October 06, 2016

for the healthcare professional

These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au

Top 5 improving the care of patients with dementia
TOP 5 is an approach to improving clinician and carer communication that was developed by the Central Coast Local Health District in New South Wales (NSW). Information shared by carers with clinical staff is recorded on the TOP 5 form on the bedside chart, actively used in care delivery and conveyed to clinicians at shift handover.
The TOP 5 approach of key strategies and the personal history for the patient with dementia embodies the heart of patient based approaches to care and, therefore, struck a chord with the Clinical Excellence Commission’s Partnering with Patients program.
This research report details the findings of a study aimed at evaluating the implementation and impact of TOP 5 on clinician satisfaction, carer experience, patient safety and cost implications for health services. The research described in this report was supported by a grant from the HCF Health and Medical Research Foundation.
We believe that the findings of this study provide further evidence of the benefits of engaging family and carers to improve patient based care.

Experiencing the truth in dementia care : Learn how to improve the quality of dementia care with a simple, easy to use method of observation
This DVD demonstrates the power of undertaking an observation within a care setting. It is a learning tool demonstrating why all staff should be given the opportunity to sit in a dementia care home lounge really seeing, hearing and feeling the lived experience of people.

This DVD focuses on ENABLING staff to be feeling based in dementia care. It comprises of a live dementia care workshop where David Sheard
Key Learning Messages

• Listening to the lived experience of people is what matters most

• Implementing together the three elements of group living, relaxed task orientation and being person centred is achievable

• Valuing quality of life moment by moment has to count in person centred dementia care

• Ensuring real qualitative observations occur regularly can transform future care.
  • Featherhead : DVD learning resource for those who care for and support people with dementia

Featherhead is a powerful film drama looking at the experience of people with dementia and the people closest to them. It is a film about relationships, memories, feelings and emotions
Featherhead is a powerful film drama looking at the experience of people with dementia and the people closest to them. It is a film about relationships, memories, feelings and emotions.
Recommended for use with anybody who works or comes into contact with people with dementia. The accompanying notes suggest how to facilitate learning and awareness from the film.

Darkness in the afternoon DVDUniversity of Stirling
*Marie, who has dementia, and her husband, who she sees as a threatening stranger. The story is seen through the eyes of Marie and her reality.

The difference between this reality and how she appears to others is vividly portrayed as the story ends.

Contents:  Introduction to using the DVD
 The complete film: darkness in the afternoon -- . Marie in street and feeding ducks -- . Encounter with the older man --. Marie runs away and then for help -- . Marie imprisoned in car and house -- . Marie in police station and at mirror -- . Person centred care

For use in training health, social services and voluntary organisation staff and family carers

You're looking at me like I live here and I don't DVD

... is the first documentary to be filmed entirely in an Alzheimer's care unit, and also the first told entirely from the perspective of a woman living with Alzheimer's disease. 
In Danville, California, Lee Gorewitz wanders on a personal odyssey through her Alzheimer’s & Dementia care unit. 

From the moment she wakes up, Lee is on a quest – for reminders of her past and of her identity.  A total immersion into the fragmented day-to-day experience of mental illness, You're Looking At Me Like I Live Here And I Don't is filled with charismatic vitality and penetrating ruminations that challenge our preconceptions of illness and aging.  Here is one extraordinary woman who will not let us forget her, even as she struggles to remember herself.
"This riveting film grabbed my attention immediately and held it through the final scene. When it ended I felt sad -- not because of the subject matter but because I wanted to spend more time with this unique and endearing woman with whom I'd fallen in love. I missed her, so I turned around and watched the  entire movie again." - Marie Marley,

I'm still here : a research based drama on living with dementia
University of Waterloo. Murray Alzheimer Research and Education Program
I'm Still Here a powerful research-based play, captures important aspects of, and deepens understanding about, the dementia journey from the perspective of persons living with dementia and their family partners in care.

Using a reflective practice approach, the accompanying teaching-learning guide takes viewers through the major themes and key issues reflected in the play.
This versatile educational tool touches people on many levels and encourages personal discovery, reflection, and sharing of perceptions and experiences of life, quality of life, and Alzheimer's disease and related dementias.... reflecting on the words of persons with dementia and the questions presented in this teaching-learning guide

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