October 25, 2016

for the healthcare professional - Australian Journal of Dementia Care : OCTOBER/NOVEMBER 2016

Full text articles and books are available to members of Alzheimer’s Australia NSW by emailing NSW.Library@alzheimers.org.au
Cardboard VR app for smartphones enables reality of dementia through EDIE’s eyes p 6
A new virtual reality app that puts users in the position of a person living with dementia has been released for Google's Cardboard VR platform.
Called EDIE (pronounced Eddy put standing for Educational Dementia Immersive Experience), the app was launched on Thursday by Alzheimer's Australia Vic, and is available free on Android and iPhone.
Carers trying out EDIE at the Alzheimer's Australia launch event in Melbourne.
Carers trying out EDIE at the Alzheimer's Australia launch event in Melbourne. Photo: Arsineh Houspian
Dr Tanya Petrovich, manager of business development at Alzheimer's Australia Vic, says the app was designed to build empathy and make people more aware of the issues faced by those living with Dementia.
"The idea is you step into the shoes of a person named Edie, who's living at home with his wife, and who is living with dementia", Petrovich says. When Edie gets up in the middle of the night and has to go to the bathroom, players see the world through his eyes.
A screenshot from the EDIE VR app.
A screenshot from the EDIE VR app. 
Petrovich says that many people think of Alzheimer's as only affecting the memory, but that it actually has a much broader range of symptoms. With EDIE, the user will get an approximation of the changes in sensory perception that may be experienced by a person living with dementia.
"Perception is a really big issue", Petrovich says. "For you and me a pattern is easy to distinguish, but for a person living with dementia a pattern can appear to be moving, or it could even appear to be an animal. It could appear to be cockroaches or ants".

It might even appear that a larger animal or person is in the room, when in reality it's just a pattern on the wall, Petrovich said. She added that while this is known to happen to some people living with dementia, every person is different and symptoms vary.
In addition to memory, dementia can affect mood, language, problem solving and the ability to plan, although a virtual reality platform presents an ideal way to explain its effect on perception.
Dr Ron Petersen from the Mayo Clinic in the US tries out the EDIE app at the launch event.
Dr Ron Petersen from the Mayo Clinic in the US tries out the EDIE app at the launch event. Photo: Arsineh Houspian
Petrovich says the free app is an example of the kind of tool Alzheimer's Australia uses when training carers. Later this year, a workshop called Enabling Edie will use the app as a training tool. Carers will experience the same scene featured in the public version but with a second scene that shows how, after his carer makes a few changes, the environment could become more supportive for Edie.
EDIE can be used with any VR viewer compatible with Cardboard.
 Help and more information can be found by calling the National Dementia Helpline on 1800 100 500.

•The story of dementia: Faith Gibson and Pam Schweitzer p8
 John Killick continues his series exploring the history of dementia through the stories of individuals - discusses the following book as well as person centred care

* available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au

Remembering yesterday, caring today : reminiscence in dementia care a guide to good practice
Pam Schweitzer and Errollyn Bruce

Reminiscence is a vital way to stimulate communication and promote confidence and self-worth in people with dementia. This practical guide is designed to give those who care for people with dementia a clear sense of how reminiscence can be used to greatly improve their quality of life.
The book explores how reminiscence can contribute to person-centred dementia care and contains detailed descriptions of activities that can be used in a group setting, for one-to-one reminiscence at home or in a variety of care settings. Based on ideas developed and tested internationally over a period of ten years, the book offers imaginative approaches to reminiscence and a wealth of resources for use in a wide range of situations. The book includes advice on organising a reminiscence project and provides a useful planning tool for group sessions.
Remembering Yesterday, Caring Today highlights the value of reminiscence for those with dementia and is an essential guide to good practice for family and professional carers.

