October 12, 2015

latest edition of AUSTRALIAN JOURNAL OF DEMENTIA CARE - OCTOBER NOVEMBER 2015


Full text articles are available to fee paying members of Alzheimer’s Australia NSW by emailing NSW.Library@alzheimers.org.au

 

 

New institute to seek sector input

Page 4
Australia’s new National Institute for Dementia Research will seek input from researchers, practitioners, community representatives and other key stakeholders, via an online network, to help identify research and knowledge translation priorities.

 

Music & Memory program launch
Page 5

The Arts Health Institute will launch the Music & Memory program to aged care organisations in Australia from November to train and accredit care organisations and staff to set up, manage and evaluate the program within their facility or community hub.


 
These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au
Musicophilia: tales of music and the brain
by Oliver Sacks
Oliver Sacks's compassionate, compelling tales of people struggling to adapt to different neurological conditions have fundamentally changed the way we think of our own brains, and of the human experience. In Musicophilia, he examines the powers of music through the individual experiences of patients, musicians, and everyday people--from a man who is struck by lightning and suddenly inspired to become a pianist at the age of forty-two, to an entire group of children with Williams syndrome who are hypermusical from birth; from people with "amusia," to whom a symphony sounds like the clattering of pots and pans, to a man whose memory spans only seven seconds--for everything but music.
Our exquisite sensitivity to music can sometimes go wrong: Sacks explores how catchy tunes can subject us to hours of mental replay, and how a surprising number of people acquire nonstop musical hallucinations that assault them night and day. Yet far more frequently, music goes right: Sacks describes how music can animate people with Parkinson's disease who cannot otherwise move, give words to stroke patients who cannot otherwise speak, and calm and organize people whose memories are ravaged by Alzheimer's or amnesia.
 
Alive inside: A story of music & memory [DVD]
Alive Inside is a joyous cinematic exploration of music's capacity to reawaken our souls and uncover the deepest parts of our humanity. Filmmaker Michael Rossato-Bennett chronicles the astonishing experiences of individuals around the country who have been revitalized and awakened by the simple act of listening to the music of their youth.



Residents take virtual reality world tour
Page 6

Mercy Health residents with dementia have become armchair world travellers as part of a pilot study assessing the impact of using virtual reality (VR) glasses on their engagement and well-being.

 

Kids4Dementia schools trial
Page 7

School-age children and grandchildren of people living with dementia feature in a new series of videos speaking frankly about what it is like having a relative with dementia, in a bid to help other children better deal with the condition, break down stigma and raise dementia awareness. The videos can be seen at www.dementiaresearch.org.au/kids4dementia.

 these are recommendations from the trial
 
after focus testing this is what the kids say! great books
 

 
·         Wilfred Gordon Macdonald Partridge J proactive/helping them/doing something. setting nursing home.  Not afraid - models no fear. Likes all the people.

 
·         The Forgetful Elephant: J Analogy to broken arm, and how can’t plaster inside his head.  Just needs help, make it fun.  Active again.  for the younger reader.
 

 
·         Striped Shorts and Flowered Pants: J Family dynamics. Addresses some fears. What can do etc.

 
·         Lucas & Jack:  J Old people generally.  Really like person theme. 
 
 

 
·         Getting to Know Ruben Plotnick: J Cool boy, good modelling. Fun. 
 

 
·         Ceila & Nonna: J Doing again.  Person Theme.  Quite like it, just helping nan and child, no-one else involved.
 
 
 
·         The Smell of Chocolate: Music.  Weaved behaviours into the story, e.g. wet pants, repeated himself, threw fist into cake.   Facts a bit tedious, too big unnecessary words, e.g. confabulation. 
 

 
·         Mile High Apple Pie: Describes short term memory loss versus long term memory loss.  Models hugs and fun and inconsistency.  Is a person.
 

 
·         When I visit granny Jean: Batteries running out. set in a nursing home . Person theme. Touch.



 
·         The Old Man Who Loved to Sing:  Not directly about dementia, but something lovely about it.
 

 
·         What’s happening to Grandpa?
Good content, but a bit tedious. 

·         Why did grandma put her underwear in the refrigerator?. Funhouse mirror analogy- look different but same person.
 
 
 *These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au
 
 

Halting antipsychotic use in long-term care
Page 8

Antipsychotics and other psychotropic medications are often used to Manage BPSD (Behavioural Symptoms of Dementia) in aged care facilities despite only moderate evidence for their efficacy and potential for significant adverse effects in older people. Researchers have been developing and testing a model to reduce inappropriate antipsychotic use.

