April 30, 2014

Australian Journal of Dementia Care - April/May 2014

Full text articles are available to fee paying members of Alzheimer’s Australia NSW by emailing NSW.Library@alzheimers.org.au

 News highlights p.4-6

  • Reducing risk for Aboriginal Australians – new dementia risk reduction program available from Alzheimer’s Australia
  • Undernutrition being overlooked in people living with dementia
  • Blue Koala brightens trail – Port Macquarie’s sculpture trail designed to make the city more dementia friendly
  • Drug research grants on offer from Alzheimer’s Drug Discovery Foundation and Alzheimer’s Society (UK)
  • Australia Day Honour – Dr Penny Flett
  • Sexuality workshops to guide staff – presented by the Dementia Training Study Centres across Australia April-July 2014
  • Extra funding for younger onset dementia – 40 key workers now in the National Younger Onset Dementia Key Worker Program across Australia
  • New resource for drivers – kit developed by Alzheimer’s Australia Victoria
  • Care farm set to open in South Australia – Australia’s first income- generating care farm for people living with dementia to open
  • New global forum in fundraising drive – Dementia Alliance International group comprised exclusively of people with dementia
  • Scientists share in $2.5m of grants from Alzheimer’s Australia Dementia Research Foundation
  • Staff under prepared by end-of-life issues – End-of-life care for people with dementia a study by Alzheimer’s Australia based on a survey of family carers and professionals
  • Survey looks at wandering – QUT conducting online survey at http://survey.qut.edu.au/f/179605/3e94
Dementia-friendly communities: what consumers really want
How can communities become more accessible and supportive for people living with dementia? A series of Dementia Friendly Communities Consumer Forums in Adelaide has generated plenty of suggestions from people with dementia, carers, family members and service providers. Alzheimer’s Australia SA CEO Kathryn Cunningham explains.
p. 8-9

A picture paints a thousand words

For people living with dementia and their carers, art can help reconnect people with their sense of identity and assist in making meaning of life. The National Gallery of Australia’s Art and Alzheimer’s program has expanded country wide and is opening up a new world of understanding writes Adriane Boag.
p. 10-12

Artists in residence

Working in partnership with three professional artists, Vasey RSL Care is providing art education for people with dementia and other residents at ANZAC Hostel in Melbourne writes James Baldwin
p. 13-14

The power of colour

In the second article about the impact of thoughtful design on the living environment for people with dementia, Debbie de Fiddes continues to explore the role of colour and explains how it can be used as a therapeutic tool
p. 15-18 

Person-centred care is worth talking about

Dr Sandra Davis’ recent article in AJDC, highlighting barriers to delivering person-centred care, sparked this passionate response from Kim Wylie, Monica Nebauer and Virginia Moore. While applauding Dr Davis’ article they argue that there are more than two barriers preventing people with dementia from receiving this type of care, and challenge others to continue the conversation.
p. 19-21 

The adventure (not dementia) club

Joanne Pine and Heather Hill report on the results of their Style Café program in Victoria, which puts the concept of ‘dancing with change’ into practice. This concept, featured in a recent article in AJDC, offers a positive approach to supporting a person with dementia, their partner and family.
p. 22-24

Reaching towards deeper levels of communication

Luke Tanner describes in detail how to respond to complex and non-verbal communication with people living with dementia – particularly those with more advanced dementia.
p. 25-27

Beyond risk: the reward of nature

Garuth Chalfont says outdoor care environments can play a powerful therapeutic role in supporting people with dementia – but only if design and care practice issues are tackled together.
p. 28-30 

Dementia Green care handbook of therapeutic design and practice by Garuth Chalfont and Alex Walker

This handbook is one output from a design and research project carried out in two locations: a care home and day facility. It reports on the project’s work and outcomes, introduces a number of important ideas (such as risk-free and risk-assumed gardens), and includes a design guide and a list of over 50 nature-related activities suitable for people with dementia. The handbook explains in detail how outdoor environments in care settings can be used therapeutically to better support the needs of people with dementia. 

Hard copies available for loan at the library  email nsw.library@alzheimers.org.au 


Respite care: what works best

Mary Hoodless shared the results of a study evaluating which respite options work best for people with dementia and their carers living in rural NSW.
p. 31-34

Retirement village study first for Australia

Kylie Sait, Brendan Moore and Lynn Chenoweth describe their research project which is examining the experiences of people with dementia living in retirement villages.
Phase one of the project Living with dementia in retirement villages: investigating the experiences of retirement village residents with dementia has started with interviews being conducted with people with dementia of live in retirement villages and their carers, as well as key stakeholders in the industry.  Phase two of the project will begin in mid-2014and will survey and interview residents and staff at eight retirement villages in NSW.
To find out more about the project, contact Kylie Sait on (02) 8875 4641 or email kylie.sait@alzheimers.org.au
p. 35


Staff experiences of end-of-life care

Researchers from Victoria conducted a qualitative investigation of staff experiences of end-of-life care for older people within a sub-acute rehabilitation facility.

The impact of diagnosis on partners

UK researchers conducted semi-structured interviews with 10 spouses of people with dementia to understand the impact of the diagnosis on caregivers.
**This article appears in the journal Dementia and is available from the library
Drawing strength from spirituality
Researchers from Massachusetts have conducted interview and focus groups to explore the role of spiritual identity in preserving a sense of self in people with Alzheimer’s disease and their carers.

Leisure activities vital for sense of well-being

A recent Canadian study aimed to understand the meaning and experience of people living with early stage memory loss due to dementia.
**This article appears in the journal Dementia and is available from the library 


Career pathways for nurses in dementia care

Carol Chenco describes the new resource Career Pathways Matrix which is designed to help nurses become better equipped to care for people with dementia.
p. 38 

Book Review:  The hen that laid the golden omelette – a guide to art classes for people with dementia

For more than 10 years Barbara Potter spent time sharing her passion for painting with people living with dementia. With friend Barbara Davison, they accumulated a font of wisdom and knowledge which they were asked to share in the hope it would inspire others to continue their legacy.  This book provides a summary of what the two Barbaras learnt in their 10 years running the Sefton Art Project in Melbourne. 

** This book is available at the library










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