•Allies in care: optimising life with dementia p 10

 Jacqueline Wesson, Jamie Hallen, Atosha Clancy and Glen Pang explain the positive contribution allied health professionals can make to the lives of people with dementia, their carers and families, and introduce two new guides for health professionals and consumers
Allied health professionals and you : a guide for people living with dementia and their carers
This booklet talks about how you can improve your life by talking to allied health professionals.
Allied health professionals include:
• Aboriginal and Torres Strait Islander health
workers (these workers will have different titles
in different states and territories)
• audiologists
• Chinese medicine practitioners
• chiropractors
• counsellors
• dementia advisors and key workers
(see note below)
• dental therapists, dental hygienists and oral
health therapists
• dieticians
• divisional therapists
• exercise physiologists
• music therapists
• occupational therapists
• optometrists
• osteopaths
• pharmacists
• physiotherapists
• podiatrists
• psychologists
• neuropsychologists
• social workers
• speech pathologists.
Note: Dementia advisors (sometimes known as key workers) are available in some states and territories. Most are allied health professionals (or nurses) with considerable experience or further training in working with people with dementia.

arts engagement

Viewing art brings ‘in the moment’ pleasure pp 16

A recent evaluation of the Art and Dementia program at the Art Gallery of NSW shows that viewing art brings ‘in the moment’pleasure for people with dementia, as well as opportunities for storytelling, reminiscence and conversation

Arts engagement for people with dementia evaluation : independent evaluation of the Art Access Program Art Gallery of New South Wales (book)
* available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au
Sustaining the success of person-centred dementia care pp 16 -19

Not-for-profit aged care provider Eldercare completed the implementation of its Dementia Excellence Program at 12 residential facilities across the greater Adelaide and Yorke Peninsula regions earlier this year
topics include: promoting residents choice  ; achieving the vision - clinical leadership and lifestyle programs and tailored support for residents - family assistance and supportive physical environments ; small changes delivering dramatic improvements ; meeting the sustainability challenge ; a break task approach to breakfast ;  learning important lessons.
•BPSD: alternative understanding of a well-accepted term pp 20 -22
Christine Bryden gives a brief overview of BPSD and, from the perspective of a person living with dementia, proposes an experiential understanding of the acronym to prompt improved responses by caregivers to these non-verbal communications
She regards behaviours as signs not symptoms ; language matters - because it frames the way caregivers perceive people with dementia ; see the meaning in the behaviour ; alternatives to BPSD eg basic personal signs of distress ...
DCRC Special Issue: The Big Picture in Dementia Research
  • looking at the big picture
  • The DementiaKT Hub: translating research into practice|- Belinda Goodenough and Tracy Higgins introduce The DementiaKT Hub – a new one-stop online destination for the latest research-based dementia resources involving DCRC expertise.
  • Creating a dementia-friendly society, starting with kids - by jess baker
  • the case for a national dementia registry - - why we need one - planning - world wide
  • inspired action : Australian team at forefront of younger onset dementia research - INSPIRED Study
  • cognitive rehabilitation for people with dementia : what is it and does it work?
  • Trial HALTS unnecessary use of antipsychotics
  • CST guide designed for Australian users  - cognitive stimulation therapy manuals
  • GP education supports timely diagnosis
  • Dementia prevention priorities in General practice
  • four warning signs of nursing care issues - includes strategies to improve care  
  • strategies for changing staff care practices
  • checking the evidence for appreciative inquiry even the smallest changes in care delivery can be challenging to implement...includes 4 stage knowledge translation.
  • the cycle of 4Ds approach of appreciative inquiry compared with a problem solving method
  • connections in care social network analysis - social professional networks - social relations between residents ...residents are surrounded by people yet they feel alone.- implications for practice. 
  • measuring the importance of getting out and about - measuring life space - community mobility - ethics of passive monitoring
  • taking steps to reduce wandering  - responding more effectively - the walking program trial - concerns
  • tools to build care workers evaluations skills
  • BPSD - getting good practices into everyday practice - education program - care staff experiences - feedback on workplace changes difficulties with suggesting or implementing change
  • Barriers and enablers to KT in healthcare - promoting Behaviour management : a guide to good practice
* available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au

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