May 11, 2015

New books for carers

These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au

Thoughtful dementia care : understanding the dementia experience
by Jennifer Ghent-Fuller
The author carefully explains the loss of various types of memory and other thinking processes. She describes how these losses affect the day to day life of people with dementia, their understanding of the world around them and their personal situations. The many portrayals of real life experiences clarify and deepen the explanations. Jennifer is a nurse who worked for many years as an educator and counsellor for people with dementia and their families, as well as others in caring roles. She addresses the emotional and grief issues in the contexts in which they arise for families living with dementia.

Mindfulness for carers : how to manage the demands of caregiving while finding a place for yourself
by Dr Cheryl Rezek
This book shows how simple mindfulness techniques can help caregivers to manage the stress, anxiety, depression and burnout that too often accompanies the care of people with physical, psychological or emotional needs. The enjoyable mindfulness exercises will help caregivers to regain control and maintain a positive outlook.




When caring takes courage
By Mara Botonis
When Caring Takes Courage follows the path of Alzheimer s disease from its onset, what the disease is and how to seek preliminary diagnosis, all the way to hospice care and all that happens in between. The book includes tips to help with everyday challenges such as bathing, toileting, managing medications and dealing with difficult behaviors. Readers will gain access to customizable tools such as: The Alzheimer s and Dementia Symptom Tracker, Alzheimer s Care Needs Calculator, Affording Alzheimer s Care in Today s Economy Worksheet, Alzheimer s at Home Weekly Care Planner and more. When Caring Takes Courage is intended to be USED not just simply READ, striving to serve Alzheimer s and Dementia caregivers as a constant companion on what can, at times, feel like a lonely journey.

Don't sweat the small stuff for women : simple and practical ways to do what matters most and find time for you
by Kristine Carlson
Don't Sweat the Small Stuff for Women addresses such important and timely issues as balancing family and work demands, debating effectively with spouses and partners, dealing with children and friendships, finding time for reflection and self-care, and much more. With clever and memorable titles as Don't Be a Backseat Driver (Unless It Could Save Your Life), Know Your Hot Spots, Make Peace with the Mundane, and Stop Comparing Yourself to the Media Measuring Stick, Kristine Carlson helps readers focus on what's really important, keep in touch with their feelings, live with spirit, and--when all else fails--learn to laugh. A true life-saver, this potent book is full of sage advice and comforting thoughts, from one busy woman to another.

Loving someone who has dementia : how to find hope while coping with stress and grief
by Pauline Boss
Research-based advice for people who care for someone with dementia. When Someone You Love Has Dementia is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. Dr. Boss helps caregivers find hope in "ambiguous loss" having a loved one both here and not here, physically present but psychologically absent. Outlines seven guidelines to stay resilient while caring for someone who has dementia. Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be. Offers approaches to understand and cope with the emotional strain of care-giving. Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.

The dance: our journey through Frontotemporal Degeneration
Deborah G. Thelwell
The Dance is a lively memoir of a couple's five-year journey through a little-known, non-Alzheimer's dementia -Frontotemporal Degeneration (FTD). Deborah and Alan's story is told with honesty, humor and love. The Dance illustrates of how the 'normality' of Deborah and Alan's life was stolen away by FTD. They danced together for almost thirty-eight years until Alan's death in 2012. How they handled this challenge together and with the help of their family and friends shines some light on this uncommonly diagnosed disease.


Caring for somebody with dementia
by Merideth Sindel
This book tells the story of the 3 years the author cared for her mother who had dementia. Caring for Somebody with Dementia details the causes of dementia, mechanisms for dealing with symptoms and offers advice on personal care, frailty and the practicalities of caring.  It also gives insight into the vital issue of how to maintain communication with somebody with dementia.
As well as offering a wealth of practical information to others living or working with people with dementia the book puts a human face on the illness. It shows that while dealing with delusions, personal care and other day-to-day challenges it is possible for the carer to maintain a genuine unity with the person they are looking after and that caring can be a rewarding even inspiring experience.


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