February 09, 2016

Australian Journal of Dementia Care Vol 5 No Feb/March 2016

Cover story

Engaging and connecting through music: Kirsty Beilharz is leading a program which makes music an integral part of relationship building and engagement for people with dementia in residential care.
Also in this issue

P 6 – 7 •The story of dementia: Tom Kitwood: John Killick continues exploring the history of dementia through the stories of individuals. Looks at his extraordinary achievements , dementia care mapping, encountering the individual , and improving care – also discusses critiques of Kitwood.

In the library we have the following

Dementia care mapping : experience and insights into practice
If you need to learn more about Dementia care mapping or brush up on it- this is a great book to start with.
Dementia Care Mapping (DCM) is a system of careful observation to assess the impact of care from the perspective of the person with dementia.  Over the years DCM has made a major contribution to improving quality of care for people with dementia.  This book brings together important insights and experience.

Tom Kitwood on dementia : a reader and critical commentary
How does Kitwood’s work contribute to our understanding of ‘the dementing process’ and the essentials of quality care? How was Kitwood’s thinking about dementia influenced by the wider context of his work in theology, psychology and biochemistry? What is the relevance today of key themes and issues in Kitwood’s work? Tom Kitwood was one of the most influential writers on dementia of the last 20 years. Key concepts and approaches from his work on person-centred care and well-being in dementia have gained international recognition and shaped much current thinking about practice development. The complexities of Kitwood’s work and the development of his thinking over time have, however, received less attention. This Reader brings together twenty original publications by Kitwood which span the entire period of his writing on dementia, and the different audiences for whom he wrote.

Almost ten years after Kitwood’s death, it is now timely to review his contribution to the field of dementia studies in the light of more recent developments and from a critical and interdisciplinary perspective. The introduction to this Reader summarises and problematises some of the key characteristics of Kitwood’s writing. Each of the four themed sections begins with a commentary offering a balanced consideration of the strengths of Kitwood’s work, but also of its limitations and oversights. The Reader also includes a biography and annotated bibliography.

Dementia reconsidered : the person comes first
* What is the real nature of the dementing process?
* What might we reasonably expect when dementia care is of very high quality?
* What is required of organizations and individuals involved in dementia care?
Tom Kitwood breaks new ground in this book. Many of the older ideas about dementia are subjected to critical scrutiny and reappraisal, drawing on research evidence, logical analysis and the author's own experience. The unifying theme is the personhood of men and women who have dementia - an issue that was grossly neglected for many years both in psychiatry and care practice.
Each chapter provides a definitive statement on a major topic related to dementia, for example: the nature of 'organic mental impairment', the experience of dementia, the agenda for care practice, and the transformation of the culture of care.
While recognizing the enormous difficulties of the present day, the book clearly demonstrates the possibility of a better life for people who have dementia, and comes to a cautiously optimistic conclusion. It will be of interest to all professionals involved in dementia care or provision, students on courses involving psychogeriatrics or social work with older people, and family carers of people with dementia.
Key features:
* One of the few attempts to present the whole picture.
* Very readable - many real-life illustrations.
* Offers a major alternative to the 'medical model' of dementia.
* Tom Kitwood's work on dementia is very well known


P 8 -10 •Providing culturally appropriate care for Aboriginal people: Katrina Fyfe and Dr Andrew Stafford introduce a unique resource designed to help Australian health care professionals provide culturally appropriate care for Aboriginal people with dementia. Shows Murals , discusses women’s artwork and looks at the effect of uniforms  and the use of the resource “cultural assessment for Aboriginal and Torres Strait Islander people “

Also see Resources for Aboriginal and Torres Strait Islander health

These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au

The fading moon : a dementia resource for Aboriginal and Torres Strait Islander communities [DVD]
This film looks at the improving world of diagnosis and how cultural sensitivities are being build in to  make diagnosis more accurate.  It looks at how people can be cared for at home and what happens as the illness progresses.

You can borrow this DVD from the library or obtain a free copy from

 Dementia learning resource for Aboriginal and Torres Strait Islander communities [resource box]
Dementia is increasingly being acknowledged as an issue for Aboriginal and Torres Strait Islander populations. They have been recognised as being at risk of traumatic dementia (acquired brain injury), vascular dementia and alcohol related dementia at a younger age. However, as a consequence of a health transition - the life expectancy of Aboriginal and Torres Strait Islanders is increasing, and more people will be at risk of other forms of dementia. Dementia places a burden on communities, families, carers and services and it is imperative that Aboriginal and Torres Strait Islander people are equipped with knowledge and skills to understand dementia and minimize it’s impact. This kit aims to contribute to building that capacity and builds on th development of two earlier initiatives: “Meet dementia - the bad hawk that steals” and “Dementia training for indigenous communities”.


