February 13, 2018

14 titles on pastoral care and end stage dementia care - books DVDs eResources (to download immediately )

*these   are available to members of dementia Australia NSW by emailing NSW.Library@dementia.org.au

A good life to the end : taking control of our inevitable journey through ageing and death

Ken Hillman is a practising intensive care specialist who is a Professor of Intensive Care at the University of New South Wales. He trained at St Vincent's Hospital in Sydney and worked in London for 6 years before returning to Australia as Director of Intensive Care at Liverpool Hospital in Sydney. Professor Hillman is internationally recognised as a pioneer in the introduction of the Medical Emergency Team which recognises and responds to seriously ill hospital patients early in their deterioration, which has been adopted in the majority of hospitals in the United Kingdom, United States of America and several European countries. He is working closely with the Clinical Excellence Commission on rolling out the Medical Emergency Team to every hospital in New South Wales. He is also passionate advocate of improving the management of the dying patient in acute hospitals.

Living with death and dying

In this compassionate and moving guide to communicating with the terminally ill, Dr. Elisabeth Küebler-Ross, the world's foremost expert on death and dying, shares her tools for understanding how the dying convey their innermost knowledge and needs. Expanding on the workshops that have made her famous and loved around the world, she shows us the importance of meaningful dialogue in helping patients to die with peace and dignity.

Sydney Writers Festival: Author Atul Gawande speaks about his book
Being Mortal CD or Book and on eBook 

Gawande turns to his father a lot when talking about Being Mortal, his most personal example on his journey of understanding how we can support people in the ends of their lives.
"We have medicalised even the aging experience, we have made it so that the number one goal is your safety and health, and that's a very thin thing to live for, being safe… and it has caused us unexpected tremendous amount of suffering as people enter the last phases of their lives," he says.
For his father, the most important thing was that he be able to still have dinner and conversation with his family at least once a week, so he decided to undergo an invasive nine hour surgery as well as radiation for his tumour, but did not have chemotherapy. Others will have different priorities, and simply prolonging life until the bitter end may not be compatible with the type of life they want.

 Gawande offers examples of freer, more socially fulfilling models for assisting the infirm and dependent elderly, and he explores the varieties of hospice care to demonstrate that a person's last weeks or months may be rich and dignified. Full of eye-opening research and riveting storytelling, "Being Mortal" asserts that medicine can comfort and enhance our experience even to the end, providing not only a good life but also a good end.

When breath becomes air -  CD or book 

"For readers of Atul Gawande, a profoundly moving, exquisitely observed memoir by a young neurosurgeon faced with a terminal cancer diagnosis who attempts to answer the question What makes a life worth living? 
'" When Breath Becomes Air is an unforgettable, life-affirming reflection on the challenge of facing death and on the relationship between doctor and patient, from a brilliant writer who became both. ... heartbreaking, and ultimately beautiful, the too-young Dr. Kalanithi's memoir is proof that the dying are the ones who have the most to teach us about life."--Atul Gawande "Thanks to When Breath Becomes Air, those of us who never met Paul Kalanithi will both mourn his death and benefit from his life. This is one of a handful of books I consider to be a universal donor--I would recommend it to anyone, everyone."--Ann Patchett

The five invitations : discovering what death can teach us about living fully

The Five Invitations is an exhilarating meditation on the meaning of life and how maintaining an ever-present consciousness of death can bring us closer to our truest selves.

As a renowned teacher of compassionate caregiving and the cofounder of the Zen Hospice Project, Frank Ostaseski has sat on the precipice of death with more than a thousand people. In The Five Invitations, he distills the lessons gleaned over the course of his career, offering an evocative and stirring guide that points to a radical path to transformation.

The Five Invitations: 
-Don't Wait
-Welcome Everything, Push Away Nothing
-Bring Your Whole Self to the Experience
-Find a Place of Rest in the Middle of Things
-Cultivate Don't Know Mind

These Five Invitations show us how to wake up fully to our lives. They can be understood as best practices for anyone coping with loss or navigating any sort of transition or crisis; they guide us toward appreciating life's preciousness. Awareness of death can be a valuable companion on the road to living well, forging a rich and meaningful life, and letting go of regret. The Five Invitations is a powerful and inspiring exploration of the essential wisdom dying has to impart to all of us.

