March 09, 2016

carers stories including those caring for a loved one with inappropriate behaviours and difficulty finding words..



Green Nails and Other Acts of Rebellion : Life After Loss


Early in 2009, after more than a decade of marriage, Elaine Soloway's husband, Tommy, began to change exhibiting inappropriate behaviors at times, becoming inexplicably weepy at others. More troublesome, he began to have difficulty finding words. Ultimately, Tommy s doctors discovered that he had frontotemporal degeneration a diagnosis that explained Tommy s baffling symptoms and transformed Soloway from irritated wife to unflappable, devoted caregiver in one fell swoop. In "Green Nails and Other Acts of Rebellion" Soloway documents Tommy s deteriorating health and eventual death, shedding light on the day-to-day realities of those who assume the caregiver role in a relationship with uncompromising honesty and wry humor. Charming, frank, and ultimately uplifting, Soloway's story reveals how rich with love and appreciation a life compromised by an incurable illness can be and how even widowhood can open a door to a new, invigorated life.
Reviews: "You'll be as amazed as I was as Elaine Soloway - armed with reams of information, laser focus, and her huge, compassionate heart - dives bravely into the deep end of the pool." - Jane Lynch, Actress and author of Happy Accidents

 "What a sweet, poignant collection of memories, revisited with honesty and wit. Elaine Soloway may be a rookie widow, but she is a master reporter, with high honours in tender loving care." - Elinor Lipman, Author of The Inn at Lake Divine, Then She Found Me, and I Can't Complain: (All Too) Personal Essays.
 
The banana lady – review by one of our carers/library members

My husband has Semantic dementia, which is disease of the brain in the FTD (Frontotemporal dementia) group and “the banana lady” and other stories of curious behaviour and speech is one of the best collection of case studies I have read on this subject. Semantic dementia is quite rare, and I felt very supported by reading this book as the descriptions presented are so similar to what I am experiencing as a Carer.
There has been quite a lot mentioned about language/comprehension problems, but this book also highlights the behaviour issues which can be very challenging indeed.
It is easy to read and there is an exceelnt chapter on Tips for Caregivers..
 
 
 
 
When camels slide down doors do you tell the neighbours? : a seven-year journey through the classroom of dementia
Journey with a Boomer couple accepting the mission of caring for one parent with dementia, only to end up with two parents with dementia, mixed with a healthy blend of OCD, paranoia, and Parkinson's. The intense darkness of such a dynamic at times also makes for a releasing humour. Poignant stories tell the tales, while the focus remains on how, when the Teacher designs the syllabus, the classroom experience will reach the heart. Over 30 humbling lessons (most in hindsight) about mission, mercy, faith, fatigue, keys and cars, time, toothpaste, amazement, awe, earthsuits, and more are set into an eternal perspective. What was the most humbling lesson of all? Come along with Rick and Martha and discover the most important one for yourself.
 

 *to borrow a copy of any of these email nsw.library@alzheimers.org.au
 

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