-          The HALT project

-          Antipsychotic medication use

-          Clinical recommendations

-          Risks of Antipsychotic use

-          Reasons for use

-          Education is key

-          Management support vital

 

Virtual world boosts carer empathy
Page 10

An interactive virtual reality dementia experience is proving more effective than traditional classroom-style education in promoting carers’ empathy. Launched in October 2013, the Virtual Dementia Experience has been seen by over 2000 people and the response to this unique learning experience has been overwhelming positive.

 

Silver Memories tunes into reminiscence
Page 12

Silver Memories is a unique Australia-wide radio service for people with dementia – playing nostalgic music from the 1920s to the late 1950s, musicals, features about stars of the past, radio serials and more. It is the only radio station solely to cater for the needs of people in aged care by delivering reminiscence therapy 24 hours day, seven days a week.

More information is available at: www.4mbs.com.au

 

Making room for well-being
Page 14

The visual artist and performing arts designer Efterpi Soropos describes the journey that led to her creating multi-sensory spaces called Human Rooms as places for relaxation and engagement in dementia, aged and palliative care settings. Contact her at: mail@humanrooms.com

 

Lived experience at the centre of learning
Page 18

The article describes how people with dementia and family carers are contributing to learning and teaching at university level.- looks at what assists with communication; awareness of dementia ; best ways to protect your own rights; maintain your own feelings & dignity ...

 

Care model ABLE to make a difference
Page 20

A small but innovative rural health service in Victoria is making a big difference in the lives of residents with dementia, including significantly reducing the use of antipsychotic and sedative medication.

Summary of ABLE model core components:

-          A = Abilities and capabilities of the resident

-          B = Background of the resident

-          L = Leadership, education training and organisational culture change

-          E = Physical Environment

 also examines lessons learnt from experience...

Developing purposeful activities
Page 25

A new online video resource offers practical ways to involve people with dementia in meaningful activities that increase positive engagement. The video and reflection workbook are freely available online at: www.vic.fightdementia.org.au/vic/education-and-consulting/purposeful-activities-for-dementia
also see Montessori methods for dementia : focusing on the person & the prepared environment by  Gail Elliot
This book focuses on helping people to learn about innovative approaches that are aimed at engaging people with dementia in life and living. As Gail quotes in her book, “the purpose of life is a life with purpose”. This quote highlights what Gail believes to be the missing ingredient in dementia care: helping people with dementia continue to engage in a life with purpose, and this is accomplished in Montessori programming by supporting both the person and the environment.

Applying Montessori Methods to the world of dementia care contributes to positive changes for those individuals living with dementia, as well as for their providers of care. Dementia programs in Canada and abroad have begun to adopt the Montessori Methods and trained staff has already noticed significant changes in the behaviour and function of their clients. Central to these approaches is the awareness that all behaviour has meaning. When you look at the reason behind the behaviours that are common to dementia, you often find needs are not being met. Montessori Methods have proven to effectively address these needs, and the result is that individuals with dementia who are introduced to these approaches experience a better quality of life.  

Montessori-based activities for persons with dementia : volume 1 and volume 2




Improve your care by improving the functioning of your clients or residents with Alzheimer's disease. Discover how the principles of Montessori education can help people with dementia maintain or improve skills needed in their daily lives. With these 41 step-by-step activities you can enhance the skills used to perform basic tasks.
 
 
A therapy technique for improving memory: Spaced retrieval
A memory intervention called Spaced Retrieval has been found to improve retention of information in clients with memory impairment. This workbook takes speech-language pathologists and occupational, physical, music and art therapists, step-by-step through this useful technique. The book includes a review of the research, case studies, detailed instructions, helpful resources, and reproducible work sheets for use during therapy sessions. All are designed to help clients reach their therapy goals.
 

“We are still gay…”: the needs of LGBT Australians with dementia
Page 26
by Catherine Barrett, Pauline Crameris, , , and
A report on the results of ground-breaking research into the experiences and needs of lesbian, gay, bisexual and trans (LGBT) Australians living with dementia.
 