The needs of the dying : a guide for bringing hope, comfort, and love to life's final chapter 
by David Kessler
In gentle, compassionate language, The Needs of the Dying helps us through the last chapter of our lives. Author David Kessler has identified key areas of concern: the need to be treated as a living human being, the need for hope, the need to express emotions, the need to participate in care, the need for honesty, the need for spirituality, and the need to be free of physical pain. Examining the physical and emotional experiences of life-challenging illnesses, Kessler provides a vocabulary for family members and for the dying that allows them to communicate with doctors, with hospital staff, and with one another, and-at a time when the right words are exceedingly difficult to find-he helps readers find a way to say good-bye. 

Being with dying : cultivating compassion and fearlessness in the presence of death 
by Joan Halifax
Zen teacher Joan Halifax has been helping both the dying and their caregivers to face death with courage and compassion for three decades. Here, Joan offers the fruits of her work, providing comfort, inspiration, and practical skills for all those who are in the process of dying or who are charged with a dying person's care. Her teaching, based on Buddhist principles, emphasizes that we have the ability to open up to and rely on our inner strength, and we can help others who are suffering to do the same. Joan offers stories from her personal experience as well as guided exercises and contemplation to help readers meditate on death without fear, develop a commitment to helping others, and transform suffering and resistance into courage.

End of life care & letting go ..
* I just watched it – it’s pretty amazing J
- about indicators that the disease has progressed into its final stages and how to provide the most effective comfort care
- how to communicate when there are no words through visual, auditory, and physical signals of connection especially regarding pain!
- about physical changes and the importance of primitive reflexes eg. Swallowing/ feeding  and changes in vision and agitation 
- techniques for a consistent positive physical approach
- about different care approaches, from health promotion to compensatory care
- about giving the person with dementia permission to pass without giving up on them (Letting Go vs. Giving Up)

Advanced Care Skills in Late Stage Dementia

Whether you work in a skilled or hospice care setting, this program is a must-see for anyone who seeks to provide the most comfort, dignity and quality of life to the person living with dementia. 

This program offers step-by-step instructions and hands-on skills for a variety of late stage care needs, all based on Positive ApproachTM techniques to help care partners handle even the trickiest of care tasks and reduce their risk of injury.
• How to calmly get a person out of bed while protecting your back
• How to safely transfer a person from bed to wheelchair
• How to best transfer a person from bed to wheelchair using a SARA lift
• How to bathe and dress a person in bed while protecting their dignity
• How to assist with eating and drinking using the most compassionate care techniques

The end-of-life namaste care program for people with dementia 

The innovative Namaste Care program helps facilities provide gentle end-of-life care, especially for residents with advanced dementia. 

Because of their profound losses, these individuals are often isolated with limited human contact during the final stages of their lives. 

This new program reveals simple and practical ways for direct care staff to provide holistic, person-centered care and maintain a human connection.

 Blending nursing care and meaningful activities, the program promotes peaceful and relaxing end-of-life experiences for older adults. Sensory-based practices, like placement in comfortable armchairs, soothing music, and gentle massage, emphasize comfort and pleasure. Personal information is used to individualize the experiences, making them as enjoyable as possible for participants. 

 Step-by-step advice for staffing, budgeting, and marketing a program is included. Detailed information for creating a Namaste Care room is provided, as well as alternative options for facilities with limited space. Plus, real-life vignettes illustrate the program in practice. 

This essential guide for carers, be they professional or friends and relations, provides guidance around a range of concerns associated with end of life. The book tackles this difficult subject in a practical and caring way, showing how appropriate arrangements can be made to ensure the dying person's wishes about death and post-death are carried out. From the practical point of view, the book covers making a Will, making an Advance Directive, donating body tissues and organs, and giving directions for one's own funeral or life celebration. From an emotional point of view the book discusses grief, including anticipatory grief, coping with grief and the importance of grieving.

  • End of Life Care for People with Dementia - eBook
    People with dementia need increasingly specialised support as they approach the end of life, and so too do their families and the professionals who work with them. This book describes not only what can be done to ensure quality of life for those with the illness, but also how best to support those who care for them throughout this difficult period.

