June 01, 2015

lateset journal - Dementia


Dementia

The International Journal of Social Research and Practice

May 2015; 14 (3)

to get the full text of the interviews of to borrow the books members of AANSW - please email the Library on nsw.library@alzheimers.org.au
 
Special Issue: Voices from the Field: Expert Reflections on Mild Cognitive Impairment

Contents

Top of Form

Voices from the field: Expert reflections on mild cognitive impairment

Dementia May 2015 14: 285-297, doi:10.1177/1471301214562135

It consists of a nine interviews with some of the leading scientists,

researchers and thinkers who have worked on Mild Cognitive Impairment, better known by

its acronym ‘MCI’, within a constellation of issues ranging from its classification, diagnosis,

aetiology, intervention, therapeutics, risks and ethics The common meaning amongst most neurologists, gerontologists, psychogeriatricians,

care-workers and dementia researchers is that Mild Cognitive Impairment (MCI) is a

category that indicates a measurable degree of cognitive impairment that does not meet

the diagnostic criteria for dementia (e.g. Alzheimer disease or AD). Individuals with MCI

are therefore not cognitively normal, but they are not demented either; they are somewhere

in between these two ends of the spectrum of cognitive function. It is precisely this inbetween space, which this special issue of Dementia explores.

 

Interviews

Interview with Dr Ronald Petersen

Dementia May 2015 14: 298-306,



 

Background

Dr Ronald Petersen is a Professor of Neurology at the Mayo Clinic in Rochester,

Minnesota. He is also the Director of the Mayo Clinic Alzheimer’s Disease Research

Center, which is part of a network of clinics around the US that is funded by the

National Institute on Aging. Dr Petersen is an internationally renowned researcher on

ageing, mild cognitive impairment (MCI) and dementia. In 1999, he was the primary

author on a seminal and tremendously influential paper on MCI in the Archives of

Neurology. In fact, at the time of this publication, this paper has been cited over 3300

times, according to Web of Science. Dr Petersen has close to 600 publications, has

received numerous awards and distinctions, and has been one of the most vocal advocates

of establishing MCI as a formally recognised diagnosis.

 

Interview with Dr Holly Tuokko

Dementia May 2015 14: 307-317,

Background

Dr Holly Tuokko is a Professor of Psychology and the Director of the Centre on Aging at

the University of Victoria. Prior to joining the University of Victoria in 1997, Dr Tuokko

was the Supervising Psychologist at the Clinic for Alzheimer Disease and Related Disorders

and a Clinical Associate Professor in the Department of Psychiatry at the University of

British Columbia. Her current research interests include the evolution of cognitive disorders

and the mental health challenges that are experienced by older adults. She is particularly

interested in how changes in cognitive and mental health affect aspects of everyday life (e.g.

driving, financial management and end-of-life decision making), and how to best help

individuals experiencing these difficulties. Dr Tuokko played instrumental roles in the

Canadian Study of Health and Aging (CSHA),1 the Canadian Driving Research Initiative

for Vehicular Safety in the Elderly (CanDRIVE)2 and the Canadian Longitudinal Study on

Aging (CSLA).3

 


Interview with Dr Constantine Lyketsos

Dementia May 2015 14: 318-327,

Background

Dr Constantine Lyketsos is Elizabeth Plank Althouse Professor and Chair of Psychiatry, at

Johns Hopkins Bayview Medical Center, and Professor of Psychiatry and Behavioral

Sciences. He was foundational to the establishment of The Johns Hopkins

Neuropsychiatry Service, which, along with Dr Lyketsos, is known for its leading research

and expertise in dementia and traumatic brain injury. While the relationship between the

epidemiological, physical, psychological, cognitive, and neurological aspects of the ageing

mind is crucial to understanding in the field of Alzheimer disease (AD) and related

dementias, much more theoretical and practical research is needed in order to temper the

biomedical model with these other dimensions of the ageing process. As evident from his

many publications, honours, and awards, Dr Lyketsos fulfils this need with his innovative

concerns about the patients he treats, the families he supports, and the way he combines

humanistic and scientific approaches.

