March 16, 2016

Scottish Dementia Working Group Travelling with Dementia ...

Driving and dementia
Staying on the move with dementia
Alzheimer's Australia NSW
National Roads and Motorists' Association (Australia).

Dementia is one of the conditions that drivers are required by law to report to the Roads and Maritime Services. While having dementia doesn’t automatically mean a person can no longer drive, it will require them to get a medical assessment and possibly undertake a practical driving test. As driving impacts on independence, the issue is highly complex and often fraught and emotional for all involved.
Staying on the Move with Dementia provides a raft of helpful measures around driving with dementia and alternatives for people when they can no longer drive. These include:
•How to identify early warning signs that dementia may be affecting someone’s driving
•Advice on how to help the person deal with the condition and how to prepare them for the time when they can no longer drive
•How to access alternative transport options when a person can no longer drive

**The library holds multiple copies of this - ideal for Support Groups.

Changed conditions ahead : dementia and driving guide for families and carers
Dementia and driving guide for families and carers
Alzheimer's Australia Vic
This guide is for carers, family members and friends of a person with dementia who is driving, or has recently stopped driving. Topics covered include: recognising driving warning signs, responding to changes in driving ability, when safety is an immediate concern, starting the conversation about driving, working with health professionals and staying active, mobile and connected.
which may be borrowed from the library  
Guides to travelling with a person with dementia

These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on
Travel guidelines for people with dementing illness
Compiled by Geri Richards Hall, PhD, ARNP, CNS, FAAN Retired Clinical Professor and Advanced Practice Nurse, Behavioral Neurology University of Iowa 
Many people enjoy travel as a form of recreation, relaxation, and an opportunity to learn. While travel may be a positive experience for most people, it poses special problems for people with dementing illnesses, for example, Alzheimer’s disease, multi-infarct dementia, Parkinson’s disease, Pick’s disease, or injury that results in disabling intellectual impairment.
People with dementia have ever-increasing trouble with changes of pace, changes in location, fatigue, groups of people, changes of time zone, and noise. In a familiar environment there are many environmental cues that help a person with dementia to remain moored in reality. A favourite chair, a well-learned TV control, and a familiar floor plan are taken for granted.
Unfamiliar places, however, lack these well-known moorings and result in increased confusion, anxiety, and fear. Even places that once were familiar, such as a winter home, can seem new or alien, triggering fear or anger. Caregivers who are planning to travel need to plan trips carefully in advance, using both travel and health care professionals to determine the best possible methods to cause the least distress to the patient.

Tips on travelling with dementia
by Elizabeth Bezant & Pamela Eaves
When a person is diagnosed with dementia, the wish to fulfill holiday and travel dreams can take on a greater urgency. Going on these journeys can be a happy and fulfilling time for carers, family, friends and the person diagnosed with the disease, but they can also present a number of hazards and challenges.
Planning is the key to an enjoyable and safe journey.
Travelling with dementia is overflowing with information, tips and suggestions to help in the planning of the perfect trip. Whether you're organising your dream holiday, going to a family reunion or just spending a quiet weekend away, the information in this book will assist in making everything go more smoothly.

Carer experiences - individual approaches to caring
These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on
Amazing Grace : enjoying Alzheimer's
by Ray Smith and Andrew Crofts
Ray Smith has never been what you could describe as a conventional man. He trained as a nurse at a time when male nurses were something of a rare phenomenon and established a travelling art gallery touring the lowlands and highlands of Scotland, selling old masters and contemporary art from the back of his van.
So when Ray's wife, Grace, first started showing signs of Alzheimer's disease one of his first acts was to take her to the Princeton Brain Bio Centre in New Jersey where Grace was prescribed high powered vitamins, minerals and Omega 3. Ray firmly believes that these nutritional supplements allowed him to continue as Grace's devoted sole carer until her death nearly 12 years later.

You may think caring for a patient with progressive dementia would be hard enough in the familiarity and comfort of your own home, but early on Ray decided that he wanted to give Grace the very best quality of life he could and for him that meant ensuring that she continued to benefit from stimulation and enjoyment, even if her pleasure could only ever be transitory. To this end Ray sold their Scottish home and used the money to take Grace travelling on a shoe string.

With determination and devotion, Ray ensured that Grace continued to enjoy new experiences for as long as possible and the many pictures of them on their travels are a testament to the fact that Grace clearly did get a sense of pleasure from these expeditions to Europe, Asia, China and South America.

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