  • A Guide to the Spiritual Dimension of Care for People with Alzheimer's Disease and Related Dementia - eBook
    'This is a book for those actively engaged in or interested in spiritual ministry to persons with dementia.... this book very personal in its approach. ... the anecdotes anchor the book in the realm of what can be done rather than the theoretical world of the "maybes". 
  • The main concepts of the book, those of spirituality, retained through dementia, and personal worth should be acceptable to people of most world faiths.'- Leveson Newsletter'
  • This is an important book that has much to offer at a variety of different levels. It ranges from deep philosophical thinking to practical recommendations... a book that should be bought, digested and used frequently.'- Christian Council on Ageing'Contains valuable material.
  •  The passages that attempt a definition of spirituality, and the stories about persons with dementia and how they have been helped to greater well-being, are relevant and excellently done. 
  • The spirit of Eileen Shamy shines out from these pages and carries its own message of passionate concern. One of the book's greatest strengths is its stories, which are unfailingly well-told and apposite.'- Ageing and Society 
  • - care which involves understanding of their spiritual as well as physical needs.This sensitive and informative book provides guidelines for pastoral visits to people with dementia, showing how to empathise with, understand and support individuals during a visit. Emphasising the importance of retaining dignity and freedom of choice for people with dementia, it also presents practical advice about memory cueing and provides frameworks for leading worship for those with dementia.A useful resource for a variety of people involved in pastoral care with older people, whether professionals or volunteers, this book provides inspiration from a respected author in the field of psychogeriatric care. 

January 31, 2018

DVDs for exercises for people with dementia and for seniors!

*these DVDs and articles  are available to members of dementia Australia NSW by mailing NSW.Library@dementia.org.au

Oh dear, what can the matter be? : this programme is about encouraging people with dementia to stay active
by Dementia Services Development Centre (University of Stirling)

Keeping active is as important for people with dementia as for any of us, yet there are additional difficulties in helping people with dementia to get up and keep going. This short, optimistic video explains why walking is important and shows how to help people with dementia get on their feet. It would be useful as part of any moving and handling course and well as a way of stimulating discussion on understanding challenging behaviour and planning meaningful activities.

It covers :
Everyday activities are essential
Life story work helps select suitable activities
Staying active improves appetite, circulation and sleep
Risk assessment and risk taking
The abilities of people with dementia vary from day to day and hour to hour
People who walk constantly need a safe environment
Hip protection – a success in some settings
How to get someone with dementia from sitting to standing
The acute sector – how it affects people with dementia
Rehabilitation – how to achieve it
Whenever exercise is in consideration consider pain also

Therapeutic exercise : treatment planning for progression [DVD and book available]

This DVD provides 60 minutes of video clips that gives students the ability to observe an activity, critique the technique, compare and contrast movement in a wide range of ages, select the appropriate exercise for the job and many other applications. It covers addressing functional limitations and disability with therapeutic exercise; range of motion and stretching; strength; balance; coordination and proprioception; endurance.

Stronger seniors workout program. Stretch & Strength DVD

A two-part program designed to help older people develop strength and enhance ability to function in daily life, improving stability, balance and mobility. workout routine specifically for seniors, performed at a slow, relaxing pace. The chair exercises will increase flexibility, provide a renewed sense of balance and well-being, develop strength, and enhance the ability to function for seniors.

Stronger seniors : yoga chair exercise DVD

This program is designed to help seniors develop strength and enhance the ability to function in daily life. This beginning yoga program improves respiration and circulation and reduces tension. Stronger Seniors Yoga Chair Exercise will help to increase balance, flexibility, and strength. Yoga incorporates simple mind/body exercises focusing on breath and relaxation which help to reduce stress. 

Balance DVD

These exercises are targeted for all older people .  They are designed to improve strength, flexibility, coordination and sense of balance through practise of a variety of functional  tasks.  These tasks can be easily duplicated in the home or community setting.

Tai Chair DVD

Tai Chair is a series of exercises targeted for all older people. They are designed to improve strength, flexibility, coordination and sense of balance through practise of a variety of functional tasks.

The aim of this pilot study was to examine whether chair yoga was effective in reducing pain level and improving physical function and emotional well-being in a sample of community-dwelling older adults with osteoarthritis. One-way repeated measures analysis of variance was performed to examine the effectiveness of chair yoga at baseline, midpoint (4 weeks), and end of the intervention (8 weeks). Although chair yoga was effective in improving physical function and reducing stiffness in older adults with osteoarthritis, it was not effective in reducing pain level or improving depressive symptoms. Future research planned by this team will use rigorous study methods, including larger samples, randomized controlled trials, and follow up for monitoring home practice after the interventions.
p, 12-22

Chair yoga : seated exercises for health and wellbeing [DVD]
Chair yoga is a revolutionary concept designed to make the numerous benefits of classical yoga available to a wider range of physical abilities. This step-by-step program can be practiced by virtually anyone, anywhere, in any chair, to stimulate physical and mental well-being. This fully illustrated guide contains ninety easy-to-master exercises that have been specially developed for those with a limited range of movement.