P 11•Small-scale living promotes choice: Natasha Chadwick explains how small-scale communal living supports and enables people with dementia, and outlines plans to develop a community for 120 residents in Queensland. Discusses how they enable independence, how each day is different, the positive outcomes and the advantages of having a familiar environment – by having one dinning rom and table for all residents , having a normal household kitchen, resident choice and ability to make more choices , and sharing a home with people who have the same core values …

Available from the library :

P 13 •Designing dementia-enabling public buildings: Jason Burton explains the principles behind two new Australian resources developed to support design teams and business owners in improving the physical environment. Includes images of useful and not so useful signage – discusses wayfinding orientation signage and Richard Fleming explains the ‘’dementia friendly communities environmental assessment tool’’ (DFC-EAT)

P 16•HDS-R: an improved tool for planning meaningful care – after  30 years the Hierarchic dementia scale has been revised! Article  tells what’s new and describes what is being assessed and how it works in practice- includes pictures from the kit and the possibilities of oriented approach and feedback from health professionals..


P 19•Therapeutic environmental design for people with dementia, and many more! Looks at wall colour, carpet, furniture and spaces, art work and reminiscence therapy…

 P 21•Plus the latest dementia research news, resources and events  - examines the music engagement program , creating new musical instruments , ways to embed music in everyday care, personhood and positive expression  - the sustainability management and sharing of experiences ..

P26 Singing in the community  - you don’t need to be a professional to run a lively  fun singing group as long as you have the right volunteers ! and venue and organisation and structure and songs!!!

P 28 Singing sessions are a joy – choir program with Orange regional conservatorium – welcomes  invitations to develop singing programs  in aged care facilities in the region…

These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au

Musicophilia: tales of music and the brain
by Oliver Sacks

Oliver Sacks's compassionate, compelling tales of people struggling to adapt to different neurological conditions have fundamentally changed the way we think of our own brains, and of the human experience. In Musicophilia, he examines the powers of music through the individual experiences of patients, musicians, and everyday people--from a man who is struck by lightning and suddenly inspired to become a pianist at the age of forty-two, to an entire group of children with Williams syndrome who are hypermusical from birth; from people with "amusia," to whom a symphony sounds like the clattering of pots and pans, to a man whose memory spans only seven seconds--for everything but music.

Our exquisite sensitivity to music can sometimes go wrong: Sacks explores how catchy tunes can subject us to hours of mental replay, and how a surprising number of people acquire nonstop musical hallucinations that assault them night and day. Yet far more frequently, music goes right: Sacks describes how music can animate people with Parkinson's disease who cannot otherwise move, give words to stroke patients who cannot otherwise speak, and calm and organize people whose memories are ravaged by Alzheimer's or amnesia.


Alive inside: A story of music & memory [DVD]

Alive Inside is a joyous cinematic exploration of music's capacity to reawaken our souls and uncover the deepest parts of our humanity. Filmmaker Michael Rossato-Bennett chronicles the astonishing experiences of individuals around the country who have been revitalized and awakened by the simple act of listening to the music of their youth.

Active sing along volume 1 : 19 all time favorites [CD]
Active sing along volume 2 : 20 all time favorites [CD]

As time goes by --  and the band played on  --  click go the shears --  good night Irene --  interactive dialogue --  the happy wanderer --  heart of my heart --  he’s got the whole world in his hands --  I belong to Glasgow – Let me call you sweetheart --  Michael row the boat ashore --  moonlight bay --  my blue heaven --  Pokare Kare Ana -- School days --  sweet Rosie  O”Grady -- Till the boys come home --  when you were sweet 16 --  the yellow rose of texas --  how great …

Beautiful dreamer  --  the bells are ringing  --  cockles and mussels --  Danny boy -- Don’t dilly dally on the way --  Galway Bay --   Home on the range --  I do like to be beside the seaside   -- Lily of Laguna --  Ma he’s making eyes at me  -- my Bonnie lies over the ocean -- my grandfather clock --  now is the hour --  oh what a beautiful morning  -- oh you beautiful doll -- pack up your troubles -- there’s a tavern in the town --   waiting at the church --  you made me love you  -- onward Christian soldiers


Music & memories of the 20th Century
10 CDs in a folder compiled and narrated by John Hyde, Radio Blue Skies.

