April 19, 2016

Australian Journal of Dementia Care

Australian Journal of Dementia Care Vol 5 No 2
April/May 2016

Full text articles and books are available to fee paying members of Alzheimer’s Australia NSW by emailing NSW.Library@alzheimers.org.au

Cover story

Looking for compassionate care: elder abuse and safeguarding

This issue of AJDC looks at the complex issue of elder abuse and adult safeguarding, with articles calling for a new emphasis on the ‘golden thread’ of compassion, and a greater use of person-centred thinking tools to support the changes necessary to safeguard the rights of care recipients. This issue looks at the complex issue of elder abuse and adult safeguarding, with articles: Care and compassion in adult safeguarding by Lynne Pahir and Hazel Heath (pp 18-20); and Safeguarding person-centred care by Tanya Clover (pp 20-23).

Care and compassion in adult safeguarding (pp 18-19). The Australian Government recently launched an inquiry into laws and frameworks to protect older people from abuse. However, as Lynne Phair and Hazel Heath explain, a plethora of new safeguarding policies in the UK has failed to prevent neglect and abuse. In the first of three articles, they call for a new emphasis on the ‘golden thread’ of compassion. The following principles in adult safeguarding are acknowledged as context: Principles in safeguarding; Compassion in practice, and “Measuring’ care and compassion.

Safeguarding person-centred care (pp 20-23). Tanya Clover explains that protection against elder abuse will not come about simple through legislation telling people what is right or wrong. She argues that personalisation of services, achieved through the use of person-centred thinking tools, will enable aged care services to support the changes necessary to safeguard the right of care recipients including people with dementia.

The story of dementia – Mary Marshall (pp 8-10): John Killick continues his series exploring the history of dementia through the stories of individuals. Mary Marshall (OBE) has had by far the widest scope and influence over a whole range of topics and approaches. She is truly the polymath of the psychosocial movement. Her contributions encompass theory, research and practice, and she has had a significant impact on both public and private spheres.

*to borrow one or more of these resources email  nsw.library@alzheimers.org.au or
Phone  the library on 02 9888 4218
  ASTRID: A guide to using technology within dementia care



One of Mary’s most significant edited books is Perspectives on rehabilitation and Dementia. Mary has always embraced new technologies, both promoting them and subjecting them to critical scrutiny. She perceived early on their potential for helping people to maintain their independence and minimise the effects of their disability. Her ASTRID: A guide to using technology within dementia care (Marshall ) is required reading on this subject. Food, glorious food: perspectives on food and dementia (Marshall ), gives equal weight to diet and the pleasures of eating. This title brings together a wide variety of research, practical guidance and experience on every aspect of food and mealtimes in relation to dementia care. This book is for you if you work in a care home.

Other titles available for loan are: Time for dementia: a collection of writings on the meaning of time and dementia (Gilliard & Marshall ). Time is the currency of dementia care - we should spend it on what we value most. This collection of writings, from both professional and personal perspectives, offers insight into: The meaning of time; Making time; Clocks; Time to love; Being in the moment; Night time; Past times; Pastimes; Making good use of time. Make time to read this book and get a whole new meaning on how to use this most precious currency.

 Australia’s first guidelines for dementia (pp 11-13): The first Australian guidelines for dementia have just been released to assist health and aged care professionals assess and support people with dementia in community, residential care and hospital settings. The summary of the recommendations and practice points are presented by The Guideline Adaption Committee presents this summary of the recommendations and practice points. The guidelines contain recommendations and short written summaries of the supporting evidence. In this article, key aspects of the following guidelines are summarised: Principles of care; Timely diagnosis; High-quality care; Living well; Symptom management, and Involvement of carers.

The 10 principles of Dignity in Care

1.      Zero tolerance of all forms of abuse.

2.      Support people with the same respect you would want for yourself or a member of your family.

3.      Treat each person as an individual by offering a personalised service.

4.      Enable people to maintain the maximum possible level of independence, choice and control.

5.      Listen and support people to express their needs and wants.

6.      Respect people’s privacy.

7.      Ensure people feel able to complain without fear of retribution.

8.      Engage with family members and carers as care partners.

9.      Assist people to maintain confidence and positive self-esteem.

10. Act to alleviate people’s loneliness and isolation.

Reference: Dignity in Care (2015) Dignity in Care. Available at: www.dignityincare.org.uk

Engaging with LEAP for Life (pp 14-17): Social and recreational goal-setting is a key component of the LEAP for Life program, which has seen improved engagement and decreased apathy, dysphoria and agitation among participating home care clients. This article offers practical strategies for goal-setting with home care clients.

The role of dramatherapy in improving quality of life (pp 24-26): Joanne Jaaniste , PhD, AThR (Drama) is a registered dramatherapist and an Adjunct Fellow of Western Sydney University where she also tutors and lectures on the Master of Art Therapy course. Joanne discusses how dramatherapy can be used to help people with dementia express difficult feelings and emotions and its potential to improve engagement and quality of life.

Igniting the Spark of Life (pp 27- 30): The world’s first Spark of Life Centre of Excellence, Mercy Parklands aged care home, reports on the positive outcomes it is achieving for residents, families and staff. Read the article here: http://journalofdementiacare.com/igniting-the-spark-of-life/

Participatory video and well-being in long-term care (31-34): Film-making is an effective way of engaging people with dementia and improving their well-being. This article explains how one group of people with dementia used film-making to tell their stories.


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