June 14, 2016

latest Australian Journal of Dementia Care vol 5 no 3 June/July 2016

What’s ahead for dementia design?
These resources and full text articles are available to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au

DTSCs aim to create Australia’s first ‘dementia enabling’ university p 5
Dementia-specific content
To date, DEUS has engaged with UOW staff to determine how and where dementia-specific content may fit within existing courses, with interested faculties and schools developing plans for dementia-related topics and projects to be included in a variety of undergraduate courses. Subjects include: law, media, social sciences, public health, engineering, and psychology. For these, dementia content will take the form of guest lectures, project-based and internship or placement opportunities, assessment tasks and tutorial content. Funding has assisted staff to develop teaching resources and content, some of which was incorporated within subjects from May this year.
Examples of how dementia content will be embedded within courses (particularly in non-traditional dementia disciplines) include:
•A guest lecture for media and journalism students, entitled: Perceptions of dementia within the media, presented by a person with dementia (Kate Swaffer, Chair, CEO and co-founder of Dementia Alliance International) followed by a related tutorial activity, and potential for final year students to take part in an internship with the Dementia Alliance International, a non-profit group of people with dementia from around the world who seek to represent, support, and educate others living with the disease...

Younger people with dementia still slipping through the cracks


People with dementia under the age of 65 are in danger of missing out on essential services and support as they continue to be caught up in gaps between the disability and aged care sectors.  New research, released today by Alzheimer’s Australia NSW, has found that people with younger onset dementia – that is with the onset of the symptoms of dementia under the age of 65 – have, for many years, fallen through the cracks of the disability and aged care systems, with both sectors seeing the other as being better placed to respond. Despite significant policy reform in both the aged care and disability sectors, including the introduction of the National Disability Insurance Scheme (NDIS), the research has found that this is still the case, which means they are facing difficulties in accessing appropriate services. Alzheimer’s Australia NSW CEO The Hon. John Watkins AM said while there had been some great examples of good will, flexibility and a willingness to help people with younger onset dementia in the disability sector, the division of disability and aged care eligibility at 65 years of age has, nevertheless, caused immense frustration for some. “While this is a useful distinction for government and policy makers, it has, unintentionally, created a significant issue for many people with younger onset dementia in getting access to the services and support they need,” Mr Watkins said. “Currently, only people who are over the age of 65 can easily access services offered through the aged care sector, and people with younger onset dementia have felt excluded from this sector. "This means that people under the age of 65 who have a diagnosis of dementia are funnelled through to the disability sector. The introduction of the NDIS held out great hope for this group. “But limited knowledge and understanding of younger onset dementia in both the disability and aged care sectors, has caused a range of issues for people with younger onset dementia, including: 
·       a lack of responsiveness of the assessment process making it difficult to access needed support; 
·       a lack of knowledge of younger onset dementia among NDIA and Ageing Disability and Home Care (ADHC) staff; 
·       limited availability of appropriate long-term accommodation options for people with younger onset dementia; 
·       and lack of knowledge among clients about the availability of the NDIS for people with younger onset dementia.” 
Mr Watkins said that by its very nature, it is a complex system and there are no easy solutions. 
“And some of our clients have had some great experiences accessing services through the NDIS,” he said. 
“With the help of their Younger Onset Dementia Key Worker, they have been able to access appropriate support in a timely manner. 
“But we want these experiences to be the norm, not the exception. At the end of the day, no matter what age you are when you get dementia, you still have right to access appropriate services and support in a timely manner.
We  have found the Younger Onset Dementia Key Workers essential in helping people with younger onset dementia, their families and carers navigate this complex system, in helping them to know where to go to get help and helping them advocate for their needs. 
The new research, contained in the discussion paper Younger Onset Dementia: Still Slipping Through the Cracks, also recommends education of NDIS support planners in younger onset dementia, to increase their understanding of the condition and its progression to better serve people with younger onset dementia. For Robyn and Mark Jenkins, having a Younger Onset Dementia Key Worker has been crucial in helping them navigate the system following Mark’s diagnosis of younger onset dementia. “The Key Worker explains the things that are happening when there is just so much stress and information overload that the person with dementia or the person providing support feel overwhelmed and unable to fathom what to do,” Mrs Jenkins said. “Our Key Worker visited and listened, but also had practical solutions for us and was able to help navigate some services we needed. It is because of the Key Worker that we were advised of the Living With Dementia program and now have peer support, have found Dementia Cafes for ongoing social support and been advised of the range of other support services we can access. “The Key Worker is like a lighthouse in the midst of the storm - an absolute lifesaver.”

 if you would like borrow this please email the Library on nsw.library@alzheimers.org.au


This issue of AJDC explores the topic of environmental design for people living with dementia.


