May 26, 2016

Journal of Dementia Care vol 24 no 3 May June 2016 & related resources



Full text articles  and books and DVDs are available to members of Alzheimer’s Australia NSW by emailing 
Younger onset dementia training

“It need’s to pull at your heart strings for it to sink in …” involving people with younger onset dementia and their carers in training courses can be beneficial for learners and trainers – looks at

·         Training and data collection

·         Feedback from trainers 

·         Reflections form primary trainers

·         Conclusion –involving people with younger onset dementia  and their carers in the development and delivery of dementia training was viewed more positively …. P 15


resources include:
Coping with early-onset dementia
Younger people with dementia face a number of special challenges. Although they have a diagnosis of dementia, they may still be working and have dependent children and family commitments. Also, they may be physically fit and find it not only to deal with losing their mental faculties, but also the stigma attached to the condition. Consequently, this guide is designed to help them cope with their condition.
Topics covered include:- types of dementia, including Alzheimer's disease - managing dementia on a day-to-day basis and dealing with common problems - obtaining support that is appropriate for younger people with the condition - treatments and new drugs in the pipeline - dealing with practical issues, such as work, driving and obtaining benefits - support for families, carers and children - care as the condition progresses - day centres, respite care and residential care - the relationship between dementia and genetics - complementary therapies - further resources

A community of practice approach to end of life care

Dementia UK and Hospice Care UK have teamed up to launch a Community of Practise on end of life care in dementia includes :

·         End of life care pathways – structured multi-disciplinary  that include essential steps

·         Shared learning to improve care …p 16
resources include:
These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on

Live well, die well : information for carers, families and friends of people with end stage dementia
The aim of this handbook is to enhance the quality of life for people with dementia and their carers, through their lives living with dementia, to the end of life stage using a Palliative Care Approach.  The ultimate goal of palliative care is to relieve any emotional, physical, psychological, spiritual, cultural and social suffering promoting quality of life until death.

 The end-of-life namaste care program for people with dementia
by Joyce Simard
The innovative Namaste Care program helps facilities provide gentle end-of-life care, especially for residents with advanced dementia. Because of their profound losses, these individuals are often isolated with limited human contact during the final stages of their lives. This new program reveals simple and practical ways for direct care staff to provide holistic, person-centered care and maintain a human connection. Blending nursing care and meaningful activities, the program promotes peaceful and relaxing end-of-life experiences for older adults. Sensory-based practices, like placement in comfortable armchairs, soothing music, and gentle massage, emphasize comfort and pleasure. Personal information is used to individualize the experiences, making them as enjoyable as possible for participants. Developed by a geriatric social worker and dementia specialist, the program stresses dignity and respect at this vulnerable stage of life. Using this practical manual, nursing facilities can easily implement a Namaste Care program with minimal resources and training. Step-by-step advice for staffing, budgeting, and marketing a program is included. Detailed information for creating a Namaste Care room is provided, as well as alternative options for facilities with limited space. Plus, real-life vignettes illustrate the program in practice. Recognizing the spirit within each person, this unique approach is valuable for all settings providing end-of-life care, especially skilled nursing facilities, assisted living settings, and hospices. Namaste is a Hindi greeting honoring the spirit within a person.

Promoting high touch when nursing older people : a palliative care approach [DVD]
University of Western Sydney, School of Nursing and Midwifery
Promoting high touch in nursing older people: A palliative care approach, is an outcome of the project Avoiding “high tech” through “high touch” in end-stage dementia: Protocol for care at the end of life. The DVD is based on material developed by Geriatric Consultant, and Developer of the Namaste Care Program, Adjunct Associate Professor Joyce Simard.
This DVD features a series of short instructional films that outline an effective protocol for palliative care.  The approach offers hope and a renewed sense of spirit for people in the last stages of life. 

Caring is a two way street

Strong working relationships between professionals and families are vital in dementia care …p18

How woodlands and forests enhance well-being

They enhance psychological well being of people with early stage dementia – yet relatively little is known about the meaning –includes

·         Preliminary evidence – barriers ; health and well being ; meaning and identity – using 8 pillars of community support (Kinnaird 2012)

·         Pilot

·         Initial findings such as sense of freedom; enjoyment and fun ;

·         Meaning and identity  such as memories ; confidence ; learning and sharing

·         Nature connections – sensory stimulation; connection to seasons

·         Social development – meeting new people ; making friends ; sharing  experiences team building  p. 20
resources include :
Creating culturally appropriate outside spaces and experiences for people with dementia : using nature and the outdoors in person-centred care

