June 06, 2018

Introducing new models of dementia care that reflect on the role of a person with dementia within a community and their relationships - for professional and family caregivers demonstrates how to facilitate positive relationships for peaceful living.

*These DVDs and books and Eresources are available to members of dementia Australia library NSW - if you would like to reserve them please email the Library on nsw.library@dementia.org.au

Teaching Empathy and Conflict Resolution to People with Dementia : A Guide for Person-Centered Practice
The way in which dementia is understood and treated is changing, with a growing focus on the individual's experience and person-centred approaches to care. 

Introducing a new model of dementia care that reflects on the role of a person with dementia within a community and their relationships, this guide for professional and family caregivers demonstrates how to facilitate positive relationships for peaceful living.

By understanding the cognitive and physical challenges that older adults with dementia face, caregivers can practice emphatic care that affords people with dementia increased freedom of expression and independence. 

Included here are techniques for conflict resolution that enable people with dementia to be active and self-initiating in times of distress and disruption. Looking at the basics of respect, empathy, and mindfulness, this book also provides hands-on training for employing these virtues in practice with a number of exercises to help achieve the goal of peaceful independent living.
available in eBook

     also by Cameron Camp 

A therapy technique for improving memory: Spaced retrieval

A memory intervention called Spaced Retrieval has been found to improve retention of information in clients with memory impairment. This workbook takes speech-language pathologists and occupational, physical, music and art therapists, step-by-step through this useful technique. The book includes a review of the research, case studies, detailed instructions, helpful resources, and reproducible work sheets for use during therapy sessions. All are designed to help clients reach their therapy goals.

Spaced retrieval is...

The expansion is done to ensure a high success level of recalling the information on the first time and increasing the time interval to make the information long lasting to help keep the information always accessible in their mind.

Throughout the development of spaced retrieval they have found that people using this technique with dementia are able to recall the information weeks even months later.

The technique has been successful in helping dementia patients remembering particular objects names, daily tasks, name face association, information about themselves, and many other facts and behaviours. Sufficient test evidence shows that spaced retrieval is valuable in learning new information and recalling information from the past.

Small combines the works and findings of quite a few scientists to come up with five reasons why spaced retrieval works: it helps show the relationship of routine memories, it shows the benefits of learning things with an expansion of time, it helps the patient with Alzheimer's dementia keeps their brain active, it has a high success level with little to no errors, and the technique is meaningful for the patient to do and remember more things. Joltin et al. (2003), had a caregiver train a woman with Alzheimer's by giving her the name of her grandchild over the phone while asking her to associate with the picture of the grandchild posted on the refrigerator. After training, the woman was able to recall the name of her grandchild five days later.

Montessori-based activities for persons with dementia : volume 1 and  2
Cameron Camp

 A different visit : activities for caregivers and their loved ones with memory impairments
by Adena Joltin, Cameron J. Camp, Beverly H. Noble, Vincent M. Antennucci

This manual was created to help people have a different visit with relatives who have memory problems, such as those related to dementia. We hope that here you can find many activities that are right for you and your family members regardless of where they are in the course of dementia. We understand that every person with dementia is different. What works for one person may not work for another, and what works one day may not work another day. This manual is written specifically to you - all those who love family members dearly, but need some inspiration for how to better engage and interact with them.

Spaced retrieval step by step : an evidence-based memory intervention

With proper supports in place, people with memory loss can be taught to remember information and even learn tasks that will promote their independence. Spaced Retrieval Step by Step: An Evidence-Based Memory Intervention describes a simple, effective process that can significantly improve people’s daily performance, safety, and confidence.

This practical guide takes a fresh approach to Spaced Retrieval, teaching this innovative process step by step so you can better assist people in learning important actions and information, such as when to take medications or how to use a walker. With this proven memory-training strategy, you help people learn and store specific information that, with practice, can be easily accessed and retrieved.

