April 21, 2017

new journal - Alzheimer's & Dementia - The Journal of the Alzheimer's Association

These articles and  resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au 

February 2017
Volume 13, Issue 2, p103-200

Featured Articles

Age of onset of hypertension and risk of dementia in the oldest-old: The 90+ Study

Glucose level decline precedes dementia in elderly African Americans with diabetes

Two novel loci, COBL and SLC10A2, for Alzheimer's disease in African Americans

Mild cognitive impairment and risk of depression and anxiety: A population-based study

Many people with mild cognitive impairment (MCI) suffer from concomitant depression or anxiety. Whether MCI increases the risk of future depression or anxiety is unknown.
In the Rotterdam Study, cross-sectional (n = 4168) and longitudinal associations (n = 2967) of MCI with Diagnostic and Statistical Manual of Mental Disorders—depressive and anxiety disorders—were assessed (2002–2005 to 2009–2011).
MCI is a risk factor for dementia and for depressive and anxiety disorders, suggesting common pathological pathways for cognitive and psychiatric outcomes.

Association of blood lipids with Alzheimer's disease: A comprehensive lipidomics analysis

mTOR and neuronal cell cycle reentry: How impaired brain insulin signaling promotes Alzheimer's disease

Mediterranean diet, micronutrients and macronutrients, and MRI measures of cortical thickness
The Mediterranean diet (MeDi) is associated with reduced risk of cognitive impairment, but it is unclear whether it is associated with better brain imaging biomarkers.
Among 672 cognitively normal participants (mean age, 79.8 years, 52.5% men), we investigated associations of MeDi score and MeDi components with magnetic resonance imaging measures of cortical thickness for the four lobes separately and averaged (average lobar).
Higher MeDi score was associated with larger frontal, parietal, occipital, and average lobar cortical thickness. Higher legume and fish intakes were associated with larger cortical thickness: legumes with larger superior parietal, inferior parietal, precuneus, parietal, occipital, lingual, and fish with larger precuneus, superior parietal, posterior cingulate, parietal, and inferior parietal. Higher carbohydrate and sugar intakes were associated with lower entorhinal cortical thickness.
In this sample of elderly persons, higher adherence to MeDi was associated with larger cortical thickness. These cross-sectional findings require validation in prospective studies.

Review Article

Calcium Hypothesis of Alzheimer's disease and brain aging: A framework for integrating new evidence into a comprehensive theory of pathogenesis



Perspective on the calcium dyshomeostasis hypothesis in the pathogenesis of selective neuronal degeneration in animal models of Alzheimer's disease


Recommended cognitive outcomes in preclinical Alzheimer's disease: Consensus statement from the European Prevention of Alzheimer's Dementia project


Perspective on calcium and Alzheimer's disease


April 20, 2017

new items for the healthcare professional - Late Stage Dementia

These resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au

Advanced Care Skills in Late Stage Dementia

Whether you work in a skilled or hospice care setting, this program is a must-see for anyone who seeks to provide the most comfort, dignity and quality of life to the person living with dementia. 

This program offers step-by-step instructions and hands-on skills for a variety of late stage care needs, all based on Positive ApproachTM techniques to help care partners handle even the trickiest of care tasks and reduce their risk of injury.
• How to calmly get a person out of bed while protecting your back
• How to safely transfer a person from bed to wheelchair
• How to best transfer a person from bed to wheelchair using a SARA lift
• How to bathe and dress a person in bed while protecting their dignity
• How to assist with eating and drinking using the most compassionate care techniques

The end-of-life namaste care program for people with dementia 

The innovative Namaste Care program helps facilities provide gentle end-of-life care, especially for residents with advanced dementia. 

Because of their profound losses, these individuals are often isolated with limited human contact during the final stages of their lives. 

This new program reveals simple and practical ways for direct care staff to provide holistic, person-centered care and maintain a human connection.