Independence fitness : meditation & Qigong workout for seniors

Qigong is sometimes called the 'new yoga,'

It is the process of aligning breath and movement, awareness of exercise and healing and meditation. Qigong is very similar to Tai Chi and creates a great opportunity for mental and physical challenges. Meditation is powerful. It is taught with Qigong and used throughout Independence Fitness. 

It offers a wide variety of health benefits for your physiological, psychological and sociological well-being and is simple to perform. Mediation relieves tension in the muscles and reduces depression, stress, loneliness and anxiety. It can reduce body pain, decrease blood pressure and improve circulation. Meditation can make you more alert and positively impact your ability to interact with others and your surroundings. It can even help you sleep better!
This routine is split 50/50 on Meditation and Qigong. It is unique and can be seen as a break from the strength building workouts. This video is intentionally very relaxing. Enjoy! Featuring Connie Balcom, ACE-Certified Senior Fitness Specialist. 

Independence Fitness is the most comprehensive whole body exercise program focused on strength, balance and flexibility. 

article :Study: Tai Chi Increases Brain Size, Boosts Memory, May Delay Dementia

PROBLEM: Though previous studies have shown aerobic exercise's ability to increase brain volume and improve memory, it's unclear if a less strenuous form of physical exercise, namely tai chi, can engender the same brain benefits.

RESULTS: The participants who practiced tai chi three times a week however, showed significant increases in brain volume as well as improvements in their memory and thinking test scores.

CONCLUSION: A regular tai chi exercise regimen enlarges the brain and enhances the cognitive abilities of the elderly.

IMPLICATION: Since past research has shown a link between dementia and brain shrinkage, a less aerobic form of exercise, such as tai chi, may delay the onset of this degenerative mental illness.

SOURCE: The full study, "Changes in Brain Volume and Cognition in a Randomized Trial of Exercise and Social Interaction in a Community-Based Sample of Non-Demented Chinese Elders," is published in the Journal of Alzheimer's Disease.

The power of Tai-Chi DVD plus instruction booklet
Master the basics in record time with one easy class. Each title is beautifully presented as a hard cover book with the accompanying DVD housed within a sliding tray which is incorporated in the front cover. Together each book & DVD set delivers a complete class for you at home.With a selection of popular lifestyle and music titles available, this series has something for everyone.

The gift of yoga DVD plus instruction booklet Benefit from centuries of wisdom in the comfort of your own home and join Gena Kenny as she introduces you to the postures, breathing techniques, relaxation and meditation that makes up Hatha yoga. The Gift of Yoga: Book and DVD contains step-by-step instructions covering the major components of yoga, including postures, breathing and relaxation. Containing a full length program and four mini-workouts, The Gift of Yoga is suitable for all ages and fitness levels and includes tips on how to increase or decrease the challenge. These programs have been designed to improve the flexibility, stability and strength of your body, and soothe and calm your mind.

January 24, 2018

new books for the healthcare professional related to counselling

*these are available to members of dementia Australia NSW by mailing NSW.Library@dementia.org.au

Counseling people with early-stage Alzheimer's disease : a powerful process of transformation

People with early dementia face enormous challenges in coping with their condition, yet they typically receive no personalized education or support following the diagnosis. 

Counselling empowers them to understand and come to terms with the illness while also learning to manage and make healthy adaptations to it. With the rapid increase in people diagnosed with early memory impairment—and demand for better support services—this ground breaking new guide gives you essential tools to become an integral partner in a process that helps people adjust to the many changes in their lives.

