June 11, 2014

New resources for health professionals

These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au
Dementia and Well-being: Possibilities and Challenges (Policy and Practice in Health and Social Care)
Author Ailsa Cook critically reviewsrecent health and social care policies in Scotland and England in light of the growing body of empirical research into the experiences and perspectives of people with dementia. She draws on this evidence to consider the particular challenges associated with delivering four key outcomes to people with dementia, identified by policy makers as fundamental to well-being. These key outcomes are independence, health, choice, and social inclusion.

Strangers in a strange land : cultural competence in dementia care [CD-Rom]
The Strangers in a Strange Land, an interactive resource funded by Department of Health and Ageing as part of the Australian Government's Dementia Initiative. This project is one of a set of learning resources that provide information and support for people working in the following areas of need: Culturally and linguistically diverse communities; Rural and remote aged care workers and volunteers; Carers for people with dementia who live at home; Younger people with dementia. 
Not another care handbook : pearls of wisdom for care managers
Edited by Dr Richard Hawkins, Editor-in-Chief, Caring Times Foreword by Barbara Pointon MBE
This work presents the thoughts in condensed form of 109 care home experts who have each written a chapter on key issues affecting the role of the manager in the care home. These experts start from the premise that the manager is central to the quality of care provided in a care home, and in an unique format, they have each focused on presenting the ten points they consider most important in their area of expertise.

Young onset dementia : characteristics & impacts
by Deliane van Vliet
Research protocol of the NeedYD-study (Needs in Young onset Dementia): a prospective cohort study on the needs and course of young-onset dementia
BMC geriatrics, 2010 13
3 Impact of young-onset dementia on caregivers: a review
International Journal of Geriatric Psychiatry, 2010 29
4 Time to diagnosis in young-onset dementia as compared to lateonset dementia
Psychological Medicine, 2012 45
5 Caregivers’ perspectives on the pre-diagnostic period in youngonset dementia
International Psychogeriatrics, 2011 63
6 Prevalence of neuropsychiatric symptoms in young-onset compared to late-onset Alzheimer’s disease
Dementia and Geriatric Cognitive Disorders, 2012. 85
7 Awareness and its association with affective symptoms in youngonset and late-onset Alzheimer’s disease
Alzheimer’s Disease & Associated Disorders, 2012
A road less rocky : supporting people with dementia
Carers Trust, London
The report finds that many carers are not being given information and advice on these issues when they need it. Often advice, if it is given, is too late.
Other key findings included:
Over half (52%) of carers in the survey reported difficulties in obtaining a diagnosis for dementia for the person they cared for
More than half of carers (55%) questioned said that they had not been given information on legal issues and managing money. Many had learned about Lasting Power of Attorney too late
Many carers, particularly those caring for someone in the later stages of the illness, felt ill equipped to deal with more agitated behaviours that might develop. More than two-thirds 68% surveyed said they had not received training or advice on this issue
82% of carers questioned said that caring had adversely affected their ability to work

Nutrition and dementia : a review of available research
Eating and having a good meal is part of our everyday life and important to everybody, not least to people living with dementia. But it is still an almost totally neglected area of focus in relation to these diseases. Compass Group and Alzheimer’s Disease International (ADI) have come together in commissioning this report to investigate how the right nutrition can help to make life better for people who live with dementia.

Getting in touch : a carer support model using teleconferencing
Funded as part of the Carer Support Network project by the NSW Ageing and Disability Department under the NSW Action Plan on Dementia. The organisations that conducted this project on a collaborative basis were Alzheimer's Association NSW, Eastern Sector Aged Care Services of Central Sydney Area Health Service and the Centre for Education and Research on Ageing




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