June 05, 2015

The latest - Australian journal of dementia care


June/July issue of AJDC
to get the full text of the interviews of to borrow the books members of AANSW - please email the Library on nsw.library@alzheimers.org.au
 
Emeritus Rhonda Nay - La Trobe University

Talks about implementing person centered care (PCC) across the health care spectrum – her view is that PCC should include the person with dementia, the family, the staff, the management and the organisations board. She feels that if staff and families are valued by the organization using things such as families as care partners and career pathways for staff a lot can be achieved. Leadership must know and use and insist on appropriate language….p2


Progress in the face of challenges by Alzheimer’s Australia CEO Carol Bennett

“The goal of Alzheimer’s Australia is to improve the lives of people living with dementia, their carers and their communities as well as working to reduce the prevalence of dementia in the future through targeted prevention and greater investment in research.” Carol discusses the Dementia Advisory Group and organisations such as the National Aged Care Alliance, funding pressure and the importance of consumer engagement  …p4

New community garden for Port Stephens

A  new $100,000 community garden for people with dementia has just been completed, it includes a sensory garden, fish pond, 7 m  wide artwork mural, large decking for dining and board games ….p5


NEWS IN BRIEF

Study to assess dementia costs

The cost of providing good residential care for people with dementia in Australia is being evaluated. The Investigating Services Provided in Residential Care environment for Dementia in Australia (INSPIRED) study  will compare and evaluate different care models…p6

  • Australian – first Dogs 4 Dementia project

  • Lifeview plans LGBTI care home

  • Report highlights gaps for homeless

  • $5M dementia wing opens in QLD

Highlights from the Alzheimer’s Disease International (ADI) 2015 Conference in Perth p 8-9

·         People front and center at ADI – by Kate Swaffer

·         Dementia-friendly apartment on show

·         Eye imaging technology to detect dementia

·         The past, present and future of dementia policy

·         Head injuries and YOD

Essay competition

Dementia Training Study Centers (DTSCs) - $7000 in prizes as part of a wider strategy to encourage more young professionals to choose dementia care as a career…p 10

John Killick showcases the work of Dr Julie Gross McAdam’s award-winning MAC.ART program, which translates residents’ oral histories into artworks

As part of  a series of articles on the role of art  in releasing the creative  potential of people with dementia  - he show cases the work of Australia ‘s  Dr  Julie Gross Mc Adam of the McAdam  Aged Care Art Recreation Therapy  (MAC.ART) program, using, for example murals to translate their life stories…p 11-12

Angela Raguz puts the case for a new model of care for people with younger onset dementia

Provider HammondCare has told the Senate inquiry that Australia’s exisiting care and support services for people with younger onset dementia are inadequate – looks at  the need for YOD specific residences and alternative models for people with YOD …p13-14

Dr Ewa Piejko reports on a pilot project in Victoria aimed at improving the early diagnosis, treatment and care management of people with dementia living in rural communities-

includes memory services, explains the importance of the service, the experience so far, where to go from here and the take home message! p 15-1

 

Denise Edwards explains how Blue Care’s new Memory Support Services Program is tailoring care to meet the needs of people with dementia

Blue Care received the 2014 better Practice Innovation Award for introducing the PLAY UP Program run through the Arts Health Institute – looks at implementing the memory support service program using the tailor made tool kit! The pilot and evaluation

Uses the The Tool for Understanding Residents' Needs as Individual Persons (TURNIP) and other training items   p17 -19 - if you would like this tool please email the Library on nsw.library@alzheimers.org.au

Anne Cumming discusses three important initiatives under way to improve the care of people with cognitive impairment in hospitals

Because people with dementia are 6 times more likely to develop delirium…using Better way to Care resources.. p20

Kate Swaffer highlights her concerns that the terms ‘challenging behaviours’ and ‘Behavioural and Psychological Symptoms of Dementia’ (BPSD), and over-prescription of antipsychotic medications, are having a negative impact on care… p21-24

Jenny La Fontaine, Anna Buckell, Jan Oyebode and Jayne Ford consider the families who live with behavioural variant fronto-temporal dementia, the condition, and their support needs

In this second article on behavioral variant FTD families who live with the condition and their support needs are considered – looks at resolving conflict, enhancing communication, developing cohesion, information for families, coping stratergies, individual and group support and time apart…p2427

Debbie de Fiddes explains how good lighting design can be used to improve the living environment and well-being of people with dementia

Examples  as well lighting and lux and how to take the right approach eg ambient, accent  and task – natural lighting, and wellbeing   - glare and shadows – lighting as way finding includes tips!

..p28 - 31

Growing well-being

WHY don’t we go into the garden?

Garden designers Mark Rendell and Debbie Carroll explain why gardens around care homes, particularly for people with dementia, are not being used more often.

Cath Manuel reports on a successful gardening program in Queensland.

Plus there’s resources and contacts for creating gardens for people with dementia or introducing horticultural therapy programs and sensory gardens. Looks at crossing the threshold to understand all the factors at play! Includes key findings :

It’s not about spending the money

It’s about the people

The need for residents to actually be able to see the garden

It’s not about gardening skills

Meaningful tasks for residnets

….p32- 35
These and other books on gardening are available for loan to members of AANSW - if you would like to reserve them please email the Library on lis@alznsw.asn.au


 

Plus the latest dementia research news and resources

  • Antipsychotic use increases the risk of death
  • Perceptions of dementia risk
  • Carers struggle with nutritional challenges
  • Person-centered care tool assessed
  • Spirituality may slow decline
  • Experiences with ethical review boards

Books

Loving – the essence of being a butterfly in dementia care
"this is not a book on activities but on connecting to the essence of living "...
This book is the seventh in Dementia Care Matters’ Feelings Matter Most series which focuses on changing cultures in dementia care homes. Loving, the essence of being a butterfly offers a practical approach on how to increase connections with people living with a dementia. The book identifies what it takes to ensure the essence of living is at the heart of a care home. The metaphor of a ‘Butterfly’ is used to describe the way in which people can connect in a variety of ways throughout the day, bringing colour and being loving to ‘care’. Each essence of being a butterfly in dementia care is explained and includes a wide range of simple but effective ideas for transforming a care home
.
 

Developing excellent care for people living with dementia in care homes

 The award-winning PEARL (Positively Enriching and enhancing Residents' Lives) programme was developed to enable care homes to move from providing good fundamental care to excellent person-centred dementia care. Trialled extensively by one of the UK's largest care providers, it has been proven to dramatically increase the quality of life of people with dementia living in care homes, significantly reducing the use of antipsychotics and the incidence of stress-related behaviours.

This concise and accessible guide, written by the Director of Dementia Care at the care provider which trialled and developed PEARL, describes the key criteria of the programme, and provides best practice guidelines for dementia care practitioners wishing to use the approach in their own care home. With an emphasis on the practical, achievable elements of the programme, and drawing on many useful examples, the author and contributors provide guidelines on, amongst many things, getting the fundamentals of person-centred care right; enabling decision-making; reducing stress-related behaviours; psychosocial treatments; safeguarding; supporting staff; and involving relatives.

 ***These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au

 

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