May 05, 2016

Books & DVDs on Frontotemporal dementia

Activities for the Family Caregiver : Frontal Temporal Dementia / Frontal Lobe Dementia / Pick's Disease : How to Engage / How to Live
this book offers information and insight to enhance quality of life through improved social interactions as well as activities of daily living, safety and general caregiver information. Learn new communications and activities strategies to improve time spent with your loved one. Gain new insight as you learn the "how to's," "why's," and techniques of activities - daily living and leisure. Discover how to turn daily activities and routines into opportunities to start some joy. Written by nationally recognized leaders in activities for those with cognitive disabilities it provides much-needed information to address the unique social needs of those with frontotemporal dementia and those who care for them.


The banana lady : and other stories of curious behaviour and speech

These are stories about frontotemporal dementia (FTD), a relatively little known illness in middle age, that happens to be much more common than generally recognized. The exact cause remains a puzzle as with many other afflictions of the nervous system. but we are beginning to understand its anatomy, genetics, and biology. It is presently classified as one of the so-called "degenerative diseases" of the brain, progressively eroding either behaviors, professionals who diagnose and treat mental or neurological disease, and the caregivers who sometimes suffer as much as the patients if not more.
The stories in the book are all factual, and each has been chosen to represent one of the typical behaviours associated with FTD. The book can be read as a collection of neurological tales similar to Oliver Sacks' fascinating stories or as a case based guide for the puzzling phenomenology of frontotemporal dementia, containing much clinical and scientific information.
Nineteen lives are chronicled as told by caregivers, each selected for the drama and strangeness of behaviour or cognition. In each chapter the biology of the underlying brain disorder and the social and cultural aspects of the behaviour change is explored. There is a special chapter: "Tips for caregivers" and three final chapters dealing with the biology, the genetics and pharmacology of the disease in lay terms. References, footnotes and glossary provide additional, but optional information.

What if it's not Alzheimer's : a caregiver's guide to dementia 

This book is the first comprehensive guide dealing with frontotemporal dementia (FTD), one of the largest groups of non-Alzheimer's dementias. Designed as both a resource and a reference guide, this useful and up-to-date handbook contains twenty-five chapters full of practical information that caregivers of FTD patients need every day. The contributors are either specialists in their fields or have exceptional hands-on experience with FTD sufferers.
Beginning with a focus on the medical facts, the first part defines and explores FTD as an illness distinct from Alzheimer's disease. Also considered are clinical and medical care issues and practices, as well as such topics as finding a medical team and rehabilitation interventions. The next section on managing care examines the daily care routine including exercise, socialization, adapting the home environment, and behavioral issues. In the following section on caregiver resources, the contributors identify professional and government assistance programs along with private resources and legal options. The concluding chapters stress the need for caregivers to take care of themselves to be able to care more effectively for a loved one with FTD.
This much-needed resource work, the first of its kind, provides a wealth of information to both healthcare professionals and caregivers of someone suffering from frontotemporal dementia.

The FTD toolkit : providing essential resources for awareness, diagnosis, and management of Frontotemporal Dementia
Eastern Cognitive Disorders Clinc
The toolkit is organised into a series of stand-alone modules.  The modules are designed to provide accessible summary level information without overwhelming amounts of specialist detail.
What is FTD? -- What is frontotemporal dementia? addresses the nature of FTD, provides descriptions of different clinical presentations, outlines a number of common symptoms, and provides basic information about the pathology and genetics of this condition.

Diagnosing FTD -- Diagnosing frontotemporal dementia aims to assist health professionals in identifying and diagnosing FTD by highlighting helpful investigations and referral pathways.

Different Approach with FTD --  Why do we need a different approach in supporting people with FTD and their families/carers? focuses on practical communication and behavioural management strategies.

Assessing the Impact of FTD --  Assessing the impact of frontotemporal dementia illustrates a person centred problem solving approach to assessing the impacts of FTD.

Managing FTD -- Managing the impact of FTD disabilities and symptoms gives detailed information and some suggested practical strategies for responding to the unique disabilities and symptoms of FTD

Young Onset Dementia --  FTD as a young onset dementia: special considerations describes issues unique to those who develop dementia earlier in life, including financial and legal ramifications and how to address these.

ResourcesResources section collates relevant resources under topical categories.

ReferenceReferences section lists relevant scientific publications for further reading. This reference list is unique in its clinical focus and includes a wide range of articles addressing the nature, diagnosis, and management of FTD.
 Presentations may be used to train health professionals or provide community information sessions. All modules include reference to scientific publications, websites, and other resources where indicated.  
Frontotemporal disorders : information for patients, families, and caregivers

The Basics of Frontotemporal Disorders  
Types of Frontotemporal Disorders  
Common Symptoms
Treatment and Management
Caring for a Person with a Frontotemporal Disorder 
 Frontotemporal disorders are a common cause of dementia in people under age 65. Understanding these little-known conditions can help people with the disorders, their families, and other caregivers know what to expect and how to cope with the challenges that arise. The resources below are useful guides to medical, family, long-term care, and other issues.
This booklet from the National Institute on Aging (NIA) describes the three types of frontotemporal disorders—behavioral variant frontotemporal dementia, primary progressive aphasia, and related movement disorders—as well as their causes, diagnosis, and common symptoms. Information and advice for caregivers and a list of resources are included.
Looks like Laury sounds like Laury DVD
What would you do if you started to disappear? At the age of 45, our friend Laury Sacks, an ebullient actress and the doting mother of two small children, had a reputation as the quickest wit in the room. At the age of 46, she began forgetting words. Soon she could barely speak.

Our film, Looks Like Laury Sounds Like Laury, captures one year in the long, but short journey of frontotemporal dementia, a little-understood disease that strikes people in the prime of life.

The changes were subtle at first. She asked Pam to meet for coffee one day, but it was surprisingly difficult to engage her in conversation. To the question “What’s going on, am I boring you?” she answered prophetically, “No! I’m just in my head. ” Then she offered a reassuring hug – which wasn’t reassuring at all.

Everyone misread the cues: “We’re not as close as we used to be;” “She must be mad at me;” “Maybe she’s depressed.” As Laury’s friend Nelsie said, “I don’t think it ever occurred to us she couldn’t access language, that she was trapped in her brain and couldn’t access it.”...

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