Filled with practical insights and advice for care partners, this book also provides:
•screening and program forms (also available as downloadable PDF files)
•an easy-to-follow protocol for practicing Spaced Retrieval
•advice and tools for developing visual cuing

book review
Speech-language pathologists, occupational and physical therapists, nurses, and home care professionals at all levels, as well as family members, can use Spaced Retrieval to positively impact the lives of people with memory loss.
“As a Montessorian focused on care for the aging, this is a must read. Spaced Retrieval Step by Step has been needed for a long time, and I celebrate its arrival. The ability to change lives by improving quality of life for persons living with dementia and their caregivers is within the pages of this fabulous book. With a technique that is easy for anybody to learn and with the potential to achieve amazing outcomes, this is one of the most powerful books ever written to help people living with dementia do so with dignity, respect, and independence.”
—Anne Kelly, Managing Director
Montessori Ageing Support Services

Transcending dementia through the TTAP method : a new psychology of art brain, and cognition

The brain-stimulating approach known as Therapeutic Thematic Arts Programming (TTAP) has a proven record of improving the lives of people with dementia by increasing their engagement and functioning. Activities using the TTAP method can provide significant stimulation and integration of multiple brain regions; enjoyment, engagement, creativity, relaxation, and a sense of purpose for people with even advanced dementia. It has anan easy-to-follow framework that allows infinite variations on themes and personal interests; complete documentation for tracking and evaluation; opportunities for one-on-one or group programming...

Filling the day with meaning : facilitated by Teepa Snow 
-  tips, techniques and advice from a seasoned caregiving expert
 In "Filling the Day with Meaning" Teepa explains:

-the difference between simple entertainment and engaging projects that stimulate brain activity

- how to create engaging and affordable activities to give back moments of joy and happiness to patients with special challenges, such as those with younger onset, tendencies for elopement, falls, and more

- how to build care partner skills

- how to create an inviting & safe environment

- which key activities to consider at different disease stages


also available on our Elibrary 

May 25, 2018

... from a letter received from a carer of a person with frontotemporal dementia, resource list and reviews: for family carers and healthcare professionals

*These DVDs and books are available to members of dementia Australia library NSW - if you would like to reserve them please email the Library on nsw.library@dementia.org.au

“Dear library,
Thank you so much for the life changing resources which you have shared with me.
As a family member of a person with dementia, I wish I could ask any person who cares for my mum to have read or watched the [following] resources. 
*They changed the course of my carer journey with my mum.  I think they would inspire any carer (family, friend or professional) to approach each day with greater enthusiasm and intention to create moments of joy; and with a set of skills that make each day more pleasant for both the person with dementia and the carer. ”

Creating Moments of Joy by Jolene Brackey
This book, as it is titled, is about creating moments of joy for the person with Alzheimer’s or dementia. Brackey shows how many opportunities we have each day to enhance a person’s quality of life, help maintain their dignity, bring some joy and happiness into each day and avoid unnecessary distress.
“After reading this book, rather than waking each day feeling I had to just “get through the day”, I wake with the intention to see how many moments of joy I can create for my mum that day.”  

It’s all in Your approach with Teepa Snow (DVD)
Teepa Snow is an internationally acclaimed dementia care specialist and educator; an exceptional and highly motivational speaker. In this DVD she teaches how a person with dementia perceives his/her environment. She demonstrates how to properly adapt one’s own behavior to increase communication and the patient’s quality of life; techniques to improve communication, mutual understanding, and how to better manage distress.

Understanding  Frontotemporal Dementia with Teepa Snow
Frontotemporal Dementia is particularly challenging for families and professional carers. Odd, impulsive, compulsive and irrational behaviours, and potential loss of language are just a few of the symptoms. Teepa covers the topic with clarity  and provides extremely usable techniques to manage this condition in a way that improves the quality of life of the person with FTD and makes the role of the carer so much less stressful.  
“These DVDs literally changed my life. I wish I could give copies to every person I meet who cares for people with  FTD or any dementia. Life and caring for my mum became so much easier after adopting Teepa’s approach”.

Other Teepa Snow DVDs available in the Dementia Australia Library include:
·         Challenging Behaviours in Dementia Care: Recognizing and Meeting Un met Needs
·         Filling the Day with Meaning
·         Advanced Care Skills in Late Stage Dementia
·         In-home Dementia Care: Tips and Techniques
·         The Journey of Dementia
·         Progression of Dementia: Seeing Gems – Not Just Loss

Resources for Managers:

Leading with heart in dementia care (DVD) - David M Sheard
David M Sheard is recognised as a challenging and motivational speaker, and as a leading dementia care consultant. He advocates a person centred approach. There are multiple Sheard resources in the Dementia Australia library.

This DVD focuses on inspiring leadership in dementia care. It shows that person centred and relationship focused dementia care can be a reality, focusing on how person centred dementia care needs leaders with a heart for this. Key learning messages include
·         Leading with heart matters more than managing hands
·         Energising people who want the same dream is vital
·         Attached leadership not detached management delivers results
·         Driven leaders inspire teams with an infectious passion

How to Get your Staff Engaged in Better Care Techniques – Teepa Snow
In this DVD Teepa shows how to motivate staff to learn, embrace and regularly use new skills. She shows how to propel your managerial techniques from traditional supervising to effective coaching and how best to guide staff during challenging behaviours and care situations.
“I would hope that the management of any care service provider where my mum may possibly  land up would be familiar with these.”