 Blending nursing care and meaningful activities, the program promotes peaceful and relaxing end-of-life experiences for older adults. Sensory-based practices, like placement in comfortable armchairs, soothing music, and gentle massage, emphasize comfort and pleasure. Personal information is used to individualize the experiences, making them as enjoyable as possible for participants. 

 Step-by-step advice for staffing, budgeting, and marketing a program is included. Detailed information for creating a Namaste Care room is provided, as well as alternative options for facilities with limited space. Plus, real-life vignettes illustrate the program in practice. 

Promoting high touch when nursing older people : a palliative care approach [DVD]
University of Western Sydney, School of Nursing and Midwifery 
Promoting high touch in nursing older people: A palliative care approach, is an outcome of the project Avoiding “high tech” through “high touch” in end-stage dementia: Protocol for care at the end of life. The DVD is based on material developed by Geriatric Consultant, and Developer of the Namaste Care Program, Adjunct Associate Professor Joyce Simard. 
This DVD features a series of short instructional films that outline an effective protocol for palliative care.  The approach offers hope and a renewed sense of spirit for people in the last stages of life. 

The death talker : what we need to know to help us talk about death

Since the dawn of time, human beings have been curious about death. Most of us have little time in our busy lives to think about the things that are important to us. Often, it’s not until we have a personal experience that we give any serious thought to our own life and our mortality. 

The Death Talker offers a common sense approach to the issues we should all be thinking about so we can live and die well. The personal stories and practical information provide a sensitive guide for exploring the ‘stuff that matters’ to each of us and to help us have meaningful conversations with the people we love. 
Molly Carlile AM has over twenty years’ experience as a specialist palliative care nurse, grief and bereavement counsellor and educator. More recently she has held senior executive roles in both palliative care and acute health, currently as Chief Executive Officer of a large metropolitan, community palliative care service.
(Molly Carlile AM)



The caregiver's path to compassionate decision making : making choices for those who can't
This book includes four adaptable tools that make decision making a simple, step-by-step process; guidelines to help you determine if your loved one or patient can make decisions, and guidance on who should make the decisions, and how to make better decisions. The author suggests questions to use in almost any medical or quality-of-life situation that will help you gather all of the information you need and offers techniques for improving communication between patients, families and caregivers.

listen to the CDs or read the book

“A few conclusions become clear when we understand this: that our most cruel failure in how we treat the sick and the aged is the failure to recognize that they have priorities beyond merely being safe and living longer; that the chance to shape one’s story is essential to sustaining meaning in life; that we have the opportunity to refashion our institutions, our culture, and our conversations in ways that transform the possibilities for the last chapters of everyone’s lives.”

― Atul Gawande,     Being Mortal: Medicine and What Matters in the End 


books for carers ...if you love Liane Moriarty you'll love....The things we keep

if you would like to reserve a copy and you are a library member  - please email the Librarynsw.library@alzheimers.org.au

available as a book and an audio book 

The things we keep

:The Things We Keep is the new novel by Sally Hepworth, bestselling author of The Secrets of Midwives. I think Hepworth is going to cement herself as a must read author for contemporary tales that are a little different and very thought provoking.

"Anna Forster, in the early stages of Alzheimer's disease at only thirty-eight years old, knows that her family is doing what they believe to be best when they take her to Rosalind House, an assisted living facility. She also knows there's just one other resident her age, Luke. What she does not expect is the love that blossoms between her and Luke even as she resists her new life at Rosalind House. As her disease steals more and more of her memory, Anna fights to hold on to what she knows, including her relationship with Luke. When Eve Bennett is suddenly thrust into the role of single mother she finds herself putting her culinary training to use at Rosalind house. When she meets Anna and Luke she is moved by the bond the pair has forged. But when a tragic incident leads Anna's and Luke's families to separate them, Eve finds herself questioning what she is willing to risk to help them.

