September 10, 2015

Australian journal of dementia care – volume, 4 number 4 August - Sept 2015

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Page 4: news in brief:
Homes, no place for young: inquiry - A senate enquiry report into the inadequacy of existing residential care arrangements available for young people with severe physical, mental or intellectual disabilities in Australia has found aged care homes are inappropriate for young people, including those with younger onset dementia.
Air travel and dementia survey - Airline and airport staff, people with dementia and carers are being asked for their views to help develop guidelines on air travel for people with dementia.  Dr Maria O’Reilly states that confusion can occur under high altitude conditions and that increases the risk of a person with dementia experiencing medical complications like disorientation and agitation.

Cartoons offer serious help for carers –  The purpose of this study is to investigate the value of self-guided online educational resources for carers of people with moderate to severe dementia.

Page 9: a carer’s questions

Imelda Gilmore, a carer and advocate for Alzheimer’s Australia NSW: Asks the questions relating to “how’” not “why”

Imelda is a carer and an advocate for Alzheimer’s Australia NSW, and asks questions about the length of time and cost of accessing occupational therapist driving assessments to keep the community safe ; access to meaningful respite and timely diagnosis of dementia in particular younger onset  dementia …

 Page 11: hospital care: what needs to be done
Outlines the results of recent consumer forums discussing the hospital care experiences of people with dementia from pre-admission, admission and inpatient care to discharge and after care – and suggestions for making the journey dementia friendly…

Abstracts: page 22: 2015 dementia research and knowledge translation forum
Page 37: a32 – building an integrated multi-channel strategy to create and share knowledge: dream big and sweat the small stuff – B Moore, K Miskowski

Research and knowledge translation (kt) providing leadership, innovation and partnerships – advocacy, policy, education, services and research

Page 36:  a31 – From collection to connection  - M de Mari

Page 41: Out of the closet, into a difficult place in later life
 LGBTI people, ageing and dementia in Australia – looks at how the needs of this group differ, and Lesbian, gay, bisexual, transgender and intersex (LGBT) people are estimated to make up  11% of the Australian population, however not known how many in this group have dementia.  As  AA’S 2014 report states, transgender older people who are partnered or rely on close friendships may fear those people will be excluded from the care process because they are not seen as ‘’next of kin”.

Page 44: Prevalence and Management of Pain In People With Dementia

Living with pain and dementia
Over 250,000 people live in residential aged care across Australia and estimated that about half of aged care residents have some degree of dementia. – looks at understanding pain and  the consequences of untreated pain and barriers to effective management as well as best practice.

Page 45: Evidence suggests that in older people chronic pain is associated with depression, anxiety and impairment in functional activities and activities of daily  living when pain and dementia occur together for an older person the detrimental effect upon quality of life is significant.

Page 47: national trial for hospital dementia program

 Hospitals who adopt the program commit to training and education  of all staff to ensure they understand dementia, how to communicate effectively with a person with dementia and carers.

Page 48: Hogewey: a home from home in the Netherlands

An award-winning development with an innovative approach to residential care for people with advanced dementia.

Care in this dementia-friendly community is based on two principles (Henley 2012). Firstly, as its official literature says, “it aims to relieve the anxiety, confusion and often considerable anger that people with dementia can feel, by providing an environment that is safe, familiar and human.
Secondly, it focuses on “maximising the quality of people's lives. Keeping everyone active. Focusing on everything they can still do, rather than everything they can't.” Helping new people settle

The novelty of its approach starts before admission. In Britain, potential home residents and their relatives are often asked to provide details of family history and lifestyle (Godwin 2002). In Hogewey, this goes one stage further. Family, staff and the new resident choose which lifestyle will suit them. Before Hogewey opened, an analysis of the most common Dutch home environments identified these options: traditional, city, ‘Het Gooi’ (upper-class), cultural, Christian, Indonesian and homely. ‘Het Gooi’ has lace tablecloths and chandeliers, unlike the traditional Dutch accommodation. The Indonesian house is decorated with tropical plants and statuettes of Buddha. It has ‘very tasty’ cuisine and the temperature is several degrees warmer than everywhere else. Hogewey's philosophy sees lifestyle (including culture and class) as an element in a person's life that tends to remain relatively constant….
Life and death in Hogewey Hogewey’s  152 residents with advanced dementia stay until the end of their lives. Medication is not pressed on unwilling recipients and, because they settle easily, less medication is needed. Staff aim, in Cicely Saunders' words, to enable people “to live until they die” and there is no sign of dementia as a form of ‘social death.’ The husband of one of the residents, whom we met in the restaurant, explained: “It's not the sort of slow, quiet death you get in other places.”

Playful care: what lies beyond the red nose Page 52-55

Playful Engagement is an award-winning Australian arts and health partnership that seeks to affirm and celebrate personal identity, boost confidence and support emotional well-being of people with dementia. The program has been operating in Wesley Mission Brisbane’s aged care facilities for four years as a partnership and research project between Griffith University, Wesley Mission Brisbane and Queensland-based applied theatre practitioners The Lamingtons….

What are the 8 implications for health care professionals trying to understand the practice? The practice reinforces:

1.The notion of person-centred care. The importance of knowing the person and their background beyond simple facts about them. Social biographies that are meaningful.

2.Importance of special visits with one participant and small group work, rather than an ‘entertaining the room of people’ model of practice....

Page 56: research news

Researchers have examined the perceived challenges of dementia care for Vietnamese family carers and Vietnamese care workers.

5 themes were identified:

·         Need for culturally and  linguistically appropriate dementia programs.

·         Willingness and unwillingness to seek help

·         Knowledge of health care service availability related to dementia

·         Effect of language barriers in accessing services

·         Information about the main sources used

Page 57: rural carers reveal causes of stress

 Victorian study recently aimed to determine what carers in rural Victoria of people with dementia find stressful in their caring role.

Current themes identified:

  • Carrying the load
  • Impact of behavioural and psychological symptoms of dementia
  • Carers feelings of powerlessness and inadequacy in their caring role
  • Grief and loss of the care recipients character and his or her previous relationship

The findings highlight the need for improved use of support services in rural areas and tailoring services to cover needs to address specific sources of stress...


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