May 24, 2018

Journal of dementia care vol 26 no 3 May/June 2018

*These DVDs, articles and books are available to members of dementia Australia library NSW - if you would like to reserve them please email the Library on nsw.library@dementia.org.au

 News in brief (pages 6-8)

Hunt on social care - we need to better
7 principles include
  1. Quality and safety of services
  2. Integrated health and social care “operating as one”
  3. Highest possible control given to people receiving support
  4. Valued workforce
  5. Better practical support for families and carers
  6. Sustainable funding model
  7. Greater security for all in need of a service…
  8. Correlation found between neglect and staff burnout…

Hygiene controversy over robotic seal in hospitals
PARO the robotic furry seal may not be safe for use with people with dementia in hospital wards  -while it can be thereuputic it needs to stay with in the limits of infection control.

New drug offers hope to alleviate psychosis
Called pimavanserin …

Lack of support after diagnosis
A third of people with a dementia diagnosis get inadequate post-diagnosis support…and do not have a care plan …and this is leading to an urgent and growing need…
According to Alzheimer’s society – nearly two thirds of people with dementia who live on their own feel lonely – What is the solution to loneliness?
many people face the condition alone without adequate support. With two-thirds of people with dementia living in their local community, and many of them living alone, it is vital that the right support is available to enable them to live well with the condition. Dementia can be an extremely isolating experience. One survey we did found that nearly two-thirds of people with dementia who lived on their own reported feeling lonely and a third said they had lost friends. But initiatives like Dementia Friends are both helping to create a world in which everyone affected is empowered to live a life they want and no one has to face dementia alone.  …p 10 – 11

Support for rights and voices heard
Innovations in dementia had done a great deal in it’s short life…achievements of social enterprise whose purpose is to make sure people with dementia are heard…includes rights, accessibility, belonging and dementia voices – concluding that although the organisation is only 10 years old and still small they have been able to punch above their weight and have influence on the contemporary landscape …in the years to come they want to see more of people with dementia claiming their rights ….p 12 – 13

Dementia-friendly Brent a model community
Seldom heard ethnic minority groups play a vital role in making one London borough dementia friendly. Community action on Dementia Brent is a dynamic social movement making Brent dementia friendly, accessible and inclusive of black and minority communities. Early in the journey Dianne Campbell a local resident with younger onset dementia read about the group in the local paper and became a key part of the strategic group. Dianne was highly articulate and had experienced peer support in another area….the program includes dementia peer support project; and dementia friendly Mapesbury – an area of Brent with active residents’ association which wanted to do something for people living with dementia. Firstly there was a need for  training people (dementia champions) for the task and then how to raise awareness among groups whose voices are seldom heard…but still remaining mindful of differences in faith and cultures …
  • Another initiative is the De-Caf – here people with dementia and their carers shape the activities on offer  such as creative arts, oral history , dancing and music…
  • Whole street of support – stretches beyond Mapesbury …shows how a community can contribute to and environment where people with dementia feel safe, confident and connected…
  • The shed – a place where men predominately can go to reduce the risk of social isolation…
  • Partnerships in innovative education - - training based on a social model for receptionists, admin staff, practice nurses and health assistants …p 14-15

Telecare: addressing the problems and challenges 
If telecare where better used outcomes could improve…main findings from the survey indicate that by organising and providing telecare differently outcomes could be improved – to keep people safe and prevent accidents, and keeping people independent and as a way of supporting family carers, and also promoting social contact and spending time meaningfully – needs to include training for telecare assessments …p 18- 19

Comfort care, peace and dignity at the end of life
Good end of life care is essential in dementia but not always delivered
Five priorities - When it is thought that a person may die within the next few days or hours
1 this possibility is recognised and communicated clearly  and appropriately to the resident and family
2 sensitive communication takes place between staff and the dying person and those important to them
3 the above are included in decisions about treatment and care
4 needs of the families and others are actively explored, respected  and met as far as possible
5 individual plan of care which includes food  and drink, symptom control  and psychological and social and spiritual support is agreed, co-ordinated and delivered with passion…
Useful tools include the abbey pain scale and the disability distress assessment tool…p 21 -23