 


Interview with Dr Anne Davis Basting

Dementia May 2015 14: 328-334,

 

Background

Dr Anne Davis Basting is a professor in the Department of Theatre at the Peck School of the

Arts at the University of Wisconsin-Milwaukee (UWM). She is a leader in dementia care and

highly honoured and awarded for advocating an alternative dementia culture. Her unique

interdisciplinary background intersects scholarly, literary, documentary and theatrical arts

with innovative programmes in community care and creative living. Dr Basting’s recent

book, Forget Memory: Creating Better Lives for People with Dementia (2009), along with

numerous articles and essays, outlines a new and inclusive way to think about ageing and

memory loss. Her inventive story-telling project, TimeSlips: A Creative Story Telling Project

has blossomed into an international network of people who listen,

learn, record and dramatise the narratives, songs, pictures and dances of people with

memory challenges, whose creativity is acknowledged against the perceptions of decline

and loss. Similar to her previous programme called ‘The Penelope Project’ in 2011 Dr Basting’s new work is on ‘The Islands of Milwaukee’ a project in collaboration with the Sojourn Theatre in Milwaukee, that aims to

bring communal engagement to older adults living alone, and to catalyse public

conversations about investing in a more connected community. Dr Basting also founded

and continues to facilitate the Creative Trust, an alliance to foster life-long learning through

the arts. A collaboratively edited book on the Penelope Project is forthcoming from the

University of Iowa Press.

 

Interview with Dr John Morris

Dementia May 2015 14: 335-342,

Background

John C Morris, MD is one of the most recognised, awarded, published and honoured

neurologists working today on Alzheimer disease (AD). From his base at Washington

University in St. Louis, Missouri, Dr Morris has been particularly innovative in

identifying early, pre- and asymptomatic stages of AD. His work is aimed at one of our

most fundamental challenges in the field of ageing and cognitive health, which is the value of

early intervention for cognitive dysfunction. This is a challenge that goes beyond the

laboratory and involves complex relationships between research, clinical practice, public

perception, entitlements and services, and the health of future ageing populations. Hence,

Dr Morris’ reflections on mild cognitive impairment are particularly important.

 

Interview with Professor John Bond

Dementia May 2015 14: 343-350,

 

Background

Professor John Bond is a sociologist who over the last four decades has been a foremost

researcher and author in the fields of social gerontology, policy, epidemiology, public health

and the sociology of medicine. He is now Emeritus Professor of Social Gerontology and

Health Services Research at Newcastle University and his many books, articles, edited

collections and team projects have yielded a consistently innovative and critical literature

about the key issues of ageing in modern societies. In drawing together critical and

qualitative sociological perspectives and the health professions, his work has been highly

regarded for demonstrating the impacts of structural processes on the everyday lives and

experiences of older people in care environments. His ideas on Mild Cognitive Impairment

(MCI) and dementia, frequently published with the leading experts in the field, have

profoundly recast how we should approach the relationship between research, practice

and quality of life in the context of an ageist culture.

Interview with Dr Carol Brayne,

Dementia May 2015 14: 351-360,

Background

Dr Carol Brayne is a leading epidemiologist, population, and public health researcher and

author, in the Institute of Public Health at the University of Cambridge. She is an innovator

in developing new perspectives and approaches to ageing, cognitive function, and the

sciences of dementia. Her books and articles, and major research projects spanning the

last three decades raise the questions we need to be asking: what is the relationship

between normal brain ageing and dementia? Are current neuroscientific screening methods

and data analyses accurate? How should we be using population studies and trials to

inform practices of clinical utility for individuals? How is the future of

gerontological care dependent on our better understanding of the meaning of dementia?

These and other questions stemming from her work are discussed in this illuminating

interview.

Interview with Dr David Healy

Dementia May 2015 14: 361-369,

 

Background

Dr David Healy is an internationally renowned and respected psychiatrist,

psychopharmacologist, scientist and author. A professor of Psychiatry at Bangor

University in Wales, he studied medicine in Dublin and at Cambridge University. He is a

former Secretary of the British Association for Psychopharmacology and has authored more

than 150 peer-reviewed articles, 200 other pieces and 20 books. Dr Healy’s main areas of

research are clinical trials in psychopharmacology, the history of psychopharmacology, and

the impact of both trials and psychotropic drugs on our culture. He has been involved as an

expert witness in homicide and suicide trials involving psychotropic drugs, and in bringing

problems with these drugs to the attention of American and British regulators, as well raising

awareness of how pharmaceutical companies sell drugs by marketing diseases and co-opting

academic opinion-leaders, ghost-writing their articles. Dr Healy is also a founder and Chief

Executive Officer of Data Based Medicine Limited, which operates through its popular

global website www.RxISK.org, dedicated to making medicines safer through online

direct patient reporting of drug effects.