Dancing with elephants : mindfulness training for those living with dementia, chronic illness or an aging brain

Diagnosed with a disease that can't be reversed? 

Learn how to keep living life to the fullest. 

Have you received a terminal or chronic diagnosis? Is your mind succumbing to age or illness? Can you ever find joy, peace, or fulfillment in these challenging conditions? The answer is a resounding YES. 

Author Jarem Sawatsky saw the countless guides out there for those caring for the ill and healing the curable, but when he was diagnosed with Huntington's Disease he found there was nothing for those living with incurable illness. He quit his job as a professor and devoted his life to exploring the possibilities of living with chronic conditions. Now he's bringing his findings and insights to you. In Dancing With Elephants, you'll discover: Simple practices to bring healing to your heart and life to your new outlook Humorous (and occasionally heart-wrenching) stories of Sawatsky's own journey Multiple ways to build confidence in yourself, even when you've been shaken to the core A new perspective to cut some of the pain and renew your spirit Practical tools to face your seemingly inescapable fears, and much, much more! Based on the popular blog of the same name, Dancing With Elephants includes insightful interviews with chronic disease experts Toni Bernhard, Lucy Kalanithi, and Patch Adams. Sawatsky's landmark book provides support that only a fellow traveler down this road can offer. If you like touching stories, mindful wisdom, and a touch of irreverent humor, then you'll love Sawatsky's life-changing book. Buy Dancing With Elephants today to discover a new way to live!

Where the Light Gets in : Losing My Mother Only to Find Her Again

Many know Kimberly Williams-Paisley as the bride in the popular Steve Martin remakes of the "Father of the Bride" movies, the calculating Peggy Kenter on "Nashville," or the wife of country music artist, Brad Paisley. But behind the scenes, Kim’s mother, Linda, was diagnosed with a rare form of dementia that slowly took away her ability to talk, write and eventually recognize people in her own family. "Where the Light Gets In" tells the full story of Linda s illness called primary progressive aphasia from her early-onset diagnosis at the age of 62 through the present day. Kim draws a candid picture of the ways her family reacted for better and worse, and how she, her father and two siblings educated themselves, tried to let go of shame and secrecy, made mistakes, and found unexpected humour and grace. Ultimately the bonds of family were strengthened, and Kim learned ways to love and accept the woman her mother became. With a moving foreword by actor and advocate Michael J. Fox, "Where the Light Gets In" is a heart warming tribute to the often fragile yet unbreakable relationships we have with our mothers."

Green vanilla tea

When Marie Williams' husband Dominic started buying banana Paddle Pops by the boxful it was out of character for a man who was fit and health conscious. Dominic, Marie and their two sons had migrated to Australia to have a life where they shared more family time -- when gradually Dominic's behaviour became more and more unpredictable. It took nearly four years before there was a diagnosis of early onset dementia coupled with motor neurone disease. Marie began to write, as she says, as a refuge from the chaos and as a way to make sense of her changing world. Her book, Green Vanilla Tea, has just been named winner of the Finch Memoir Prize.

What if it's not Alzheimer's : a caregiver's guide to dementia
* third edition

This book is the first comprehensive guide dealing with frontotemporal dementia (FTD), one of the largest groups of non-Alzheimer's dementias. Designed as both a resource and a reference guide, this useful and up-to-date handbook contains twenty-five chapters full of practical information that caregivers of FTD patients need every day. The contributors are either specialists in their fields or have exceptional hands-on experience with FTD sufferers.
Beginning with a focus on the medical facts, the first part defines and explores FTD as an illness distinct from Alzheimer's disease. Also considered are clinical and medical care issues and practices, as well as such topics as finding a medical team and rehabilitation interventions. The next section on managing care examines the daily care routine including exercise, socialization, adapting the home environment, and behavioral issues. In the following section on caregiver resources, the contributors identify professional and government assistance programs along with private resources and legal options. The concluding chapters stress the need for caregivers to take care of themselves to be able to care more effectively for a loved one with FTD.
This much-needed resource work, the first of its kind, provides a wealth of information to both healthcare profession
The Mayo Clinic guide to stress-free living 

Examines the causes of stress in everyday life and presents such strategies for overcoming it as the practice of acceptance and gratitude, the use of relaxation and meditation techniques, and the cultivation of closer relationships with others -- 

this book will show remarkable improvements in stress, anxiety, resilience, happiness, well-being and quality of life.

