room is provided, as well as alternative options for facilities with limited space. Plus, real-life vignettes illustrate the program in practice. Recognizing the spirit within each person, this unique approach is valuable for all settings providing end-of-life care, especially skilled nursing facilities, assisted living settings, and hospices. Namaste is a Hindi greeting honoring the spirit within a person.

Promoting high touch when nursing older people : a palliative care approach [DVD]
University of Western Sydney, School of Nursing and Midwifery
Promoting high touch in nursing older people: A palliative care approach, is an outcome of the project Avoiding “high tech” through “high touch” in end-stage dementia: Protocol for care at the end of life. The DVD is based on material developed by Geriatric Consultant, and Developer of the Namaste Care Program, Adjunct Associate Professor Joyce Simard.
This DVD features a series of short instructional films that outline an effective protocol for palliative care.  The approach offers hope and a renewed sense of spirit for people in the last stages of life. 
 
 
 
 


 

The caregiver's path to compassionate decision making : making choices for those who can't
This book includes four adaptable tools that make decision making a simple, step-by-step process; guidelines to help you determine if your loved one or patient can make decisions, and guidance on who should make the decisions, and how to make better decisions. The author suggests questions to use in almost any medical or quality-of-life situation that will help you gather all of the information you need and offers techniques for improving communication between patients, families and caregivers.
These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on NSW.Library@alzheimers.org.au
 

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