Demonstrating that it is essential to be sensitive to the cultural backgrounds of people with dementia in order to provide truly person-centred care, this book shows that it is possible to create culturally appropriate outdoor spaces and experiences that resonate with people with dementia on a fundamental level and are a source of comfort and wellbeing

  Transforming the quality of life for people with dementia through contact with the natural world : fresh air on my face
This book demonstrates why we should provide the opportunities for people with dementia to experience the great outdoors. It also gives a voice to people with dementia who have felt the benefit of getting closer to nature. The contributors explore many different ways in which people with dementia can experience and interact with nature through pursuits such as farming, gardening and walking, and the book includes a chapter on the therapeutic, life-enhancing effects of activities with animals. The book includes descriptions of projects and initiatives from around the world that have revolutionised the everyday experience of people with dementia, and made a real difference to their quality of life. Illustrated with photographs amply demonstrating the power of nature to lift the spirits and enrich life, the book will be an inspiring guide for relatives, carers and professionals who want to help people with dementia lead a richer life, experience nature fully and enjoy its many accompanying benefits.

Striking a chord – music’s life transforming power

Music and choirs shown to improve cognition and well-being while reducing social isolation among people with mild to moderate stages of dementia

Looks at several choirs including the forget me nots – includes feedback of the participants p. 25

Alive inside: A story of music & memory [DVD]
Alive Inside is a joyous cinematic exploration of music's capacity to reawaken our souls and uncover the deepest parts of our humanity. Filmmaker Michael Rossato-Bennett chronicles the astonishing experiences of individuals around the country who have been revitalized and awakened by the simple act of listening to the music of their youth.

Look at all of me – a CLEAR model for dementia care

Equipping care home staff to understand and assess behaviour  that challenges is a top priority – but what is the best approach?... 27

More than nutrition – food related care

The various activities centred on food can help family carers to cope and enable people to live independently for long!


·         Mutual engagement

·         Behaviour changes at mealtimes

·         Working together in the kitchen

·         Access to food services  ..p 31
Don't give me eggs that bounce : 118 cracking recipes for people with Alzheimer's
Peter Morgan-Jones
Australia’s leading aged care chef, Peter Morgan-Jones, has prepared innovative recipes which draw on his extensive international experience.
Many of the dishes have been shared in his daily work in HammondCare’s dementia cottages, much to the delight of residents and families.
He is ably supported by HammondCare experts - dietitian Emily Colombage, dementia consultant Danielle McIntosh and speech pathologist Prudence Ellis who join Peter in writing about how to make mealtimes a pleasurable, social and safe experience in the context of dementia, ageing, swallowing difficulties and texture-modified diets.
Carers are especially supported with time saving techniques, easy options and a special chapter on caring for the carer, along with lists of support organisations and resources.

Advancing the butterfly model

Providing a spring board for culture change in care homes is key says David Sheard – dementia care matters includes a 50 point  check list

Sheard also includes an inspiring leadership part to the ‘feelings matter most’ series of his publications – he sees ‘facing the truth ‘ to include removal of the us and them barriers; evidence of physical and emotional  freedom...  as well as a moving towards households  approach p. 32
Real culture change: the Butterfly Care Homes experience
In the lead-up to his Australian speaking tour in June, David Sheard outlines the butterfly Household Approach to achieving real culture change in dementia care homes, based on a model of emotional intelligence as the primary competency
p. 29-32 
Sheard's books and DVDs are  available for loan from the Library
Loving, the essence of being a butterfly in dementia care
This book focuses on changing cultures in dementia care homes offering a practical approach on how to increase connections with people living with a dementia. The book identifies what it takes to ensure the essence of living is at the heart of a care home. The metaphor of a ‘Butterfly’ is used to describe the way in which people can connect in a variety of ways throughout the day, bringing colour and being loving to ‘care’. Each essence of being a butterfly in dementia care is explained and includes a wide range of simple but effective ideas for transforming a care home.

Experiencing the truth in dementia care : Learn how to improve the quality of dementia care with a simple, easy to use method of observation
This DVD demonstrates the power of undertaking an observation within a care setting. It is a learning tool demonstrating why all staff should be given the opportunity to sit in a dementia care home lounge really seeing, hearing and feeling the lived experience of people.

This DVD focuses on ENABLING staff to be feeling based in dementia care. It comprises of a live dementia care workshop where David Sheard
Key Learning Messages

• Listening to the lived experience of people is what matters most

• Implementing together the three elements of group living, relaxed task orientation and being person centred is achievable

• Valuing quality of life moment by moment has to count in person centred dementia care

• Ensuring real qualitative observations occur regularly can transform future care
James Mckillop : dementia ambassador to Japan –

·         the right for people with dementia to live well ·         two cultures one journey ·         breaking the silence  ·         influencing public policy

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