•In Part 1 of the book, will lead you on a fascinating "behind the scenes" tour of your brain and mind. You are likely to be very surprised about the reasons behind the thoughts that cause you stress.
•In Part 2 discusses the single most important skill for your success and happiness. This skill will help you discover that the present moment has more novelty and meaning than you could have ever imagined.
•In later sections, you'll learn how to exchange negative thoughts for time-honored principles. You'll enhance your focus on gratitude, cultivate compassion, creatively accept what is, and discover life's deeper meaning. 
With these skills, peace will no longer be a distant goal; it will light your entire path. 
In the end, you'll walk away with simple solutions for complex problems, and you'll know how to apply these skills to most life situations. 

 The Mayo Clinic handbook for happiness : a 4-step plan for resilient living

Discover 4 simple steps to live a resilient, joy-filled life.
The Mayo Clinic Handbook is like a treasure map that leads you step-by-step along a clearly marked path to an incalculable reward. Your reward is not a diamond mine, not a pirate’s booty, but something far more valuable — a lifetime of joy and contentment.

... offers a straightforward plan anyone can implement across 10 weeks. 
four-step self-help process is a joy to undertake and offers you wonderful rewards:
•In Step One, you’ll learn how to better regulate what you think and perceive. This step is actually so enjoyable, it to "adding chocolate powder to your glass of milk."

•Step Two is truly powerful. It will “enhance your inner strength by making you emotionally resilient and happier."

•Step Three produces results that users say range from “momentary calm” to “ecstatic bliss." 

•Step Four is designed to “help you decrease your stress and increase the energy available to you each day."

Mindfulness for carers:
 how to manage the demands of caregiving while finding a place for yourself

This book shows how simple mindfulness techniques can help caregivers to manage the stress, anxiety, depression and burnout that too often accompanies the care of people with physical, psychological or emotional needs. The enjoyable mindfulness exercises will help caregivers to regain control and maintain a positive outlook.

April 19, 2017

new journal - Alzheimer's & Dementia - The Journal of the Alzheimer's Association

January 2017
Volume 13, Issue 1, p1-102

Featured Articles
The worldwide costs of dementia 2015 and comparisons with 2010
The DIAN-TU Next Generation Alzheimer's prevention trial: Adaptive design and disease progression model


•We describe innovative trial design features of interest for Alzheimer's disease (AD) adaptive or prevention trials.

•Dominantly Inherited Alzheimer Network (DIAN) observational study data were used to model autosomal dominant AD (ADAD) cognitive decline.

•The DIAN Trials Unit (DIAN-TU) cognitive composite is sensitive to early cognitive changes in ADAD.

•The disease progression model significantly improves power over traditional analytical methods.

•The DIAN-TU Next Generation prevention trial will test therapeutics to prevent or slow cognitive decline in the ADAD population. p8–19

The Predictors study: Development and baseline characteristics of the Predictors 3 cohort

p2 Abstrac
The Predictors study was designed to predict the length of time to major disease outcomes in Alzheimer's disease (AD) patients. Here, we describe the development of a new, Predictors 3, cohort.

Patients with prevalent or incident AD and individuals at-risk for developing AD were selected from the North Manhattan community and followed annually with instruments comparable to those used in the original two Predictors cohorts.

