July 29, 2014

Approaches for improving the lives of people with dementia and those who care for them

These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au

Dementia beyond disease : enhancing well-being
by G. Allen Power ; foreword by Richard Taylor
Focusing on seven essential domains of well-being,  geriatrician G. Allen Power challenges readers to evaluate their attitudes, expectations, and approaches and to embrace new ways of thinking that will lead to better solutions to problems encountered in all types of care settings. Learn how to overturn the prevailing disease-based care practices by emphasizing well-being and the many ways it can be enhanced in people with dementia. See how current care practices chronically erode individual well-being and then discover more dignified and strengths-based alternatives that build it up. This book boldly confronts widely accepted dementia care practices and presents approaches that promise a new and hopeful vision for achieving the best possible outcomes for every person touched by this debilitating disease.

Dementia care the adaptive response : a stress reductionist approach
Paul TM Smith
The process of dementia makes the experience of day to day living an acute challenge. This could be mediated with educated and timely inputs and where the caring contract may be negotiated to preserve both dignity and quality of life.
The premise of the adaptive response model is that armed with the knowledge of human systems and their ability to adapt and adjust, and with a firm application and emphasis on person centred approaches to dementia care, then the experience can be enhanced, and living with one of the dementias can be made less traumatic.
This holistic approach proposes a method of using environmental and social psychology to maximise function in the individual and to minimise the negative and destructive elements of the perceived and real environment.
Sections include:
• The biological domain
• The psychological and social domains
• Modern contexts of dementia care
• Stress and adaptive responses
• Adaptive response
• Stress
• Manipulating the social and built environments

Living with dementia : a practical guide for families and personal carers
edited by Esther Chang and Amanda Johnson;
Forward by Ita Buttrose, past National President , Alzheimer's Australia
Written by aged care experts, including academics, nurses, medical practitioners and family advocates, Living with Dementia offers evidence-based research, supported by clear chapter outcomes, key terms and real-world vignettes. Practical strategies are integrated throughout to support caregivers, paid and unpaid, in the home environment and in residential care settings. The book offers advice on how to manage everyday activities such as feeding, toileting, personal hygiene and grooming, and coping with challenging behaviour. In recognising the needs of the whole person, mental stimulation and spirituality are also addressed. An introduction to commonly used medications, complementary therapies and effective communication strategies are provided, as well as information about caring for the dying, and most importantly, looking after you – the carer. Whether you are an Assistant in Nursing, an Enrolled Nurse, a family member or a friend caring for a loved one, Living with Dementia will assist you to move beyond the negative perceptions, and enable a meaningful life for the person with dementia, within the limitations of the disease.

Ten thousand joys & ten thousand sorrows : a couple's journey through Alzheimer's
Olivia Ames Hoblitzelle. (foreword by Jon Kabat-Zinn)
Review by Alzheimer's Australia NSW staff member
"...I’ve just finished 10,000 Joys and 10,000 Sorrows which I loved and I really  enjoyed  the flow of the story.
Because I have a background in Buddhist meditation I really connected with the story and the couple’s experiences of living with dementia as described in the book. I have often wondered what the experience of living with dementia would be like for experienced meditators. I think it possibly taught me even  more about the benefits of meditation. I was so moved by Hobb’s capacity and willingness to describe his experience. I think it gives a rare insight into what it might be like for a person with dementia. We don’t often have the privilege of hearing it from ‘the horse’s mouth’ and certainly not with such humour, poetry and precision. I was inspired by his capacity to continue living with a sense of purpose, learning and personal growth throughout the course of the disease and heartened to know that is possible.
The carer’s experience also gave me insight into the enormity of that role. I imagine her as a pretty calm, sensitive and resilient person with a great deal of family and community support… and yet, with all that on her side, she was clearly exhausted by the experience. It made me think about carers who go into the role with significantly less resources and I guess increased my understanding of and compassion for carers. What a staggeringly enormous undertaking!
 Quite simply it was a beautiful story about a truly inspiring couple.  Their capacity to ‘be with what is’ supported them through the journey with incredible positivity, wisdom and acceptance.

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