November 06, 2014

Resources for support groups on advanced care planning

The library holds multiple copies of the following resources for use in support groups.

Advance health care directive : this form deals with your future health care
developed by Colleen Cartwright
The time may come when you cannot speak for yourself. By completing this form, you can give directions about what medical treatment you would want, or not want, at such a time. The document was originally developed for use under the Queensland Powers of Attorney Act 1998 and is part of that legislation. Professor Cartwright has written the document to reflect NSW law.
Live well, die well : information for carers, families and friends of people with end stage dementia
The aim of this handbook is to enhance the quality of life for people with dementia and their carers, through their lives living with dementia, to the end of life stage using a Palliative Care Approach.  The ultimate goal of palliative care is to relieve any emotional, physical, psychological, spiritual, cultural and social suffering promoting quality of life until death.

How guardians can protect, respect and promote human rights
National Association of Community Legal Centres
This is an illustrated, plain language resource for guardians in New South Wales. The publication provides a handy checklist for guardians on protecting, promoting and respecting the human rights of people under guardianship. Case studies topics include a person with dementia, one with disabilities in a care home disabilities and capacity.

With a little help... how family and friends can support a carer
Resthaven Incorporated
This information is for family and friends of a Carer: to help you support someone you know who is caring for someone else. Here is some information and practical ideas for family and friends about how to support a Carer in their important role. Many Carers say that, while they value their role and it has its rewards, it can be demanding and that they need to be supported so that they can keep it up when things get difficult. Some Carers say that they sometimes experience a sense of isolation – that those around them, family and friends can’t quite ‘get’ what it is that the Carer is going through. The focus is, understandably, often on the needs of the person who is being cared for. There is a sense that the Carer can or should be strong and ‘just get on with it’. Carers who we have spoken with said that they wished there was some information available to family and friends that would help them understand and better support the Carer. Carers don’t call for special praise – just some recognition and understanding of what they are going through.


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