The original Predictors cohorts were clinic based and racially/ethnically homogenous (94% white, 6% black; 3% Hispanic). In contrast, the 274 elders in this cohort are community-based and ethnically diverse (39% white, 40% black, 21% other; 78% Hispanic). Confirming previous observations, psychotic features were associated with poorer function and mental status and extrapyramidal signs with poorer function.

This new cohort will allow us to test observations made in our original clinic-based cohorts in patients that may be more representative of the general community. 0–27
Prevalence of dementia subtypes in United States Medicare fee-for-service beneficiaries, 2011–2013

The current and future burden of late-onset dementia in the United Kingdom: Estimates and interventions
Blood-based biomarkers in Alzheimer disease: Current state of the science and a novel collaborative paradigm for advancing from discovery to clinic
Review Articles
A common challenge in older adults: Classification, overlap, and therapy of depression and dementia

p5 Abstract
Late-life depression is frequently associated with cognitive impairment. Depressive symptoms are often associated with or even precede a dementia syndrome. Moreover, depressive disorders increase the risk of persistence for mild cognitive impairment and dementia. Here, we present both the current state of evidence and future perspectives regarding the integration and value of clinical assessments, neuropsychological, neurochemical, and neuroimaging biomarkers for the etiological classification of the dementia versus the depression syndrome and for the prognosis of depression relating to dementia risk. Finally, we summarize the existing evidence for both pharmacotherapy and psychotherapy of depression in demented patients. There is an urgent need for large-scale collaborative research to elucidate the role and interplay of clinical and biological features in elderly individuals with depressive disorders who are at elevated risk for developing dementia. To overcome barriers for successful drug development, we propose the introduction of the precision medicine paradigm to this research field. 9–71
Systematic review of dementia prevalence and incidence in United States race/ethnic populations
Apathy associated with neurocognitive disorders: Recent progress and future directions

Apathy is common in neurocognitive disorders (NCDs) such as Alzheimer's disease and mild cognitive impairment. Although the definition of apathy is inconsistent in the literature, apathy is primarily defined as a loss of motivation and decreased interest in daily activities.

The Alzheimer's Association International Society to Advance Alzheimer's Research and Treatment (ISTAART) Neuropsychiatric Syndromes Professional Interest Area (NPS-PIA) Apathy workgroup reviewed the latest research regarding apathy in NCDs.

Progress has recently been made in three areas relevant to apathy: (1) phenomenology, including the use of diagnostic criteria and novel instruments for measurement, (2) neurobiology, including neuroimaging, neuropathological and biomarker correlates, and (3) interventions, including pharmacologic, nonpharmacologic, and noninvasive neuromodulatory approaches.

Recent progress confirms that apathy has a significant impact on those with major NCD and those with mild NCDs. As such, it is an important target for research and intervention.

April 07, 2017

for the healthcare professional -and the successful activity co-coordinator

* members can email nsw.library@alzheimers.org.au to borrow resources 
 bfn Michelle 

The successful activity co-ordinator : a learning resource for activity and care staff engaged in developing an active care home 
Book Review by Lauretta Kaldor, Diversional Therapist,

... this would the one to choose. It is based on the most recent research and current practice and makes an excellent tool for any aged care facility, educator or student of recreation. 

It is a learning resource and encourages the reader to do a series of tasks that will reinforce the information in this book.

Some of the topics covered are: needs of older people; challengers and opportunities facing older people in aged care facilities; the role of the activity coordinator; and effective communication. Units 5-11 carefully go through the planning process for successful activities including one unit on engaging people with dementia in activities.

April 06, 2017

Relaxation and dementia; an ideal program for reducing anxiety ...