The greatest songs, stories, social, sporting and historical events of the century.

Music therapy and neurobiological rehabilitation : performing health The authors show that music therapy is an effective intervention in neurological rehabilitation that successfully facilitates communication with those who are deemed uncommunicative and can aid rehabilitation of clients affected by dementia, traumatic brain injury, and multiple sclerosis, among other neuro-generative diseases. Music Therapy and Neurological Rehabilitation is an authoritative and comprehensive text that will be of interest to practicing music therapists, students and academics in the field.

The accumulative effects of music therapy on dementia
related speech deficits in a subacute hospital setting : PhD thesis
Loretta Quinn
Single blinded randomised control trial was conducted to determine the accumulative effects of Music Therapy on dementia-related speech deficits. The hypotheses to be tested whether a programme of MT will result in greater improvement in dementia-related spontaneous speech deficits (in particular naming), than a programme of DT and 2) whether a programme of either MT or DT will result in a reduction in dementia-related spontaneous speech deficits (in particular naming) compared to a non intervention (control) group.


P 29- -31 P  Dementia care : how we get it wrong and what’s needed to get it right – many clinicians  are relying on out of date  medical models in their diagnosis  and care of people living with dementia – Explores the 5 domains of dementia – the cognitive; function;  psychiatric ; behavioural ;  physical. Also looks at the importance of palliative care the stages of dementia and points for practice such as that carers play a critical role, diagnosis is also critical to best care, that the goal of care changes over time and other points…


P 32 Meaningful and relaxing experiences at the end of life  -

Spiritual and wider care needs at the end of life are too often over -looked . Kimberley  St John explored the impact of person – centred “Namaste” care in a a hospital acute ward with promising results – she discusses Namaste care  and shows research studies and discusses the pilot study

We have the book

The end-of-life namaste care program for people with dementia
by Joyce Simard
The innovative Namaste Care program helps facilities provide gentle end-of-life care, especially for residents with advanced dementia. Because of their profound losses, these individuals are often isolated with limited human contact during the final stages of their lives. This new program reveals simple and practical ways for direct care staff to provide holistic, person-centered care and maintain a human connection. Blending nursing care and meaningful activities, the program promotes peaceful and relaxing end-of-life experiences for older adults. Sensory-based practices, like placement in comfortable armchairs, soothing music, and gentle massage, emphasize comfort and pleasure. Personal information is used to individualize the experiences, making them as enjoyable as possible for participants. Developed by a geriatric social worker and dementia specialist, the program stresses dignity and respect at this vulnerable stage of life. Using this practical manual, nursing facilities can easily implement a Namaste Care program with minimal resources and training. Step-by-step advice for staffing, budgeting, and marketing a program is included. Detailed information for creating a Namaste Care room is provided, as well as alternative options for facilities with limited space. Plus, real-life vignettes illustrate the program in practice. Recognizing the spirit within each person, this unique approach is valuable for all settings providing end-of-life care, especially skilled nursing facilities, assisted living settings, and hospices. Namaste is a Hindi greeting honoring the spirit within a person.

Promoting high touch when nursing older people : a palliative care approach [DVD]
University of Western Sydney, School of Nursing and Midwifery
Promoting high touch in nursing older people: A palliative care approach, is an outcome of the project Avoiding “high tech” through “high touch” in end-stage dementia: Protocol for care at the end of life. The DVD is based on material developed by Geriatric Consultant, and Developer of the Namaste Care Program, Adjunct Associate Professor Joyce Simard.
This DVD features a series of short instructional films that outline an effective protocol for palliative care.  The approach offers hope and a renewed sense of spirit for people in the last stages of life. 
and also


The caregiver's path to compassionate decision making : making choices for those who can'tby Viki Kind
This book includes four adaptable tools that make decision making a simple, step-by-step process; guidelines to help you determine if your loved one or patient can make decisions, and guidance on who should make the decisions, and how to make better decisions. The author suggests questions to use in almost any medical or quality-of-life situation that will help you gather all of the information you need and offers techniques for improving communication between patients, families and caregivers.
These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on NSW.Library@alzheimers.org.au


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