Remembering yesterday, caring today : 20 years on
The director of the European Reminiscence Network
Key points include as late as the 1990s reminiscence work went largely unacknowledged in dementia care
It has an important part to play in the development of person centred care and support
Families have appreciated the structured, creative, inclusive approach …p 24- 27
other resources related to 

the book 

Book review : Remembering yesterday, caring today : reminiscence in dementia care a guide to good practice 
We all assume that reminiscing activities for people with early stage- mid stage dementia have positive outcomes. However for real evidence and guidance on how this can occur this book is really useful and filled with tried and true methods. The title of the book is the name of a wonderful project that involves the dementia clients, their carers, workers and volunteers. The people involved in the project meet many times and report their findings both positive and negative. This book records how using a series of reminiscing sessions based on retracing the life course these teams have very positive and enjoyable outcomes for carers and the client. The book is illustrated with photographs showing how the teams worked and one can see how using these methods how they all had a memorable time. The concept of working with both the client and the carer show the true benefit of a dual-purpose activity.
Chapters 1-3 cover the current theories on reminiscence therapy, which give credence to doing this type of work with clients. The topic headings and contents for the sessions that retrace the life course provide lots of ideas that could easily be adapted to the Australian culture eg “Starting work and working lives”, “going out and having fun”. There is also a great session on “reminiscence alone” groups.
This practical book is a very useful tool for dementia care workers and practitioners 

other resources 
Personal life history booklet
by Kate Gregory
A person’s life represents the accumulation of a wealth of experiences which form their social and life history. Every person’s memories are unique to that individual. This booklet has been designed to collect the unique social and life history of an individual with dementia. This life history will help individualise the care of the person with dementia and maintain their identity. It will also help people caring for the individual to know them and develop strong relationships with them.

The Reminiscence Trainer's Pack: For Use in Health, Housing, Social Care and Arts Organisations, Colleges, Libraries and Museums, Volunteers' and Carers' Agencies

Reminiscence can enrich relationships and enhance caring. The pack aims to equip trainers in a variety of settings, sectors and service agencies primarily concerned with older people. The training is designed to introduce reminiscence workers to the theory and practice.

Contents: Introduction -- Aims and objectives -- Using the teaching pack -- Programmes -- 1. What is reminiscence? -- 2. Why reminisce? -- 3. Reminiscence work in small groups (1) -- 4. Reminiscence work in small groups (2) -- 5. Reminiscence work with individuals -- 6. Reminiscence work with people with dementia (1) -- 7. Reminiscence work with people with dementia (2) -- 8. Reminiscing with people with hearing, sight and speech disabilities -- 9. Reminiscing with people with learning disabilities -- 10. Reminiscing with people with depression and with people who have a terminal illness -- 11. Reminiscing with people from ethnic minorities -- 12. Consolidating skills and sustaining good practice -- Evaluation forms -- References -- Certificate of attendance

Remembering home : rediscovering the self in dementia

Remembering Home provides a compelling argument that home is one of the most enduring and important concepts in the minds and hearts of people with dementia. It is a timely and practical guide to working with memories of home and should be required reading for anyone who works with people who have dementia."

Aniseed balls, billy carts and clothes lines : an abc of growing up in the thirties [book and CD set]
by Roly Chapman
Roly Chapman was born to English parents in Auchenflower, Brisbane in 1926. His reminiscences of growing up in the 1930s will bring a smile to many readers both young and old.
With chapters covering diverse and intriguing subjects such as The Flicks, Cracker Night, The Ekka, Hawking and Spitting, Made in Japan, The Rat Gang, Jargon, and Dunnies and Dunny men, there are lots of laughs and many memories awaiting rediscovery.
The entertaining topics are also of historical interest, documenting aspects of every day life in the 1930s that today have been all but forgotten and are quite foreign to children of the 21st century. 

and also available on our eLibrary 

Paramedics and dementia
Paramedic students are learning more about dementia care – it is evident from the research that emotional support and guidance should urgently be incorporated in undergraduate programmes ..p 28 -29
we have the David Sheard DVD 
Dementia care matters in the Ambulance Service DVD 

Dementia care in A&E : how to avoid admissions
Practice points :
  • Emergency department (ED) assessing people with dementia is this environment is challenging but it must be done effectively   if unnecessary admissions are to be avoided
  • Dementia care – understanding the person’s needs  and responding to them flexibly and creatively
  • Mental health liaison  - triage tool can help
  • Preventing hospital admissions – in  a sample of 11 patients 10 were able to return to the community directly thanks to the intervention by the nurse consultant …p 30 - 31