Presenting an innovative new counselling framework designed around the unique problems and needs arising from dementia, Counselling People with Early-Stage Alzheimer’s Disease guides the counsellor and client through the many emotional, practical, and lifestyle issues to be faced.
In her new and easy-to-follow protocol, Robyn Yale—an internationally renowned expert on early-stage support groups—explores topics that include identity and self-esteem, resilience, relating to and educating others, stress management, and more. You will come away with an expanded repertoire of specialized skills and support roles—including coach, care planner, mediator, communications specialist, and problem solver—that will dramatically improve your ability to assist people with early dementia to
• work through complex emotions
• tap into useful coping mechanisms
• focus on capabilities
• adapt to practical circumstances in their day-to-day activities
• retain maximum autonomy over lifestyle preferences

• find new ways to move forward with their lives

Counseling the Alzheimer's caregiver : a resource for health care professionals

This book is a comprehensive evidence-based guide for counseling Alzheimer's caregivers. It describes an approach developed by the staff of New York University School of Medicine's Alzheimer's Disease Center, which has been the subject of a 15-year efficacy trial. The outcome of the study shows clearly that counseling and support can help families keep Alzheimer's disease patients at home and that competent emotional support and referral resources can reduce the negative impact of caregiving on the caregivers.

Person-centred counselling in action

This substantially revised Third Edition provides an excellent introduction to the theory and practice of person-centred counselling while incorporating exciting new developments in the approach.Dave Mearns and Brian Thorne have preserved the compelling and accessible style of its predecessors. At the same time they provoke reflection on many of the key issues which concern not only person-centred practitioners but those across the whole counselling and psychotherapy field. Much has changed in the person-centred orientation since the death of Carl Rogers in 1987. Not only have new schools of thought emerged with different emphases and therapeutic possibilities but the authors of this book have themselves been responsible for significant advances in key areas of person-centred theory and practice. These developments are fully reflected in the revised text.Continuing to offer a clear exposition of the theory and practice of the approach, Person-Centred Counselling in Action, Third Edition will be invaluable for those embarking on their first stages of training. Well-established practitioners and even seasoned scholars will continue to find much to interest and stimulate them.

Theory and practice of counseling and psychotherapy

Develop your own counseling style using Corey's bestselling THEORY AND PRACTICE OF COUNSELING AND PSYCHOTHERAPY. You will see the major theories of counseling (psychoanalytic, Adlerian, existential, person-centered, Gestalt, reality, behavior, cognitive-behavior, family systems, feminist and, and postmodern approaches) as they are used in practice through a case study focused on one client, "Stan." The case of "Stan" appears in each chapter so you can see how the theory presented in that chapter informs therapeutic decision-making. "At a Glance" charts pinpoint the major differences between theories in areas such as multicultural focus, basic philosophies, and limitations.

Intentional interviewing and counseling : facilitating client development in a multicultural society.
Master interviewing skills with this book it gives you the tools to adapt your skills to address both individual and multicultural uniqueness, conduct interviews using five different theoretical approaches, and begin developing a personalized style and theory of interviewing and counseling that matches your own aptitudes and affinities. Case studies, sample interviews, and a "Portfolio of Competencies" are just a few of the many tools that will help you master the material and become a better listener.

Over 450 databased studies attest to the effectiveness of the microskills model in this book - The new Fifth Edition of this hallmark text enables students of many backgrounds to master basic skills in a step-by-step fashion, thus rapidly empowering them to conduct a full interviews using only listening skills. Following this, students learn confrontation and influencing skills and by the time the text is completed, students will be able to conduct interviews from several theoretical perspectives: person-centered, decisional interviewing, assertiveness training, and brief solution-oriented counseling. Throughout the text, students are encouraged to examine themselves and to start defining their own personal style and theory of interviewing and counseling.

The helping relationship : process and skills

This book describes, in non-technical language, the human helping process and provides training for anyone interested in becoming a helper. Using a systematic approach, the text focuses on how to help people help themselves. The seventh edition is complete with examples and step-by-step outlines of how to begin developing basic counseling skills. Important personal issues of being a helper are raised for the readers to consider as they enter professional or paraprofessional roles as helpers.

Counseling requires leadership and compassion, and it is a skill that all must possess in order to live with others in the world. This book describes in non-technical language the human helping process and provides training for anyone interested in becoming a helper. Filled with examples and step-by-step outlines on how to develop basic counseling skills, this book focuses on helping people learn to help themselves and each other. Providing a systematic approach to acquiring helping skills, this book cuts through psychological jargon and reaches across various professions and settings. Readers are asked to consider important personal issues of being a helper as they enter professional or paraprofessional roles as helpers. Social workers, counselors, human service professionals, business professionals, law professionals, medical professionals, and anyone interested in becoming a helper.

To borrow or reserve this item please email NSW.Library@dementia.org.au
or download from our overdrive link 

eBooks on topic include:

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