Also in this issue

•What people with dementia want from residential care homes p 21
: Kate Swaffer explains, based on her experience living with younger onset dementia, as a past care partner and from feedback gathered during interviews with people with dementia around Australia... market driven model and what consumers want and human rights are discussed as well as what it is to be dementia friendly

•The adventures of Gladys in (an augmented) wonderland p 27
: An innovative design project looks at the potential of wearable ‘smart’ devices and augmented reality to enable people with dementia in public spaces

•Making a day a great day: p19
Are we really focusing on the most important things in residential aged care? How can design offer opportunities for residents with dementia to enjoy life and pursue their interests? where is the variety? outdoor spaces  the Netherlands and house full of life....

Designs on the future: p. 24
A successful teaching program for architecture students aims to increase the number of empathetic and dementia-aware designers...

Will good dementia design prevail?: p. 31
 Using examples from around the world, architect David Hughes discusses what’s been achieved and the many challenges still ahead...

Translating knowledge about environmental design into practice p. 33
report on the results of an evaluation of the dementia training study centres' national environmental design education and consultancy service ...

•Supporting residents to vote: p . 8
Practical advice on how people with dementia living in residential care can be supported to vote. Read the article here: http://journalofdementiacare.com/supporting-the-right-to-vote/

Loaded meanings – p 12
 the narrative of behaviour: A perspective on the debate about language choice and its role in the perception and portrayal of dementia and behaviour

Adult safeguarding:
creating positive care cultures: explores the links between organisational culture and abuse

The story of dementia – Steven Sabat: John Killick p11
continues his series on the history of dementia through the stories of individuals examines misunderstandings of communication- by looking as positive and negative aspects of positioning and semiotics and giving time to the person with dementia to gather there thoughts rather than jumping in - his books include :


Plus the latest dementia research news, resources and events & The experience of Alzheimer's disease : life through a tangled veil both available from our library.
Designs on the future p. 24
traditional and current solutions to dementia design are unlikely to be palatable to future generations  says Brian Kidd, as he  reports on successful teaching program for architecture students aimed at increasing the pool of empathetic and dementia aware designers able to create innovative environments in the future, discusses;
  • evolution of   design of buildings  for people with dementia
  • non medical approach to design building
  • site visits
  • research into principles and contemporary developments in dementia design...
resources we have in the library include:
These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au

Design smart : the rating tool for environments that work for people with dementia
DesignSmart: The rating tool for environments that work for people with dementia has been developed by HammondCare's Dementia Centre to assist in the creation of built environments that empower and enable older people and people with dementia.
Extensive, new research has been undertaken by the authors to ensure that DesignSmart is an evidence-based rating tool that provides the user with the means to undertake a comprehensive self-assessment of an environment. DesignSmart seeks to support architects, designers, service providers, managers and decision-makers to understand the important elements of good design and incorporate these into physical and social environments.
Designed with the user in mind, DesignSmart will aid prioritisation and structure in decisions and/or recommendations to executive and financial decision-makers. It provides the framework and detail to ensure that all stakeholders in a design project have a shared understanding of common objectives and priorities.
Supports good design decisions

Designing outdoor spaces for people with dementia
edited by Annie Pollock and Mary Marshall
In many facilities for people with dementia, there is often little or no access to the outdoors and to fresh air. Research shows that there are considerable benefits that come from spending time outdoors and having a good view out from a building. So, why is it that people living with dementia, often have poor access to outside spaces and the benefits that come from being outside?

