April 24, 2015

Dementia- January 2015; 14 (1)

Full text articles  and books reviewed are available to fee paying members of Alzheimer’s Australia NSW by emailing NSW.Library@alzheimers.org.au 
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By Kate Swaffer

Dementia and Prescribed Disengagement™

…giving up a pre-diagnosis life and put all the planning in place for the demise of the

person newly diagnosed with dementia such as wills, powers of guardianship and other issues…

*       End of life issues.

By John Keady and Phyllis ‘Penny’ Braudy Harris



A narrative analysis of poetry written from the words of people given a diagnosis of dementia

*       This study is underpinned by social constructionist epistemology, which points to the socially constructed character of our worlds, in that we co-create and are co-created by (including experience and identity) our social realities. Through narrative analysis of some poems from the words of people given a diagnosis of dementia, this study engaged in the process of meaning-making in relation to Self-construct and the wider social world. … It is hoped that focusing on the words of individuals given dementia diagnoses, away from predominant bio-medical discourses, may facilitate professionals’  continuous reflection and person-centred practice.
   p 9-26, Kitty Clark-McGhee and Maria Castro

Creativity and dementia: Does artistic activity affect well-being beyond the art class?

*       The Alzheimer’s Association’s Memories in the Making® (MIM) art activity program is intended to enhance the well-being of individuals who are living with dementia. Previous evaluations of MIM have found that participants show benefits on several well-being domains measured by the Greater Cincinnati Chapter Well-Being Observation Tool ©. The current study extended those findings by looking for evidence of carry-over effects beyond the temporal boundaries of MIM sessions. Additionally, this study evaluated key psychometric qualities of the assessment instrument. …
  p 27-46 Susan M. Gross,  Deana Danilova,  Michael A. Vandehey,  and George M. Diekhoff

*       Medication management concerns of ethnic minority family caregivers of people living with dementia


This qualitative study explored the medication management experiences of Australian ethnic minority family caregivers of people living with dementia. From the perspective of this group of caregivers, medication management was a source of stress resulting from the progressive loss of ability of care recipients to manage their own medications; the complexity of the medication regime and the caregiver’s lack of trust of the care recipient to safely and effectively manage medications. Caregivers used various strategies to manage medications and avoid conflict with care recipients including being watchful and involving other family members in medication management tasks. … P  47-62

Caregivers’ willingness-to-pay for Alzheimer’s disease medications in Canada


We studied caregivers’ willingness-to-pay for Alzheimer’s disease drug therapy. We recruited 216 caregivers of persons with mild or moderate Alzheimer’s disease and presented them with four scenarios describing a hypothetical Alzheimer’s disease medication. The scenarios described the medication as capable of either treating the symptoms of disease or modifying the course of disease. .. The highest level of support was for the ‘disease modifying and no adverse effects’ scenario, while the lowest level was for the ‘symptom treatment and 30% chance of adverse effects’ scenario. On average, caregivers’ monthly willingness-to-pay out-of-pocket for the medication ranged from $214 to $277 (Canadian dollars). … Caregivers placed more value on the absence of adverse effects than on drug efficacy. P  63-79,


A technology roadmap of assistive technologies for dementia care in Japan

p 80-103


*       There is an increasing need for caregivers, who are well-trained, experienced and can pay special attention to the needs of people with dementia. Technology can play an important role in helping such people and their caregivers. A lack of mutual understanding between caregivers and researchers regarding the appropriate uses of assistive technologies is another problem. A vision of person-centred care based on the use of information and communication technology to maintain residents’ autonomy and continuity in their lives is presented. Based on this vision, a roadmap and a list of challenges to realizing assistive technologies have been developed. …


From evidence to practice: Using the RE-AIM framework to adapt the REACHII caregiver intervention to the community

p 104-113


*       This article describes how the multi-step mid-course assessment of the REACH II community translation project in North Carolina was guided by the RE-AIM framework, and summarizes adaptations made to enhance the feasibility of adoption and maintenance while at the same time assuring fidelity to program core elements. …

   The comparison of quality of life among people with mild dementia in nursing home and home care—a preliminary report



*       Background Living arrangements play an important role in determining the quality of life (QoL) of people with dementia. Although informal care (home-based) is favored, the transition to formal (institutional) care often becomes necessary, especially in the later stages of dementia. Nevertheless, there is currently no definitive evidence showing that informal or formal care provides a higher QoL for those with dementia.

*       Objective To compare the QoL of people with dementia in the nursing home and home care, and identify factors that differentiate their QoL.

*       Conclusions Older adults with dementia who were living at home experienced higher QoL, ADLs, and social connectedness compared with those living in institutional care. Support should be provided enabling home care and empowering caregivers to provide better care for people with dementia.

Changes in daily cognition and behavior of Alzheimer’s patients over time: A three-year evaluation using a daily cognition and behavior for Alzheimer’s disease scale

p 126-135,


Objective The purposes of this longitudinal study were to assess whether the Daily Cognition and Behavior for Alzheimer’s Disease scale might help observe changes in daily cognition and behavior among Alzheimer’s disease patients and to determine whether the scale could be used by non-professional caregivers.

Conclusion Findings suggest Daily Cognition and Behavior for Alzheimer’s Disease might help observe changes in daily cognition and behavior among Alzheimer’s disease patients, and that Daily Cognition and Behavior for Alzheimer’s Disease can be used by non-professional caregivers.

Book Reviews

Karen Watchman (ed.), Intellectual disability and dementia research into practice


The book has a framework of three parts covering areas from the technical to the highly practical. The first part, concentrates on the ‘What do we know’ aspect of the relationship between intellectual disabilities and dementia in people with Down syndrome, beginning with a comparison between prevalence in those people with Down syndrome and those with other types of intellectual disability.

Part two focus on the experiences of people with intellectual disabilities and dementia using a number of different kinds of methodology and research.

Part three focuses on ‘What are we going to do’, pointing towards the need to redesign current provision beginning with creating a greater understanding of what is happening to the person and the sharing of the diagnosis.



 Amanda Alders Pike, Improving memory through creativity  p 139-140,

An excellent overview of creative program development and facilitation with older adults. The text also offers a valuable resource for anyone working in a recreational, creative, mental health or therapeutic role in long-term care and hospital continuing care sectors, community health and recreation centres as well as adult day programs. This book covers all of the most important and often overlooked elements of creative programming for older adults, especially those experiencing mild cognitive impairment (MCI). The author outlines art as a culturally inclusive, universal communication tool, one which allows for the social connection, creative expression, opportunity for success and cognitive training essential to the well-being of older adults. … Krista Schneider Art Therapist, Ontario, Canada

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