November 30, 2015

books from the person with dementia's perspective - An Advocate's Guide !

all of which can be borrowed be emailing if you are a member of ALZ NSW library

Are the Keys in the Freezer?: An Advocate's Guide for Alzheimer's and Other Dementias

Are the Keys in the Freezer?--An Advocate's Guide For Alzheimer's and Other Dementias is an artful blend of practical consumer advice and a compelling story of a family's search for answers as it grapples with their mother's descent into dementia. This well-researched book is a must-read for families looking for resources and ideas about care facilities, hospice, finances and costs of care, advance directives, and other topics about managing the affairs of the elderly. A story of conflict and of light-hearted moments, Are the Keys in the Freezer? is the rich personal testimony of a family's struggle to navigate the confusing world of dementia care choices for their mother. The book is an insider's guide to unravelling medical, legal, and regulatory issues that affect the quality of care for loved ones who cannot make care decisions for themselves. The book's easy, conversational tone turns complex issues into everyday language, making it an easy read for newcomers to the world of caring for people with Alzheimer's and other dementias.

People with Dementia Speak Out
'Although I have read many books on dementia in the four years since I was diagnosed with Alzheimer's disease, seldom have I engaged with one that has informed and moved me as much as this one. Lucy and her co-authors will inspire, challenge and yet reassure you in equal measure, whether you are affected by dementia personally, or are a professional caring for us.' - Keith Oliver, Dementia Service User Envoy, Kent & Medway NHS and Social Care Partnership Trust

'People's voices, wishes, hopes and concerns ring out from every page of this book. This is a must-read for those who want to hear and understand the voices of people who are living with dementia.' - Rachael Litherland, Co-director, Innovations in Dementia CIC

Nothing About Us, Without Us!: 20 Years of Dementia Advocacy

'Christine's journey as a dementia advocate is truly remarkable. This collection of talks and presentations demonstrate the incredible progress that has been made as a result of her determination to make the world a more inclusive place for people living with dementia.' - Marc Wortmann, Executive Director, Alzheimer's Disease International

'Christine Bryden chronicles her two-decade journey living with a diagnosis of dementia, exploding myths and stereotypes along the way. Even in the face of cognitive struggles, Christine embodies personal growth, sharing her insights about the lived experience of dementia.' - G. Allen Power, MD, author of Dementia Beyond Drugs and Dementia Beyond Disease

'This should be compulsory reading for all professionals, people living with dementia and families affected by dementia. There is no us and them. There is only us.' - Professor Dawn Brooker, Director of the Association for Dementia Studies, University of Worcester, UK and author of Person-Centred Dementia Care

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