'Designing Outdoor Spaces for People with Dementia' is a book that discusses how to effectively use outside spaces for people with dementia. The book is not an academic guide to research but a book for people in practice. It is filled with case studies of real examples from all over the world. The book is edited by internationally respected Mary Marshall and Annie Pollock.

Featuring authors from Japan, USA, Australia and Norway as well as the UK, the book provides a review of evidence based research supporting the importance of access to outdoor spaces; understanding how to use outdoor spaces appropriately and case studies from around the world describing how to develop and utilise well designed spaces for people with dementia.

The book is written for people who own and commission buildings for people with dementia, Architects and Landscape Architects, Managers of facilities for people with dementia, Medical, nursing and care staff as well as professions allied to medicine such as occupational therapists and physiotherapists and relatives of people with dementia and people living with dementia.

Design for people with dementia : audit tool
Dementia Services Development Centre, University of Stirling
This folder contains a series of resources for assessing environments that are used by people with dementia. The information they contain is evidence-based and reflects international best practice. The aim of the design audit tool is to provide consistent guidance on designing environments for people with dementia. It can be used for refurbishments projects or new buildings, and is relevant across a range of settings, including day centres, wards, care homes and medical centres.

Design for dementia : improving dining and bedroom environments in care homes
The guide explores how better product and environment design can improve quality of life for care home residents with dementia. The design ideas developed are a practical response to the challenge of cognitive decline and can be retrofitted to existing care homes as well as applied to new developments.
Contents: What is dementia? --  The challenge for care -- Design goals -- Research method – Dining – Dining and care -- Interior layout -- tableware --   Bedroom – The bedroom and care – Personalization – dressing --  Conclusion – selected references -- about the authors -- Partner description
 Designing commercial interiors
Includes chapters focusing on senior living facilities and on restoration and adaptive use. Throughout the book, design application discussions, illustrations, and photographs help both professionals and students solve problems and envision and implement distinctive designs for commercial interiors.
Design innovations for aging and Alzheimer's : creating caring environments
As our understanding of aging and Alzheimer's, and the cultural changes related to these phenomena, grows so do the implications for interior design. Focus on recent innovations in care environments for the aging with a resource dedicated to this topic. This comprehensive book features:
  • Coverage of the emerging building types of adult day care and hospice and the increased use of gardens and outdoor space in environments for the aging.
  • Material on sustainable design and environmentally friendly building products.
  • Design solutions that extend beyond assisted-living facilities and nursing homes as they can be easily adapted for residential use.
  • Photographs, line drawings, and a 16-page color insert that bring the material to life.
Building type basics for senior livingEssential information you need to plan and successfully complete the design of residential care environments for seniors on time and within budget. Primary authors Bradford Perkins and J. David Hoglund and their Perkins Eastman colleagues—all experts in senior living design—share firsthand knowledge to guide you through all aspects of the design of senior living communities, including independent living and assisted living apartments, and skilled nursing facilities.
This edition features new examples of completed projects and is up to date with the latest developments in senior living design, including coverage of sustainable design, renovation and reinvention, international opportunities, operations, and project financing.

This new edition offers:
•Numerous photographs, diagrams, and plans
•A new chapter on issues, trends, and challenges for the senior living industry in the next decade
•A new chapter devoted to sustainability strategies and considerations
•Up-to-date coverage of new technologies being implemented in senior living facilities
•New space programming standards and sample programs

Creating Successful Dementia Care Settings DVD or book series
Maximizing cognitive and functional abilities DVD or book

How do the physical and caregiving environments of a long-term care facility influence the functioning of its residents with dementia? Viewers will learn to appreciate the sometimes insurmountable challenges presented by typical residential facilities when residents have to navigate daily activities with a host of age-related cognitive and sensory deficits. Deteriorating abilities to maintain independence are a hallmark of dementia, but they needn’t lead directly to helplessness. With simple changes to the environment, facility staff can maximize functional independence and minimize excess disabilities. Here is a step-by-step process for identifying barriers and finding respectful, supportive solutions. Through individual profiles of residents, viewers learn to apply this sensible problem-solving method to some of the common challenges presented by toileting, dressing, and mealtime activities in long-term care facilities. The reward for this approach is an enhanced quality of life for residents and staff alike


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