Activities for the Family Caregiver : Frontal Temporal Dementia / Frontal Lobe Dementia / Pick's Disease : How to Engage / How to Live
this book offers information and insight to enhance quality of life through improved social interactions as well as activities of daily living, safety and general caregiver information. Learn new communications and activities strategies to improve time spent with your loved one. Gain new insight as you learn the "how to's," "why's," and techniques of activities - daily living and leisure. Discover how to turn daily activities and routines into opportunities to start some joy. Written by nationally recognized leaders in activities for those with cognitive disabilities it provides much-needed information to address the unique social needs of those with frontotemporal dementia and those who care for them.
These are stories about frontotemporal dementia (FTD), a relatively little known illness in middle age, that happens to be much more common than generally recognized. The exact cause remains a puzzle as with many other afflictions of the nervous system. but we are beginning to understand its anatomy, genetics, and biology. It is presently classified as one of the so-called "degenerative diseases" of the brain, progressively eroding either behaviors, professionals who diagnose and treat mental or neurological disease, and the caregivers who sometimes suffer as much as the patients if not more.
The stories in the book are all factual, and each has been chosen to represent one of the typical behaviours associated with FTD. The book can be read as a collection of neurological tales similar to Oliver Sacks' fascinating stories or as a case based guide for the puzzling phenomenology of frontotemporal dementia, containing much clinical and scientific information.
Nineteen lives are chronicled as told by caregivers, each selected for the drama and strangeness of behaviour or cognition. In each chapter the biology of the underlying brain disorder and the social and cultural aspects of the behaviour change is explored. There is a special chapter: "Tips for caregivers" and three final chapters dealing with the biology, the genetics and pharmacology of the disease in lay terms. References, footnotes and glossary provide additional, but optional information.
This book is the first comprehensive guide dealing with frontotemporal dementia (FTD), one of the largest groups of non-Alzheimer's dementias. Designed as both a resource and a reference guide, this useful and up-to-date handbook contains twenty-five chapters full of practical information that caregivers of FTD patients need every day. The contributors are either specialists in their fields or have exceptional hands-on experience with FTD sufferers.
Beginning with a focus on the medical facts, the first part defines and explores FTD as an illness distinct from Alzheimer's disease. Also considered are clinical and medical care issues and practices, as well as such topics as finding a medical team and rehabilitation interventions. The next section on managing care examines the daily care routine including exercise, socialization, adapting the home environment, and behavioral issues. In the following section on caregiver resources, the contributors identify professional and government assistance programs along with private resources and legal options. The concluding chapters stress the need for caregivers to take care of themselves to be able to care more effectively for a loved one with FTD.
This much-needed resource work, the first of its kind, provides a wealth of information to both healthcare professionals and caregivers of someone suffering from frontotemporal dementia.
The FTD toolkit : providing essential resources for awareness, diagnosis, and management of Frontotemporal Dementia
Eastern Cognitive Disorders Clinc
The toolkit is organised into a series of stand-alone modules. The modules are designed to provide accessible summary level information without overwhelming amounts of specialist detail.
What is FTD? -- What is frontotemporal dementia? addresses the nature of FTD, provides descriptions of different clinical presentations, outlines a number of common symptoms, and provides basic information about the pathology and genetics of this condition.