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September 18, 2014
Dementia : the international journal of social research and practice - September 2014
'We need to know what's going on': Views of
family members toward the sexual expression of people with dementia in
residential aged care
This paper reports on a study which explored the views and attitudes of
family members towards the sexual expression of residents with dementia in
residential aged care facilities in two states in Australia. Findings suggest
the need for family education and a larger study to better understand the views
and motivations of family carers and how these might impact on the sexual
expression of the older person with dementia living in residential aged care.
Christian worship leaders’ attitudes and observations of
people with dementia
study aimed to investigate Christian worship leaders’ attitudes and observations
of PWD attending religious services, to identify recurring themes, and to
generate hypotheses regarding the effects of participation in religious
services on PWD.
Conclusion: Religious worship appeared to constitute a
naturalistic psychosocial intervention comprised of the service itself and the
social context. Further investigation and conceptualisation of the interaction
between PWD and their social environment is warranted, and collaboration with
those people who constitute the PWD’s social support network.
‘Brightness in dark places’: Theatre as an arena for
communicating life with dementia
aim of this study was to use artistic expressions on a theatrical stage for
communicating life with dementia, as portrayed in literary texts and to explore
whether such communication would help relatives of people suffering from
dementia gain knowledge of their situation. Life with dementia was portrayed
through four theatre performances with actors reading excerpts from literary
texts combined with music. Relatives were invited to the performances and to
participate in focus groups following the events. Analysis revealed that the
participants recognized episodes in the texts and were touched. This resulted
in new knowledge. The aesthetic expression was of great significance. The use
of the theatre stage as an arena for communicating knowledge became a
meaningful experience. The performances enabled identification with roles on
the stage, created a feeling of community with the audience and contributed to
an experience of dignity.
Evaluation of an education intervention to implement a
capability model of dementia care
paper outlines an intervention protocol used to educate carers in a project
that implemented and evaluated a capability model of dementia care (CMDC) in
three long-term aged care facilities. It outlines an evaluation of the content
of the education and processes used to deliver the intervention through an
analysis of surveys and reflective field notes. The education protocol was
designed for adult learners and grounded in the six assumptions of Knowles'
learning theory. Results suggest the education protocol positively impacted on
the knowledge, skills and attitudes of participants towards providing quality
dementia care to residents in long-term care. The paper also acknowledges the
challenges involved in sustaining a practice change through an educational
The dance of communication: Retaining family membership
despite severe non-speech dementia
is minimal research investigating non-speech communication as a result of
living with severe dementia. This phenomenological study explores retained
awareness expressed through non-speech patterns of communication in a family
member living with severe dementia. This study highlights that retained
awareness can exist at levels previously unrecognised in those living with
limited or absent speech as a result of severe dementia. A recommendation for
the development of a communication program for caregivers of individuals living
with dementia is presented.
‘It’s a huge maze, the system, it’s a terrible maze’:
Dementia carers’ constructions of navigating health and social care services
complex array of health and social care services are needed to support people
living with dementia. Drawing on the interlinked ‘Duties to Care’ and ‘Dementia
Talking’ projects, in this article we focus on British carers’ talk about
health and social care services.
Learning and using technology in intertwined processes: A
study of people with mild cognitive impairment or Alzheimer’s disease
with mild cognitive impairment and Alzheimer’s disease are likely to be
challenged by the multitude of everyday technology in today’s society. The aim of
this study was to explore how they try to prohibit, avoid or solve problems in
everyday technology use, maintain skills, and learn to use new technology.
Core principles for involving people with dementia in
research: Innovative practice
Scottish Dementia Working Group Research Sub-group is part of the Scottish
Dementia Working Group, an internationally renowned campaigning group of people
with dementia. We co-created our core principles for involving people with
dementia in research between September and December 2013. The principles
address six areas: (i) how people with dementia are valued and involved in
research, (ii) lived experience as valid knowledge, (iii) physical and
emotional safety, (iv) accessibility of all aspects of research, (v) training
for researchers and (vi) the impact of our experiences of time on research
processes. Through our core principles, we challenge researchers across all
disciplines to re-consider how we and other people with dementia are involved
in research as well as how knowledge in dementia research is created.
Implementation of advanced practice nurse clinic for
management of behavioral symptoms in dementia: A dyadic intervention
symptoms are common in all types of dementia and often result in significant
caregiver stress and illness, institutionalization of the patient, and reduced
quality of life for the patient and caregiver. Health care practitioners often
lack the expertise or time to adequately assess behavioral symptoms or counsel
caregivers about interventions. Our goal was to implement a specialty clinic
managed by advanced practice nurses to assess and manage behavioral symptoms
associated with dementia.
An assessment of the dementia CQUIN – an audit of
Department of Health has increased the emphasis on earlier detection of
dementia among patients aged over 75 admitted to hospital in an emergency in
England. Introduction of a Commissioning for Quality and Innovation (CQUIN)
payment provides an incentive for NHS Trusts to screen patients for memory
problems on admission. This article reports on how improvements were made to
the screening process across three wards in a large university teaching