January 29, 2015

Person-centred care

Hiding the stranger in the mirror
By Cameron J. Camp
There is not us, there is no them, only we
It is my sincere wish that these stories will lead the reader to new ideas, new ways of thinking, and most importantly, a new attitude towards persons with dementia.
Cameron Camp uses stories that represent "cases" to be "solved" which are lessons for those dealing with the challenges posed by caring for persons with dementia. 
Many cases are followed by a "lesson learned" for the reader to take away and use,  for example a woman whose mother kept asking her the same question over and over discovered that spaced retrieval can be effective for working with repetitive questioning

Enriched care planning for people with dementia : a good practice guide for delivering person-centred care
The correlation between `disengagement' and illness in people with dementia living in long-term care settings is becoming more widely recognised, and developing and adapting front-line staff responses to the changing needs of individuals is a crucial factor in addressing this problem. This book presents a complete practical framework for whole person assessment, care planning and review of persons with dementia or signs of dementia (including those with learning disabilities) who are in need of, or already receiving, health and/or social support. The book provides template assessment forms, guidelines for carrying out the assessment, and suggestions for tailored interventions based on the profile that emerges from the assessment process. The authors also include a clear explanation of the five theoretical components of dementia that are considered in the assessment: health, biography, personality, neurological impairment and social psychology. This good practice guide will provide a step up to the challenge of providing person centred care as a minimum standard rather than just an ideal. Care workers in residential settings and social workers assessing clients for their support requirements will find this an essential resource.

The 50 point action checklist
David Sheard - Dementia Care Matters
This Checklist is a rough guide to some of the key features in Inspiring Action in Person Centred Dementia Care.  The checklist can also be used to create discussion amongst team members on each other's understanding of the items.  The purpose of the Checklist is to focus on inspiring and improving culture change in dementia care.

Living with dementia : to change your minds about people whose minds have changed [DVD]

presented by G. Allen Power and Richard Taylor

In the first of three parts, Dr. Power makes the case for a paradigm shift needed in the established model of institutional long-term care. Viewers see documented evidence of the negative outcomes that result from traditional care, including the dangerous practice of “medicating away” the predictably negative reactions that emerge in response to standard care practices and attitudes.  
In part two, Dr. Taylor, a former psychologist and educator, articulates the needs, fears, and all-too-common negative experiences of a person diagnosed with dementia. He speaks from the heart on behalf of all those who are unable to communicate for themselves and, at the same time, speaks as one unique individual asking to be respected, supported and, most of all, seen and heard. With surprising candor and wit, he presents moving personal stories and sage advice that provide new insight about the experience of the disease to formal and informal caregivers as well as LTC managers and administrators.
This valuable training tool helps to raise the awareness of anyone working in long-term care settings to the remaining potential for people with dementia to lead satisfying and fulfilling lives — with appropriate supports — despite their losses.
Behaviour management : a guide to good practice
Managing Behavioural and Psychological Symptoms of Dementia (BPSD)
The aim of the 178 page guide is to provide evidence-based guidance for DBMAS clinicians in their role of assisting residential aged care facility staff, community care staff and family members caring for persons living with dementia, who present with behavioural and psychological symptoms of dementia (BPSD). A comprehensive evidence and practice-based overview of BPSD management principles is provided with practical strategies and interventions for assisting care staff and family carers to manage behaviours in dementia.

These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au



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