These articles and  resources are available for loan to members of AANSW - if you would like to reserve them please email the Library on nsw.library@alzheimers.org.au 

Articles from  Activities Directors Quarterly

Animal assisted therapy and people with dementia 
see how trips to the zoo and animals  such as dogs and cats in the home or residential care home can reduce yelling and screaming and abusive behaviors towards nurising staff and lower heart rates of people with dementia ..(.p 7) 

books include:

Animal assisted therapy : pet therapy : in dementia care
Dementia Behaviour Management Advisory Services Vic
Animal Assisted Therapy has often been applied effectively as a non pharmacological intervention for people that have diminished life skills due to dementia for example: social withdrawal, poor long or short term memory, reduced communication skills as well as reducing BPSD such as: Apathy, vocalising, aggressive behaviour, restlessness. wandering and intrusion.

Animal-assisted brief therapy : a solution-focused approach

Animal Assisted Activities/Therapy- a

begin and maintain an effective treatment program that meaningfully merges dogs and other therapy animals with Solution-Focused Therapy . 
The book explains how this loving and patient therapy for clients need not be the difficult challenge that it at first appears to be. This resource takes you step by step through the process, showing what practical strategies can be used to offset most obstacles and unknowns. 

2nd article 
Relaxation and dementia; an ideal program for reducing anxiety 
There is a relationship between relaxation and stress and by setting the tone for the intervention  
learn how using:
  • ·         Guided imagery
  • ·         Progressive muscle relaxation and
  • ·         chair tai chi

people with moderate dementia had decreased heart rate and increased calmness    (p 41)

you can also borrow

Stronger seniors : yoga chair exercise
This program is designed to help seniors develop strength and enhance the ability to function in daily life. This beginning yoga program improves respiration and circulation and reduces tension. Stronger Seniors Yoga Chair Exercise will help to increase balance, flexibility, and strength. Yoga incorporates simple mind/body exercises focusing on breath and relaxation which help to reduce stress. 

BalanceThese exercises are targeted for all older people .  They are designed to improve strength, flexibility, coordination and sense of balance through practise of a variety of functional  tasks.  These tasks can be easily duplicated in the home or community setting.

Tai Chair
Tai Chair is a series of exercises targeted for all older people. They are designed to improve strength, flexibility, coordination and sense of balance through practise of a variety of functional tasks.

A guide to meditation


Is your filled with chaos and stress, often leaving you with an inability to focus? In less time than you would spend on a coffee break, you can fill your day with calm, balance, and serenity.
Five good minutes in your body : 100 mindful practices to help you accept yourself & feel at home in your body
 Collection of easy mindfulness practices to help you recharge your body, accept yourself, and release tension and stress.

The relaxation therapy manual

Written for people who already possess skills, this complete guidebook will enable them to use relaxation techniques with both individuals and groups.  Divided into four parts, this manual provides essential background information, covers a variety of relaxation techniques, examines the application of relaxation therapy and outlines an eight-week relaxation course.  This valuable course contains a week-by-week guide to teaching people relaxation skills and includes session plans, photocopiable handouts and exercises.

Social workers, nurses occupational therapists and care workers who require training in teaching relaxation or who would like to refine their techniques will find this manual immensely useful in dealing with the essential skills.
What works to promote emotional wellbeing older people : a guide for aged care staff working in community or residential care settings
This booklet has been designed for staff working in community or residential aged care services.

It covers a range of interventions that can be used to promote emotional wellbeing or to help people with anxiety or depression.

These interventions are grouped by type, for example, physical activity interventions, and interventions to do with music and the arts.

Some interventions are supported by a lot of scientific evidence, but others are not.
This booklet summarises the strength of evidence for the use of each intervention in each setting, and whether its usefulness has been shown for promoting emotional wellbeing, as well as specifically for anxiety and depression.

Most sections include a short case study to demonstrate how the interventions may be used with older people in aged care settings. The booklet also includes a list of interventions that staff may want to consider if their clients or residents have dementia or memory loss. Finally, this booklet provides some advice to community and residential care staff on how to plan an evaluation of whether or not an intervention has made a difference.

The booklet focuses on psychosocial interventions that can be used in community settings or residential care. Psychosocial interventions include any interventions that emphasise psychological or social approaches, rather than biological interventions such as medications.

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