June 21, 2016

Resources for support groups - multiple copies available



Getting the most out of respite care: a guide for carers of people with dementia

If you are supporting someone with dementia, you are important. You are helping that person to continue living in the community with dignity and love. However, to keep doing this, you need to look after yourself and sometimes that means taking a break. Making the decision to use respite care is a hard one, but it is one that is shared by many carers like you. While there are many resources available to give you information about the care system, this resource is designed to help you in your decision-making about respite by providing you with information from the carer’s perspective. In here you will find stories about carers and their experiences of respite care, as well as advice and tips to help you make the most of your respite experience.

At the back we have included contact details for organisations and services that can help you with information about accessing respite care when you are ready to make the decision to use it.

The idea for this guide began after reviewing the results of a national survey of over 300 carers of people with dementia. In that survey, they were asked about their experiences and opinions of respite care. The responses to this survey provided information of great potential use to other carers – and so this guide was begun.

Support for carers a practical guide to services for families and friends of people with dementia

This guide has been developed as a helping hand for carers and the loved ones they care for. As a carer I found it quite difficult to find what services were available at the different stages of the dementia journey, so the guide is put together in a roadmap format. This will help carers to access the services when they are needed and to help with future planning. It has been made possible through the generous support of a carer and with the assistance of the Alzheimer’s Australia National
Consumer Advisory Committee. They join me in hoping that the information within these pages help smooth the journey for you and your loved ones...



Dementia and driving a decision aid

A diagnosis of dementia can come as quite a shock. It is accompanied by a variety of changes to one’s lifestyle and needs. This booklet may be used by any driver who has dementia. Most older adults have driven safely and remained accident-free for many years. Unfortunately, dementia can silently disrupt driving skills. At times, family members notice unsafe driving behaviour before you do. For a variety of reasons, the issue of driving safety is often not raised by doctors, nurses, family or friends. The aim of this booklet is to assist you in deciding when to stop driving after receiving a diagnosis of dementia. It is hoped that early planning for retirement from driving will avoid the need to stop suddenly in the future.
INSTRUCTIONS
• Please read this booklet from beginning to end
• You will be guided through 4 steps
• Use a pencil to answer questions Tick these green boxes if you agree
• Please write your answers on the dotted lines
• You may reuse this booklet as often as you wish

Letting go without giving up : continuing to care for the person with dementia
by Jenny Henderson and Maureen Thom

The idea for Letting go without giving up grew from concerns expressed by carers who felt they were no longer allowed to have a role in caring for the person they had looked after at home after the person entered long-stay care. This booklet is aimed at carers who want to continue their involvement in the lives of the people they have cared for, even if they are no longer responsible for their day-to-day physical care needs.

multiple copies of these resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au

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