 


Interview with Dr Peter Whitehouse

Dementia May 2015 14: 370-382,

Background

Dr Peter J Whitehouse is a Professor of Neurology and current or former Professor of

Psychiatry, Neuroscience, Psychology, Nursing, Organizational Behavior, Cognitive

Science, Bioethics and History at Case Western Reserve University. Dr Whitehouse has

had a remarkable career in the field of ageing and cognition. His early work at Johns

Hopkins University on the loss of cholinergic neurons in the basal forebrain of Alzheimer

disease (AD) patients was instrumental in the development of cholinesterase inhibitors,

which were the first drugs approved for use in this condition. More recently, he has taken

a critical approach towards the understanding of ageing and AD, which is perhaps best

documented in the book he co-wrote with Daniel George, called ‘The Myth of Alzheimer’s

disease: What you aren’t being told about today’s most dreaded diagnosis’ (2008). Working

together with his wife, Catherine, he founded ‘The Intergenerational School’ in Cleveland,

Ohio, which is a vibrant community of younger and older life-long learners.

 

Book Reviews
 
 

G Allen Power, Dementia beyond disease

Dementia May 2015 14: 384, doi:10.1177/1471301215575815

 

The book, is mentored to change our perceptions of people with

dementia.   Allen Power identifies the need to reorient our attention to the way

we perceive dementia as well as design and implement interventions. He explains how

distress is a symptom, not a cause, while drawing examples from his practice and

discussing the ‘wearing off’ effects of pharmacological and non-pharmacological

interventions. There is an emphasis on tailoring interventions that are driven by the

uniqueness and needs of individuals with dementia rather than the interpreted needs.

Allen Power walks us through his experiences and encounters alongside people with

dementia to suggest it is through enhancing well-being that quality of life can be

improved. Achieving well-being is at the very heart of this book

 

The author engages in discussing well-being through seven domains, comprising: identity;

connectedness; security; autonomy; meaning; growth and joy. Each domain is discussed

within different chapters of the book. The author begins by presenting the conceptual

background prior to explaining the ‘intrinsic and extrinsic changes’ that impact these

domains in the lives of people with dementia. He examines the challenges experienced in

both segregated and community living settings and suggests methods for enhancing wellbeing

by strengthening these domains.

Throughout this book, the author makes a convincing argument for culture change by

means of proposing well-being as a sustainable intervention strategy and a guide to changing

perceptions. The strategy is proven to improve the lives of people with dementia and is

different from pharmacological and person-centred approaches. An outstanding feature of

this book is giving opportunity to listen to the voices of people with dementia, whilst

encouraging the reader to consider the proposed framework for well-being in terms of an

approach to improving lives, rather than another set of interpretations.

 

 

Jacqueline A Guendouzi and Nicole Müller, Approaches to discourse in dementia

Dementia May 2015 14: 385-386, doi:10.1177/1471301215575820

Approaches to discourse in dementia is an interesting book that illustrates how to analyze

conversational discourse.. Starting with a preface,

Approaches to discourse in dementia contains nine chapters that are followed by an

epilogue. The end matter includes six appendices with detailed transcripts of

conversations. Overall, the book is appropriate for graduate students and scholars who

have some background in the analysis of discourse or linguistics.

 

Often the authors’ conclusions about social interactions between persons with dementia

and their caregivers point to the power and agency of the person with dementia.

Approaches to discourse in dementia is a well-written, very detailed

summary of the approaches to discourse in a population of persons with dementia. One of

the best features of this book is the attention to the process of transcription and how this

influences the data being analyzed. I would recommend this for anyone interested in learning

how to work with discourse in persons with dementia.

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