June 17, 2014

In the June/July issue of Australian Journal of Dementia Care

Full text articles are available to fee paying members of Alzheimer’s Australia NSW by emailing NSW.Library@alzheimers.org.au
 
 
Care and management of younger and older Australians living with dementia and behavioural and psychiatric symptoms of dementia (BPSD)

Senate addresses behavioural problems - Chaired by Senator Rachel Siewert 26 March 2014 © Commonwealth of Australia 2014

Full report includes : LIST OF RECOMMENDATIONS  and the following topics
Topics include: Dementia in Australia; Community care; Supports to keep people with dementia in the community; Adequacy of community care; Respite care for people with dementia; Meeting the needs of Behavioural and Psychological Symptoms of Dementia in residential care; Accreditation standards; Funding; Leaders in dementia-appropriate  facilities and care; Specialised dementia facilities? Committee view: best practice care; The dementia care workforce; Retaining skilled workers;  The use of restraints in dementia care; The rights of patients and considerations in using restraints; Chemical Restraints; Physical restraints; Guidelines for the use of restraints; Are restraints necessary? ;  Committee view; Younger Onset Dementia; Interaction between Acute-, Disability-, and Aged-care; Caring for people with younger onset dementia; Improving care for people with younger onset dementia; Committee view; Concluding comments; APPENDIX 1 - Submissions and additional information received by the Committee; APPENDIX 2 - Public hearings.

Younger onset dementia program ; from concept to reality
“After years of advocacy, Australians with Younger onset dementia now have much-needed support to navigate the health system and access information” Glenn Rees this article examines concepts such as ‘”single point of contact” , a broad role for key workers, a consumer directed approach and positive outcomes such as assisting clients in accessing a diagnosis and supporting the whole family and building capacity. The article includes client feedback. p8

Final article in the book that changed our world –The book is ‘Dementia reconsidered: the person comes first’ by Tom Kitwood – “if you have not read this book, then I recommend it to you as a seminal work…” we also have “Tom Kitwood on dementia : a reader and critical commentary” in the library. p 10

Beats goes on for Rhythm of life drumming project
…describes a drumming program in Victoria that gave men with younger onset dementia a chance to physically express their emotions and develop new friendships, and is now helping people with dementia at risk of social isolation…p11

Changing the image of care: photographer Cathy Greenblat  and her experience in the life embracing environment of Australia’s Starrett Lodge with Colin McDonnell

also see the following youtube
 
…p 14

Telling their stories: incorporating life story tools into care planning

A project that helps people with dementia share their life stories is proving so beneficial it is now part of routine care planning for Amana Living residents and will also be offered to it’s day club clients. The activity involves the discussion of past activities, events and experiences usually with the aid of tangible and sensory prompts such as photographs and music. Evidence shows that it enhances mood and wellbeing…p16

A positive approach to risk

Are we missing something by focusing on the negative aspects of risk management and trying to eliminate or control all hazards when caring for people with dementia?

Article defines risk and  explores positive risk taking and how to quantify risk leading into a discussion supporting “safe risk” and “risk enablement” it is not a one size fits all procedure but it enables people with dementia to experience a rich engaged life ….p 20

 


Jumping for joy - Colin McDonnell explains how excitement adventure and and element of risk can and should be important part of life aged care and we see resident Allan Rigby fulfilled his dream of a tandem parachute jump from 16,000 feet, at the age of 86.

This leads to a feeling of freedom and the achievement of a lifetime by respecting the bucket lists of residents. The bucket list program was introduced 12 months ago and enables residents to plan and take part in activities they have always wanted to do –residents raise money to pay for activities by making and selling baked goods – the philosophy of the bucket list program is about residents being able to participate in life rather than just receive care….p 22

Falls, dementia and some unintended consequences - Richard Fleming offers a range of strategies to minimise falls and argues that risk avoidance can have unintended damaging consequences. This looks at the link between hypotension and a person rising from lying or sitting. It shows opportunities for intervention using methods such as way finding, familiarity outdoor area design and education and advice…p 24

Thinking outside the box – many Australian designers believe that the building code restricts their ability to create therapeutic environments for people with dementia….p24

Improving the experience of Acute care: strategies to improve the experience for people with dementia

Admission to acute care in hospital can be confusing and traumatic for both the person with dementia and the carers – however there are strategies that can alleviate the trauma and promote the best possible care. This article looks at case studies and reflects on steps such as moves towards cognitive screening and the themes of care such as the environment and care provision. It includes recommendations for families and people with dementia and recommendations for health care professionals…p 27

Walking side by side

Report on the gains for younger people with dementia of being involved in a memory clinic’s weekly walking group. The article describes how to introduce the group and the focus group findings such as supportive and positive relationships bringing closeness , friendship and compassion, it discusses how to protect the group eg when you have a large group internal groups and it breaks off  and you get conflict… It also looks at the role of the spouses’ questionnaire ….p 30

Research Focus: dementia in Indigenous communities

The number of older Aboriginal Australians is set to increase dramatically, yet until now little has been known about their health and dementia rates. This article aims to discuss the results of the Koori Growing Old Well Study, which set out to determine the prevalence and potential risk factors for dementia in urban Aboriginal settings, valid screening and diagnostic tools, service needs, and how to improve dementia knowledge in Aboriginal communities and researchers…p. 32



Aboriginal Health and Ageing - Koori Growing Old Well Study


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