LGBTI People and Dementia [DVD]
For LGBTI people, often referred to as the invisible Australians, ageing and dementia place them in the vulnerable position of needing to depend on health and aged care services when a lifetime of discrimination and prejudice has taught them always to be wary and to conceal their sexual orientation or gender identity or conceal being intersex.
This training DVD invites you, your service or your organisation to begin looking at what kind of welcome you will offer them.
GLBTI & dementia, a person centred approach : report to the north coast GLBTI advisory committee
The Northern Rivers region of NSW has been identified as one of the main geographical clusters of Gay, Lesbian, Bisexual, Transgender and Intersex (GLBTI) populations in NSW (ACON 2006:9). As the population ages and government and society increasingly recognise the diversity within it, growing numbers of GLBTI people will be encouraged to be open about their identity and will require dementia specific and aged care services. This will also be true for those people of any age living with HIV who may experience Human Immunodeficiency Virus Associated Neurocognitive Disorders (HANDs), ranging from mild forms of cognitive impairment to HIV associated dementia (Denholm, Yong Elliot 2009:575). There is a need for increased community awareness about dementia, HANDs, early detection and special needs within the GLBTI community as well as clear referral and service pathways (Birch 2008:10). It is, therefore, important for Alzheimer’s Australia NSW to collaborate with members of the GLBTI community to facilitate support and advocacy on their behalf to ensure access to culturally appropriate information, education and service provision. Initial steps to engage with the GLBTI community involved close liaison with the Client Services Officer from ACON Northern Rivers to develop the project scope, activities and outcomes and identify key stakeholders. As a result a GLBTI Advisory Committee was established to oversee the development of a pilot education module on GLBTI cultural awareness, ageing, cognitive decline and person centred practice targeting service providers.
Gen silent : a documentary film about LGBT aging [DVD]
Gay, Lesbian, Bisexual and Transgender older people who fought the first battles for equality now face so much fear of discrimination, bullying and abuse in the care setting that many are hiding their lives to survive. Thousands are dying earlier than their straight counterparts because they are isolated and afraid to ask for help. But a growing number of people are fighting to keep their elders from being silenced.
Gen Silent was filmed in the Boston area over a one year period. During that time, director Stu Maddux followed six LGBT seniors through their decision to either stay open about their sexuality or hide it so that they can survive in the long-term health care system.
Just a word : friends encounter Alzheimer's disease
Today is the first day I've had the desire to write. I've thought about it for months, even years, but this is the first time I feel the need. I want to write of the struggle she's going through with this horrific disease; the everyday living. I want to write how the caregiver loses herself along with the victim. Victim--first time I've used that word. But there is no other word that best describes it. Carol is a victim of time. I've lost any thought that she'll get better. I've come to the conclusion I'm living alone, even though she's with me in body. She doesn't talk to me in understandable conversation. We play charades to discover what she wants. I've stopped all walks and exercise. My agoraphobia is back or has it just been hiding? I don't want to go to the store because I'm alone, even though she's at my side. I hate life, eating fatty foods, hoping to have a heart attack and die. Then I won't have to face her dying in front of me, inch by inch.
About the Author : Born on Long Island then moving to Florida, Rose Lamatt spent fourteen years as caregiver for her dear friend with Alzheimer's. This led her to volunteer as facilitator for Alzheimer support groups. She helped open the first adult day-care center in her town and then worked as activity director for an assisted living facility. To this day she visits nursing homes keeping up her drive to make things better for the Alzheimer's victim and their caregiver.
....available for loan to members of AANSW - if you would like to reserve it please email the Library on firstname.lastname@example.org