May 19, 2015

Alzheimer's Australia publications

These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on

Quality dementia care : understanding younger onset dementia
Purpose of this booklet: The Alzheimer’s Australia Quality Dementia Care Series provides complex information in an accessible form for use by people living with dementia, families, carers and health professionals. Understanding Younger Onset Dementia is a practice- and evidence-based booklet summarising the neuropathology and characteristics of the different dementias occurring in younger adults under 65 years of age. This booklet provides information of assistance to health professionals and others on the different types of dementia diagnosed in younger people and explains many of the characteristics of the associated changes that occur with younger onset dementias. The content has been partly determined by workshop presentations by the staff at the Neuropsychiatry Unit of the Royal Melbourne Hospital to people with younger onset dementia, families, carers and professionals and the work of Dr Adrienne Withall.
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Hospital Care for People with Dementia Conversations 2014
In November 2014 Alzheimer’s Australia SA held forums across metropolitan Adelaide for people living with dementia, their carers, families and service providers, to discuss hospital care for people with dementia. Participants shared their experiences of the hospital journey through pre-admission, the hospital stay, discharge and after care. They outlined what was needed to make future hospital journeys dementia friendly. One hundred and five people attended the forums in northern, southern and central locations, with several additional people making comment. In general, the conversations confirmed the findings of other reports, in particular those of the Australian Institute of Health and Welfare (2013) and Alzheimer’s Australia (2014). These South Australian voices highlight for the state government the personal costs and impact of the hospital journey, as the government responds to and implements the SA Health Services Plan for People with Dementia (and Delirium) 2014-2018 and develops the Delivering Transforming Health Proposals Paper February 2015 initiatives
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Dementia, transgender and intersex people : do service providers really know what their needs are?
Contents: Introduction  -- Terminology  --  Dementia In Australia  -- Transgender And Intersex Communities --  Brief History Of Transgender And Intersex Communities --  History Of Transgender  -- Brief History Of Intersex --  Ageing Issues For Transgender And Intersex Communities --  Health And Wellbeing  --  Long-Term Hormone Therapy  --  Preventative Health Care  --  Personal Care Issues  -- Advanced Care Planning  --  Experience Of Discrimination  -- Transgender And Intersex People And Dementia  -- Transgender And Intersex: Care-Giving And Care Receiving  -- Care-Givers  --  Care Recipients --  Formal Care  --  Gaps And Implications For Research  --  Limitations --  Recommendations  -- Conclusion  --  Where To Get Help --  Useful Community Organisations  --  Glossary Of Terms --  References
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Superannuation and dementia
The progressive deterioration in cognitive functioning associated with dementia will often mean that the person with dementia will eventually need to scale back or cease paid employment. This has considerable financial implications for the person living with dementia and their family, particularly for those with Younger Onset Dementia who often have additional financial responsibilities such as supporting children, education and mortgage repayments. People with dementia and their families often ask whether they have a right to access their superannuation early to assist with their financial situation, given that they have a terminal illness. The purpose of this document is to provide an overview of some of the options which may apply to people with dementia who want to access their superannuation and also to provide information about how to make a complaint if you are not happy with how your superannuation provider and insurance company have responded to your claim. There are several circumstances in which a person with dementia can access the money in their super fund early. These include: 1) Compassionate grounds 2) Severe financial hardship There are also circumstances in which people with dementia may be able to access funds through insurance which is provided as part of their superannuation. These circumstances include: 3) Terminal illness 4) Total and permanent disability.
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