February 09, 2016

Down's syndrome and dementia

Down's syndrome and dementia : a resource for carers and support staffA resource book for family carers, staff and other professionals to help them care more effectively for people with Down’s syndrome and dementia.

The book focuses on practical day-to-day issues, including:

- supporting the person with Down’s syndrome and dementia to maintain skills and independence in every way and for as long as possible
- understanding and responding appropriately to changes in behaviour during the early, middle and late stages of dementia
- improving the confidence of carers to look after individuals

'It has the potential to be of real practical benefit and is written in accessible language.'
Mark Haslam, Community Care

Aging and Down Syndrome: a health & well-being guidebook
Adults with Down syndrome are now reaching old age on a regular basis and are commonly living into their 50s, 60s and 70s. While there are many exciting milestones that accompany growing older, old age can also bring unexpected challenges for which adults with Down syndrome, their families and caregivers may not feel adequately prepared. In order to enjoy all the wonderful aspects of a longer life, it is important to be proactive and learn about issues that may lie ahead.
Adults with Down syndrome, along with their families and caregivers, need accurate information and education about what to anticipate as a part of growing older, so they can set the stage for successful aging. The purpose of this booklet is to help with this process. It is intended to be used by various learners: families, professionals, direct caregivers or anyone concerned with the general welfare of someone with Down syndrome.
The goals of this booklet are as follows:
*Provide guidance, education and support to families and caregivers of older adults with Down syndrome
*Prepare families and caregivers of adults with Down syndrome for medical issues commonly encountered in adulthood
*Empower families and caregivers with accurate information so that they can take positive action over the course of the lifespan of adults with Down syndrome
*Provide an advocacy framework for medical and psychosocial needs commonly encountered by individuals affected by Down syndrome as they age

Supporting Derek : a practice development guide to support staff working with people who have a learning difficulty and dementia [kit]
The Joseph Rowntree Foundation,in partnership with the University of Edinburgh,has launched this new training pack aimed at those supporting people with learning difficulties who have or may develop dementia. It will assist people in providing high quality,individual care for people with a learning difficulty and dementia. 'Supporting Derek' is a practice resource pack based on extensive research by experts in the field. Including a DVD and training pack, it covers many of the key issues related to diagnosing and responding to dementia in people with learning difficulties.
The short drama included on the DVD (acted out by people with a learning difficulty) gives a powerful insight into the reality of dementia and how it might feel to the individual affected.

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