These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au

Dementia, transgender and intersex people : do service providers really know what their needs are?
Alzheimer's Australia SA August 2014
This report looks at the issues associated with accessing health or other aged care services and considers transgender and intersex people both as caregivers for those with dementia and as people with dementia.  The report also aims to identify the gaps in knowledge of the needs of these communities and provide recommendations for the health professionals.
Beyond a rainbow sticker : A report on How2 create a gay, lesbian, bisexual, transgender and intersex (GLBTI) inclusive service, 2012 - 2013
In 2010 Gay and Lesbian Health Victoria (GLHV) piloted a program to assist health and human services organisations develop practices and protocols that are inclusive of gay, lesbian, bisexual, transgender and intersex (GLBTI) clients. The program is called: How2 create a GLBTI-inclusive service. The How2 pilot was successful and was repeated in 2011, in collaboration with the Centre for Excellence in Rural Sexual Health1. A third program commenced in 2012 and its achievements are the focus of this report. This report opens by describing the context that led to the development of the How2 program. Section Two provides an outline of the program and underpinning principles. Section Three outlines a program logic model and describes some of the changes noted by the facilitators in this third iteration of the program. Section Four presents six case studies written by change facilitators who participated in the program. The final section provides a list of additional resources for GLBTI inclusive practice. Like its predecessor, the second report on the How2 program makes an important contribution to our growing understanding of what constitutes GLBTI-inclusive practice in Australia and internationally.
LGBT aging at the Golden Gate : San Francisco policy issues & recommendations
(2014) The San Francisco Lesbian, Gay, Bisexual, and Transgender (LGBT) Aging Policy
Task Force and this final Report are products of a community effort to raise the profile of issues affecting LGBT seniors in San Francisco. The Task Force was established at the urging of LGBT community members following a community-led process that started in the San Francisco’s Human Rights Commission’s LGBT Advisory Committee.
 
The whole of me: meeting the needs of older lesbians, gay men and bisexuals living in care homes and extra care housing : a resource pack for professionals
Age Concern England
“This timely resource pack is an excellent guide for managers
and staff on how they recognise and respond to the particular
needs of everyone who uses the service they provide. Whilst most people agree that everyone should be treated equally, it is not always clear what this might mean in practice – this pack provides a clear explanation. It sets out clearly the type of support that older lesbians, gay men and people who are bisexual might need, and encourages managers and staff to think about their own attitudes and approaches. I hope it will be widely used.”Dame Denise Platt DBE
Chair of the Commission for Social Care Inspection
 

Don't look back? improving health and social care service delivery for older lgb users
Equality and Human Rights Commission, Manchester UK
The existing evidence suggests that LGB people face many of the same issues as other members of society when ageing, including health and care concerns, however, their experiences and needs are mediated through a range of forms of disadvantage and discrimination related to their sexual orientation, and other aspects of their identities. Understanding how this affects the lives of older LGB people, and what it may mean to be older and LGB when accessing health and social care is at the heart of this paper.
 
It’s not just about sex! Dementia, Lesbians and Gay Men
Heather Birch, presentation to the 2009 Alzheimer's Australia Conference
Alzheimer's Australia commissioned the preparation of a discussion paper on Dementia, Lesbians and Gay Men. The aim of the project was to encourage discussion and debate about the issues affecting lesbian or gay people with dementia or caring for someone with dementia. It addresses the issues associated with the interaction between service providers and lesbian and gay people with dementia and their family carers, including the complexity of family relationships and barriers that may affect care provision and quality of life. The paper provides a historical and legislative context and uses case studies to illustrate the challenging and complex relationships that may exist between service providers and lesbian and gay people with dementia and their family carers. The presentation will include suggestions to assist services to provide sensitive and appropriate care and support.
 
Report for the Department of Health And Ageing In Relation To Services For LGBTI Ageing And Aged Care Strategy From The National LGBTI Health Alliance
These consultations aimed to gather detailed feedback on the draft Strategy from stakeholders and to highlight any emerging issues and themes for the Alliance to provide to DoHA.
Fifteen consultations were held across each state and territory in Australia, including each capital city as well as regional centres. Apart from the two preliminary consultations held before DoHA’s writing of the draft Strategy, the consultations were open to the public and included:
o Older LGBTI people
o Carers of older LGBTI people (including family, friends, and social networks)
o LGBTI community organisations (including service providers and advocacy groups)
o Aged Care Sector organisations (including peak bodies and providers)
o Government and related policy makers (including local, state and industry)
 
 

 
 Adaptive clothing to help with personal care
Page 31

The article describes how researchers developed ways of adapting people’s own clothes for ease of dressing and undressing, especially helpful where, despite person-centred interventions, individuals remain resistant to personal care.
The experiences and needs of lesbian, gay, bisexual, trans and intersex (LGBTI) Australians living with dementia have not previously been researched. The following six key themes relating to dementia were identified from two studies and are discussed in this article: the effects of dementia on sexual orientation and gender identity; discrimination; disclosure; intimate relationships; social connections; and substitute decision making.

 

Home-coaching creates stronger carers
Page 32

The article describes the development, implementation and impact of Stronger Carers – a unique in-home coaching program aimed at increasing care skills and well-being in carers of people living with dementia at home. includes case studies

 

Fears delay people seeking help
Page 37

Researchers from the University of Wollongong and Alzheimer’s Australia have investigated the relationship between individuals’ attitudes towards dementia and their intentions to seek help.

 

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