July 27, 2016

for people who work in home care, day centres, dementia projects and care homes or are studying dementia

if you would like to reserve a copy and you are a library member  - please email the Library nsw.library@alzheimers.org.au

I am not sick, I don't need help! : how to help someone with mental illness accept treatment

This book fills a tremendous void…" wrote E. Fuller Torrey, M.D., about the first edition of I AM NOT SICK, I Don't Need Help! Ten years later, it still does. Dr. Amador's research on poor insight was inspired by his attempts to help his brother Henry. Like tens of millions of others diagnosed a mental disorder, Henry did not believe he was ill.

In this latest edition, 6 new chapters have been added, new research on anosognosia (lack of insight) is presented and new advice, relying on lessons learned from thousands of LEAP seminar participants, is given to help readers quickly and effectively use Dr. Amador’s method for helping someone accept treatment.

I AM NOT SICK, I Don't Need Help! is not just a reference for mental health practitioners or law enforcement professionals. It is a must-read guide for family members whose loved ones are battling mental illness. Read and learn as have hundreds of thousands of others…to LEAP-Listen, Empathize, Agree, and Partner-and help your patients and loved ones accept the treatment they need.

He's doing this to spite me - DVD kitThe purpose of this DVD and guide are to share perspectives on caring for adults afflicted with a condition that causes memory loss and changes in cognitive function. This set is intended for caregivers and professionals who work with people who have dementia.
Those who are close to someone who has dementia often find it hard to deal with the erratic and difficult behaviours that result from the disease. They may begin to interpret these behaviour patterns as intentional and to feel that the hostility and resistance they see are directed at them personally. Under the daily stresses of caregiving, and lacking a full understanding of the ways dementia affects behaviour, caregivers may respond with frustration, impatience, and even anger. Often, this only escalates the cycle of emotional discomfort, hostility, and defensiveness.
Three caregivers openly share their experiences of conflict and frustration in interactions with their loved one who has dementia. These scenes are integrated with comments and guidance from professionals in dementia care. The result is a program which teaches both family and professional caregivers how to reframe the dynamic into one which is more comfortable and productive for both caregiver and patient.

 Beyond loss: dementia, identity, personhood
book review Dementia July 2015 14: 549-551,


The notion of loss is central to popular as well as medical conceptions of dementia. Different  cognitive and linguistic losses involved in the progression of the illness are the focus of much   attention. As its title suggests, the edited book Beyond Loss: Dementia, Identity, Personhood  seeks to move beyond this well-established focus on loss. Instead, it puts forth an   understanding of dementia in terms of transformation of personhood and identity that is   shared with others and takes place within a larger social context. Gathering contributions   from a range of disciplinary and interdisciplinary perspectives, such as the caring and   health sciences, nursing, psychology, philosophy, medical anthropology, gerontology,   neuropsychology, linguistics and communication studies, this book explores how persons   with conditions of dementia (particularly Alzheimer’s disease), remain active agents in   communicating with others, navigating and making sense of the world and of their own   changing condition.   Beyond Loss seeks to challenge both a deep-rooted focus on the person as an isolated  individual and the widespread notion that loss of cognitive and linguistic abilities across the   trajectory also implies a progressive loss of selfhood and identity. It takes issue with the  traditional view that considers individual cognitive abilities and memory the essence of   a person’s identity, locating cognitive abilities and personhood exclusively in the brain.   In contrast to such a view, each chapter stresses the relational character of personhood   and draws attention to different ways in which persons are situated in relation to others   and the surrounding social, cultural and physical world. They further point to the formative  aspects of these relations and discuss personhood and identity in terms of continuous processes of transformation and change...
Experiencing the truth in dementia care : Learn how to improve the quality of dementia care with a simple, easy to use method of observation
This DVD demonstrates the power of undertaking an observation within a care setting. It is a learning tool demonstrating why all staff should be given the opportunity to sit in a dementia care home lounge really seeing, hearing and feeling the lived experience of people.

This DVD focuses on ENABLING staff to be feeling based in dementia care. It comprises of a live dementia care workshop where David Sheard
Key Learning Messages

• Listening to the lived experience of people is what matters most

• Implementing together the three elements of group living, relaxed task orientation and being person centred is achievable

• Valuing quality of life moment by moment has to count in person centred dementia care

• Ensuring real qualitative observations occur regularly can transform future care

Hearing the voice : improving communication with people with dementia: a study guide
This study guide has been written for people who work in home care, day centres, dementia projects and care homes.  Volunteer workers who support people with dementia will also find it useful.
Good communication is the key to unlocking memories and improving quality of life and care.  In turn, our attitudes are vital in assisting people with dementia to communicate.  We need to be positive and concentrate on what the person can still do.  Good communication should bring about shared moments of discovery and enjoyment.  This guide looks at all aspects of communication, and includes a series of exercises to help you think about how you can communicate better with people with dementia.

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